Health-Related Quality of Life and Functional Status Are Associated with Cardiac Status and Clinical Outcome in Children with Cardiomyopathy

Autor: Lipshultz, Steven E., Grenier, Michelle A., Giantris, Amy, Rossetti, Lina, Rossetti, Rachel, McCoy, Kristina, Meloche, Mabel, Sullivan, William, Muto, Eran, Lewis, Kristen, O’Brien, Renee, Gurell, Michael, Cianfrini, Christy, Keesler, Marcie, McDonald, Melissa, Wilkinson, James D., Rusconi, Paolo, Dauphin, Danielle, Alvarez, Jorge A., Czachor, J., Alvarez, J., Sleeper, Lynn, Cafferata, Lisa, Noonan, Kirsten, Lowe, April, Lu, Minmin, Orfaly, Rebecca, Gilroy, Linda, Tighe, Foss, Arsenault, Patti, Pophali, Neena, Schiavoni, Lisa, Osganian, Stavroula, Cuniberti, Leigha, McKee, Tara, Rauch, Elizabeth, Orav, Endel J., Lurie, Paul, Tamer, Dolores, Wolfe, Grace, Gidding, Samuel, Pahl, Elfriede, Rodgers, Sherrie, Colan, Steven, Cox, Gerald, Messere, Jane, Canter, Charles, Exil, Vernat, Strauss, Arnold, Hsu, Daphne, Steeg, Carl, Buzzard, Carol, Truesdell, Susie, Rees, Mary Ann, Wilk, David, Shaikh, Seema, Fountain, Darlene, Korsin, Rosalind, Addonizio, Linda, Epstein, Shilpi, Hill-Edgar, Allison, Kaufman, Beth, Chrisant, Maryanne, Rossano, Joseph, Webber, Stephen, Towbin, Jeffrey, Clunie, Sarah, Jefferies, John L., Lemler, Matthew, Carron, Hollie, Fixler, David, Everitt, M., Shaddy, Robert, Kantor, Paul, Benson, Lee, Newman, Alice, Sleeper, Lynn A., Towbin, Jeffrey A., Colan, Steven D., Lemler, Matthew S., Miller, Tracie L.

Publikováno v: In The Journal of Pediatrics March 2016 170:173-180

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The Value of National Institutes of Health (NIH) Registry-Based Research in Identifying Childhood Cardiac Disease Outcomes: The Pediatric Cardiomyopathy Registry Experience.

Autor: Wilkinson, James D., Westphal, Joslyn A., Ross, Samuel W., Dauphin, Danielle D., Lipshultz, Steven E.

Publikováno v: Pediatric & Congenital Cardiac Care: Volume 1: Outcomes Analysis; 2015, p445-463, 19p