How Well Do ICD‐9‐CM Codes Predict True Congenital Heart Defects? A Centers for Disease Control and Prevention‐Based Multisite Validation Project

Autor: Fred H. Rodriguez, Cheryl L. Raskind‐Hood, Trenton Hoffman, Sherry L. Farr, Jill Glidewell, Jennifer S. Li, Alfred D'Ottavio, Lorenzo Botto, Matthew R. Reeder, Daphne Hsu, George K. Lui, Anaclare M. Sullivan, Wendy M. Book

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 11, Iss 15 (2022)

Background The Centers for Disease Control and Prevention's Surveillance of Congenital Heart Defects Across the Lifespan project uses large clinical and administrative databases at sites throughout the United States to understand population‐based c

Externí odkaz: https://doaj.org/article/2d9a9a5d60644cbeb55bcf6eb65e74e7

Recommendations to Enhance Pediatric Cardiovascular Drug Development: Report of a Multi‐Stakeholder Think Tank

Autor: Rachel D. Torok, Jennifer S. Li, Prince J. Kannankeril, Andrew M. Atz, Raafat Bishai, Ellen Bolotin, Stefanie Breitenstein, Cathy Chen, Thomas Diacovo, Timothy Feltes, Patricia Furlong, Michael Hanna, Eric M. Graham, Daphne Hsu, D. Dunbar Ivy, Dianne Murphy, Lisa A. Kammerman, Gregory Kearns, John Lawrence, Brigitte Lebeaut, Danshi Li, Christoph Male, Brian McCrindle, Pierre Mugnier, Jane W. Newburger, Gail D. Pearson, Vasum Peiris, Lisa Percival, Miriam Pina, Ronald Portman, Robert Shaddy, Norman L. Stockbridge, Robert Temple, Kevin D. Hill

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 7, Iss 4 (2018)

Externí odkaz: https://doaj.org/article/358997288c0745aea8f714749db9b506

Innovations in Pediatric Therapeutics Development: Principles for the Use of Bridging Biomarkers in Pediatric Extrapolation

Autor: Thomas R. Fleming, Christine E. Garnett, Laurie S. Conklin, Solange Corriol-Rohou, Sudharshan Hariharan, Daphne Hsu, Guenther Mueller-Velten, Yeruk Mulugeta, Ronald Portman, Mark D. Rothmann, Norman L. Stockbridge, Simon Wandel, Jialu Zhang, Lynne Yao

Publikováno v: Therapeutic innovationregulatory science. 57(1)

Even with recent substantive improvements in health care in pediatric populations, considerable need remains for additional safe and effective interventions for the prevention and treatment of diseases in children. The approval of prescription drugs

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c40989891b158eea2f9b1ca62e1fb45f
https://pubmed.ncbi.nlm.nih.gov/36057747

Ethnic differences in the clinical presentation of Graves’ ophthalmopathy

Autor: Chng, Chiaw-Ling, Seah, Lay Leng, Khoo, Daphne Hsu Chin

Publikováno v: In Best Practice & Research Clinical Endocrinology & Metabolism June 2012 26(3):249-258

Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome

Autor: Jill C. Handisides, Danielle Hollenbeck-Pringle, Karen Uzark, Felicia L. Trachtenberg, Victoria L. Pemberton, Teresa W. Atz, Timothy J. Bradley, Elizabeth Cappella, Sylvia De Nobele, Georgeann Keh-Teng Groh, Michelle S. Hamstra, Rosalind Korsin, Jami C. Levine, Bergen Lindauer, Aimee Liou, Meghan K. Mac Neal, Larry W. Markham, Tonia Morrison, Kathleen A. Mussatto, Aaron K. Olson, Mary Ella M. Pierpont, Reed E. Pyeritz, Elizabeth A. Radojewski, Mary J. Roman, Mingfen Xu, Ronald V. Lacro, Gail Pearson, Mario Stylianou, Lynn Mahony, Lynn Sleeper, Sharon Tennstedt, Steven Colan, Gloria Klein, Lin Guey, Lisa Wruck, Thomas Travison, Shan Chen, Eric Gerstenberger, Tanya Olesker, David F. Teitel, Jane Newburger, Martha King, Carolyn Dunbar-Masterson, Andrea Posa, Quincy Nang, Cara Hass, Daphne Hsu, Wyman Lai, William Hellenbrand, Beth Printz, Richard Devereux, Greysi Sherwood, Victoria Vetter, Stephen Paridon, Marie Gleason, Nicole Mirarchi, Sandra DiLullo, Agbenu Ejembi, Ruth Morgan, D. Woodrow Benson, William Border, James Cnota, Haleh Heydarian, Jeanne James, Kathryn Hogan, Lois Bogenschutz, Mary Pat Benham, Teresa Barnard, Page A.W. Anderson, Jennifer S. Li, Stephanie Burns Wechsler, Amanda Cook, Charles Sang, Wesley Covitz, Lori Jo Sutton, Kari Crawford, Summer Roberts, Deborah Palmer, J. Philip Saul, Andrew Atz, Geoffrey Forbus, Patricia Infinger, Aparna Choudhury, LuAnn Minich, Richard Williams, Angela Yetman, Marian Shearrow, Michelle Robinson, June Porter, Brian McCrindle, Jennifer Russell, Jack Colman, Svetlana Khaikin, Nancy Slater, Harry C. Dietz, William J. Ravekes, Mary Rykiel, Elisabeth Sparks, Gretchen MacCarrick, Jennifer Leadroot, Charles Canter, Angela Sharkey, Alan Braverman, Cheryl Rainey, John L. Jefferies, Timothy Slesnick, Hugo Martinez, Andres Menesses, Tunu Tenende, David Liang, Elisabeth Merkel, Bart Loeys, Julie De Backer, Jan Maarten Cobben, Thierry Sluysmans, Anne De Paepe, Bruce Gelb, Shubhika Srivastava, Tejani Mendiz-Ramdeen, Constance Weismann, Emily Lawrence, Stephanie Chin, Helen Ko, Jen Le Yau, Steven Webber, Stacey Drant, Jane Luce, Kevin Stiegler, Cheryl Kinnard, Cheri Stewart, Sue Sommers, Carol Madison, Luciana Young, Megan Domenico, Kathryn Waitzman, Carla Lozano, Charles Baker, Erin Zielinski, Heidi Vander Velden, Alison Overman, Mark Lewin, Amy Payne, David Rimoin, Mitchel Pariani, Robert Siegel, Asim Rafique, Paul Grossfeld, Arlene Smith, Terri McLees-Palinkas, Steven D. Colan, Elif Seda Selamet Tierney, Shari Trevey, Marga Rivera, Michael Artman, Erle Austin, H. Scott Baldwin, Daniel Bernstein, Timothy Feltes, Julie Johnson, Thomas Klitzner, Jeffrey Krischer, G. Paul Matherne, Kenneth G. Zahka, John Kugler, David J. Driscoll, Mark Galantowicz, Sally A. Hunsberger, Thomas J. Knight, Holly Taylor

Publikováno v: Journal of pediatrics, 204, 250-255.e1. Mosby Inc.

Objective: To assess health-related quality of life (HRQOL) in a large multicenter cohort of children and young adults with Marfan syndrome participating in the Pediatric Heart Network Marfan Trial. Study design: The Pediatric Quality of Life Invento

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2530a9f1fc030a72b355753b97794f31
https://doi.org/10.1016/j.jpeds.2018.08.061