The MULTI-ACT model: the path forward for participatory and anticipatory governance in health research and care

Autor: Paola Zaratin, Deborah Bertorello, Roberta Guglielmino, Danilo Devigili, Giampaolo Brichetto, Valentina Tageo, Gabriele Dati, Stephanie Kramer, Mario Alberto Battaglia, Monica Di Luca

Publikováno v: Health Research Policy and Systems, Vol 20, Iss 1, Pp 1-9 (2022)

Abstract The COVID-19 pandemic has unmasked even more clearly the need for research and care to form a unique and interdependent ecosystem, a concept which has emerged in recent years. In fact, to address urgent and unexpected missions such as “fig

Externí odkaz: https://doaj.org/article/0f9d975d9e4a4fc0b5958a897e08b0a1

The agenda of the global patient reported outcomes for multiple sclerosis (PROMS) initiative: Progresses and open questions

Autor: Paola Zaratin, Patrick Vermersch, Maria Pia Amato, Giampaolo Brichetto, Timothy Coetzee, Gary Cutter, Gilles Edan, Gavin Giovannoni, Emma Gray, Hans Peter Hartung, Jeremy Hobart, Anne Helme, Robert Hyde, Usman Khan, Letizia Leocani, Lorenzo Giovanni Mantovani, Robert McBurney, Xavier Montalban, Iris-Katharina Penner, Bernard M.J. Uitdehaag, Pamela Valentine, Helga Weiland, Deborah Bertorello, Mario Alberto Battaglia, Peer Baneke, Giancarlo Comi

Publikováno v: Multiple Sclerosis and Related Disorders
Multiple Sclerosis and Related Disorders, 2022, 61, pp.103757. ⟨10.1016/j.msard.2022.103757⟩
Multiple Sclerosis and Related Disorders, 61:103757. Elsevier
Zaratin, P, Vermersch, P, Amato, M P, Brichetto, G, Coetzee, T, Cutter, G, Edan, G, Giovannoni, G, Gray, E, Hartung, H P, Hobart, J, Helme, A, Hyde, R, Khan, U, Leocani, L, Mantovani, L G, McBurney, R, Montalban, X, Penner, I-K, Uitdehaag, B M J, Valentine, P, Weiland, H, Bertorello, D, Battaglia, M A, Baneke, P, PROMS Initiative Working Groups & Comi, G 2022, ' The agenda of the global patient reported outcomes for multiple sclerosis (PROMS) initiative : Progresses and open questions ', Multiple Sclerosis and Related Disorders, vol. 61, 103757 . https://doi.org/10.1016/j.msard.2022.103757

International audience; On 12 September 2019, the global Patient Reported Outcome for Multiple Sclerosis (PROMS) Initiative was launched at the 35th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS). The mu

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::96c84257f3335fe212b23cac987b69f7
https://hal.archives-ouvertes.fr/hal-03711714

Collective health research assessment: developing a tool to measure the impact of multistakeholder research initiatives

Autor: Anna-Aurora Kork, Carla Antonini, Nicolás García-Torea, Mercedes Luque-Vílchez, Ericka Costa, Juliette Senn, Carlos Larrinaga, Deborah Bertorello, Giampaolo Brichetto, Paola Zaratin, Michele Andreaus

Publikováno v: Health research policy and systems. 20(1)

Background The need to more collaboratively measure the impact of health research and to do so from multidimensional perspectives has been acknowledged. A scorecard was developed as part of the Collective Research Impact Framework (CRIF), to engage s

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::700b5568a9bd9ce7a8c2271b8f2826fe
https://pubmed.ncbi.nlm.nih.gov/35501895