The Black and African American Connections to Parkinson’s Disease (BLAAC PD) study protocol

Autor: Lana M. Chahine, Naomi Louie, J Solle, Fulya Akçimen, Andrew Ameri, Samantha Augenbraun, Sabrina Avripas, Sarah Breaux, Christopher Causey, Shivika Chandra, Marissa Dean, Elizabeth A. Disbrow, Lauren Fanty, Jessica Fernandez, Erin R. Foster, Erin Furr Stimming, Deborah Hall, Vanessa Hinson, Ashani Johnson-Turbes, Cabell Jonas, Camilla Kilbane, Scott A. Norris, Bao-Tran Nguyen, Mahesh Padmanaban, Kimberly Paquette, Carly Parry, Natalia Pessoa Rocha, Ashley Rawls, Ejaz A. Shamim, Lisa M. Shulman, Rebeka Sipma, Julia Staisch, Rami Traurig, Rainer von Coelln, Peter Wild Crea, Tao Xie, Zih-Hua Fang, Alyssa O’Grady, Catherine M. Kopil, Maggie McGuire Kuhl, Andrew Singleton, Cornelis Blauwendraat, Sara Bandres-Ciga, the BLAAC PD Study and the Global Parkinson’s Genetics Program (GP2)

Publikováno v: BMC Neurology, Vol 24, Iss 1, Pp 1-15 (2024)

Abstract Determining the genetic contributions to Parkinson’s disease (PD) across diverse ancestries is a high priority as this work can guide therapeutic development in a global setting. The genetics of PD spans the etiological risk spectrum, from

Externí odkaz: https://doaj.org/article/15c7bceb54b1476f84c1fdcc646a1eef

Applying a Trauma-Informed Lens to Challenging Adolescent Encounters: A Faculty Development Session for Pediatricians

Autor: Deborah Hall, Yael Smiley, Ariella Slovin, Jaytoya Manget, James E. Bost, Binny Chokshi

Publikováno v: MedEdPORTAL, Vol 20 (2024)

Introduction Patient encounters perceived to be challenging are common and contribute to both suboptimal patient health outcomes and provider burnout. A trauma-informed care (TIC) approach to these encounters is critical, as many of the characteristi

Externí odkaz: https://doaj.org/article/add2f4cddd9c43a4a769adc4ada0890a

Health motivations and perceived barriers are determinants of self-care behaviour for the prevention of hypertension in a Malaysian community.

Autor: Paulina Pei Suu Tan, Ryand Singh Sandhu, Shamsul Mohd Zain, Deborah Hall, Ngiap Chuan Tan, Hooi Min Lim, Faiz Daud, Yuh-Fen Pung

Publikováno v: PLoS ONE, Vol 17, Iss 12, p e0278761 (2022)

IntroductionSelf-care behaviour is fundamental in preventing hypertension in the general population. According to the Health Belief Model, health beliefs and perceptions influence the success in adopting disease prevention strategies. While factors i

Externí odkaz: https://doaj.org/article/632b3b79c2404c3e9ce6f9e23b338ccc

Representation of published core outcome sets for research in regulatory guidance: protocol [version 2; peer review: 2 approved]

Autor: Susanna Dodd, Rebecca Fish, Sarah Gorst, Deborah Hall, Pamela Jacobsen, Jamie Kirkham, Barry Main, Karen Matvienko-Sikar, Ian J. Saldanha, Dominic Trépel, Paula R. Williamson

Publikováno v: HRB Open Research, Vol 4 (2021)

Background: The COMET Initiative promotes the development and use of ‘core outcome sets’ (COS), agreed standardised sets of outcomes that should be measured and reported in all studies in a particular clinical condition. COS are determined by con

Externí odkaz: https://doaj.org/article/4dd705c1384542c98acf1b02e835b227

Safety and efficacy of valbenazine for the treatment of chorea associated with Huntington's disease (KINECT-HD): a phase 3, randomised, double-blind, placebo-controlled trial

Autor: Erin Furr Stimming, Daniel O Claassen, Elise Kayson, Jody Goldstein, Raja Mehanna, Hui Zhang, Grace S Liang, Dietrich Haubenberger, Jamie Adams, Christopher Beck, Cheryl Chen, Martha Nance, Claudia Testa, Patricia Huffman, Amy Chesire, Frederick Marshall, Praveen Dayalu, Angela Stovall, Deborah Hall, Jacob Hawkins, Letty Ginsburg, Henry Moore, Tiago Mestre, Tanya Thompson, Natalie Connors, H. Diana Rosas, Allison Daley, Sandra K. Kostyk, Casey Mitchell, Amy Hellman, Sheryl Houston, Danielle Buchanan, Katherine McDonell, Stewart A. Factor, Elaine Sperin, Andrea Hurt, Joanne Wojcieszek, Mike Adurogbangba, Lynn A. Raymond, Jody Corey-Bloom, Chase Snell, Courtney Blair, Victor Sung, Sophia Antonioli, Jacqueline Fung, Simon Laganiere, Luis Sierra, William M. Mallonee, Greg Suter, Danny Bega, Zsa Zsa Brown, Lawrence Elmer, Nancy Vollmar, Debra del Castillo, Yi-Han Lin, Kelly Andrzejewski, Patricia Weigel, Trevor Hawkins, Kendra Kirby, Cimmaron Retzik-Stahr, Lauren Seeberger, Rohit Dhall, Anja Rassmann, McKenzie Luxmore, Burton Scott, James Boyd, Katherine Chan, Nikolaus McFarland, Kyle Rizer, Patricia Conlon, Valerie Suski, Federico Rodriguez-Porcel, Sandra Wilson, Christine Farrell, David Hunter, David Houghton, Sarah Seoane, Clare Gibbons, Philippe Rizek, Robin Kuprewicz, Steven Lo, Miroslav Cuturic, Vicki Segro, Kate Greenly, Fredy Revilla, Enrique Urrea-Mendoza, Kevin J. Black, Thomas Davis, Natividad Stover, Andrew Duker, Jay Van Gerpen, Peter Hedera, William Ondo, Karen Anderson, Stephen Bradley, Ken Cheung, Samuel Frank

Publikováno v: The Lancet Neurology. 22:494-504

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::d9521bbc7c5886201c53a98dc988016d
https://doi.org/10.1016/s1474-4422(23)00127-8