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pro vyhledávání: '"Deborah A.R. Hinkson"'
Autor:
Deepak Garg, Sunita Vohra, Shelley J. Kennedy, Eshetu G. Atenafu, Deborah A.R. Hinkson, Alex V. Levin
Publikováno v:
American journal of medical genetics. Part A. 140(20)
We surveyed 57 caregivers of children with Cornelia de Lange syndrome (CdLS) using a self-report questionnaire designed to elicit their experiences with receiving information regarding health complications associated with this multisystem disorder. T