Outcome Measures in Rheumatology - Interventions for medication Adherence (OMERACT-Adherence) Core Domain Set for Trials of Interventions for Medication Adherence in Rheumatology: 5 Phase Study Protocol

Autor: Ayano Kelly, Allison Tong, Kathleen Tymms, Lyn March, Jonathan C. Craig, Mary De Vera, Vicki Evans, Geraldine Hassett, Karine Toupin-April, Bart van den Bemt, Armando Teixeira-Pinto, Rieke Alten, Susan J. Bartlett, Willemina Campbell, Therese Dawson, Michael Gill, Renske Hebing, Alexa Meara, Robby Nieuwlaat, Yomei Shaw, Jasvinder A. Singh, Maria Suarez-Almazor, Daniel Sumpton, Peter Wong, Robin Christensen, Dorcas Beaton, Maarten de Wit, Peter Tugwell, On behalf of the OMERACT-Adherence Group

Publikováno v: Trials, Vol 19, Iss 1, Pp 1-13 (2018)

Abstract Background Over the last 20 years, there have been marked improvements in the availability of effective medications for rheumatic conditions such as gout, osteoporosis and rheumatoid arthritis (RA), which have led to a reduction in disease f

Externí odkaz: https://doaj.org/article/7431cb4f796b40cdaf7b5e5516c07495

VEXAS syndrome: lessons learnt from an early Australian case series

Autor: Sadia Islam, Taylor Cullen, Daniel Sumpton, Arvin Damodaran, David Heath, Annmarie Bosco, Nicole W. Doo, Giselle Kidson‐Gerber, Anthony Cheong, Ron Lawford, Rebecca Walsh, Anthony Sammel

Publikováno v: Internal Medicine Journal. 52:658-662

VEXAS is a newly recognised adult-onset autoinflammatory syndrome resulting from a somatic mutation in the UBA1 gene. Herein, we present three cases of VEXAS syndrome in Sydney, Australia, that capture key clinical features and the refractory nature

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c72956d075521ef6fa899aa79cf78453
https://doi.org/10.1111/imj.15742

A practical guide to interpreting and applying systematic reviews of qualitative studies in rheumatology

Autor: David J. Tunnicliffe, Daniel Sumpton, Geraldine Hassett, Jonathan C. Craig, Ayano Kelly, Chandana Guha, Allison Tong

Publikováno v: International Journal of Rheumatic Diseases. 24:28-35

While patient-centered care is widely advocated in the management of rheumatic diseases, it can be challenging to implement, particularly for patients with complex systemic conditions. Patient-centered care involves identifying and integrating the pa

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1e97cc5726ae1007ffffbefd4b16102e
https://doi.org/10.1111/1756-185x.14014

Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops

Autor: Camilla S. Hanson, Jonathan C. Craig, Charlotte Logeman, Aditi Sinha, Allison Dart, Allison A. Eddy, Chandana Guha, Debbie S. Gipson, Detlef Bockenhauer, Hui-Kim Yap, Jaap Groothoff, Michael Zappitelli, Nicholas J.A. Webb, Stephen I. Alexander, Susan L. Furth, Susan Samuel, Alicia Neu, Andrea K. Viecelli, Angela Ju, Ankit Sharma, Eric H. Au, Hailey Desmond, Jenny I. Shen, Karine E. Manera, Karolis Azukaitis, Louese Dunn, Simon A. Carter, Talia Gutman, Yeoungjee Cho, Amanda Walker, Anna Francis, Cheryl Sanchez-Kazi, Joshua Kausman, Meghan Pearl, Nadine Benador, Shobha Sahney, Allison Tong, Abhjit Guha, Adaobi Solarin, Adriana Platona, Alexander Hamilton, Alice Woods-Barnard, Allison Eddy, Alyssa Karathanas, Amanda Baumgart, Amelia Fielding, Amelia LePage, Amelie Bernier-Jean, Amy Kelly, Ana Teixeira, Andrea Viecelli, Andrea Matus, Andrew Narva, Angela Yee-Moon Wang, Anna Fielding, Anthony Meza, Aria Fielding, Armando Teixeira-Pinto, Arvind Bagga, Augustina Jankauskienė, Ayano Kelly, Barbara Gillespie, Benedicte Sautenet, Beth Vogt, Bethany Foster, Bradley Warady, Bradley Dixon, Braden Manns, Brenda Hemmelgarn, Brittney Bscardark, Brooklyn Romeo, Camilla Hanson, Carlos Meza, Carter Brockett, Chanel Prestidge, Charmaine Green, Christy Perkins, Claus Peter Schmitt, Craig Fielding, Craig Settee, Daniel Sumpton, Daniel Meza, Darien Karathanas, David Harris, David Wheeler, David Hooper, Debbie Gipson, Denis Geary, Dieter Haffner, Djalila Mekahli, Dorota Drozdz, Ed Romeo, Elaine Ku, Elaine Urbina, Elena Levtchenko, Elena Balovlenkov, Elisabeth Hodson, Emily Morales, Emma O'Lone, Emma Machuca, Emmah Carlton, Eric Au, Erin Olver, Estefania Morales, Fatima Mirza, Fiona Mackie, Francesca Tentori, Franz Schaefer, Gail Higgins, Georges Deschenes, Georgia Plunkett, Gerilyn Yoder, Germaine Wong, Giselle Morales, Greg Germino, Hayley Perkins, Harrison Mitchell-Smith, Helen Coolican, Hong Xu, Ifeoma Anochie, Il-Soo Ha, Ira Davis, Isaac Liu, Israel Samaniego, Jaime Machuca, James Machuca, Jasmijn Kerklaan, Jeff Brockett, Jenna Norton, Jenny Shen, Jens Goebel, Jia Rao, Jimmy Machuca, Jo Mitchell-Smith, Jo Watson, John Gill, Jonathan Craig, Joseph T. Flynn, Joshua Samuels, Justine Bacchetta, Kaleb Yoder, Karine Manera, Katherine Twombley, Kelly-Ann McMichael, Kenji Ishikura, Kennedy Romeo, Kevin Settee, Kim Linh Van, Lachlan McMichael, Lany Trinh, Larry Greenbaum, Laura Sanchez, Leo Fielding, Lesley Rees, Leslie Lippincott, Levi Mejia-Saldivar, Lidia Saldivar, Lisa Guay-Woodford, Lizett Samaniego, Lorraine Hamiwka, Lorraine Bell, Lucinda Barry, Luke Macauley, Luke Holmes, Madelynn Karathanas, Madison Mitchell-Smith, Mandy Walker, Manuel Benavides, Marcello Tonelli, Maria Ferris, Marina Vivarelli, Mark Wolfenden, Martin Howell, Martin Christian, Martin Schreiber, Marva Moxey-Mims, Mary Leonard, Matthew Karathanas, Melissa Natatmadja, Melissa Brockett, Melvin Bonilla-Felix, Meredith Atkinson, Michel Baum, Michelle Rheault, Mignon McCulloch, Mina Matsuda-Abedini, Mini Michael, Mohammad Khan, Mohammad Salih, Mycah Ann Carlton, Ngairre Plunkett, Nick Webb, Nicki Scholes-Robertson, Nicolas Larkins, Nicole Evangelidis, Nigel Yoder, Norma Meza, Paige Olver, Paiyton Carlton, Patrick Brophy, Peter Tugwell, Pierre Cochat, Rajnish Mehrotra, Raphael Wolfenden, Rasheed Gbadegesin, Raymond Benavides, Rebecca Johnson, Ricardo Morales, Richard McGee, Richard Fish, Robert Gardos, Roberto Pecoits-Filho, Rocio Vargas, Rodolfo Saldivar, Rosanna Coppo, Rukshana Shroff, Rupesh Raina, Sajeda Youssouf, Sally Crowe, Samaya Anumudu, Samuel Chan, Sarah Baldacchino, Scott Wenderfer, Sebastian Wolfenden, Selah Carlton, Shanna Sutton, Shannon Murphy, Sharon Teo, Sheyma Salih, Silas Carlton, Simon Carter, Simone Pearson, Simra Khan, Skyla Wilson, Sonia Sharma, Stephen Alexander, Stephen Marks, Stephen Cornish, Stuart Goldstein, Susan Furth, Susan Mendley, Susan Lippincott, Symone Charles, Terri Mitchell-Smith, Tess Harris, Thorsten Vetter, Tiffany Carlton, Timothy Carlton, Uwe Querfeld, Valeria Saglimbene, Virginia Charles, Wim van Biesen, Wolfgang Winkelmayer, Yenissey Machuca, Yusuf Salih, Yo Han Anh, Zachary Perkins, Zeynab Salih

Publikováno v: Kidney international, 98(3), 553-565. Nature Publishing Group

Trials in children with chronic kidney disease do not consistently report outcomes that are critically important to patients and caregivers. This can diminish the relevance and reliability of evidence for decision making, limiting the implementation

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dc8dfb7232dbccb0066bfcb38686304d
http://www.scopus.com/inward/record.url?scp=85088934417&partnerID=8YFLogxK

Establishing a Core Outcome Set for Peritoneal Dialysis: Report of the SONG-PD (Standardized Outcomes in Nephrology–Peritoneal Dialysis) Consensus Workshop

Autor: Karine E. Manera, David W. Johnson, Jonathan C. Craig, Jenny I. Shen, Talia Gutman, Yeoungjee Cho, Angela Yee-Moon Wang, Edwina A. Brown, Gillian Brunier, Jie Dong, Tony Dunning, Rajnish Mehrotra, Saraladevi Naicker, Roberto Pecoits-Filho, Jeffrey Perl, Martin Wilkie, Allison Tong, Adeera Levin, Adrian Liew, Alfonso Cueto Manzano, Ali Abu Alfa, Alicia Neu, Amanda Baumgart, Amelie Bernier-Jean, Amy Kelly, Ana Figueiredo, Andrea Matus, Andrea Viecelli, Angela Ju, Anjali Saxena, Ankit Sharma, Annie-Claire Nadeau-Fredette, Armando Teixeira-Pinto, Asher Mendelson, Ayano Kelly, Bak Leong Goh, Benedicte Sautenet, Braden Manns, Brenda Hemmelgarn, Bruce Robinson, Camilla Hanson, Catherine Cheung, Chandana Guha, Charlotte Logeman, Cheuk-Chun Szeto, Claudia Rutherford, Daniel Schwartz, Daniel Sumpton, David Johnson, David Wheeler, Edwina Brown, Emma O’Lone, Eric Au, Eric Goffin, Fred Finkelstein, Georgi Abraham, Greg Germino, Helen Hurst, Hideki Kawanishi, Htay Htay, Hui Kim Yap, Isaac Teitelbaum, Jenny Chen, Jenny Shen, Joanna Neumann, Joanne Bargman, Johann Morelle, Jonathan Craig, Kajiru Gad Kilonzo, Karen Yeates, Karine Manera, Karolis Azukaitis, Kim Linh Van, Louese Dunn, Mahesh Krishnan, Mark Lambie, Martin Howell, Martin Schreiber, Matthew Oliver, Mauricio Rafael Sanabria, Melissa Nataatmadja, Monika Lichodziejewska-Niemierko, Nancy Verdin, Neelam Mann, Neil Boudville, Nicole Evangelidis, Nicole Scholes-Robertson, Peter Blake, Peter Nourse, Peter Tugwell, Philip Kam-Tao Li, Richard McGee, Robert Quinn, Sally Crowe, Samaya Anumudu, Sarah Bernays, Sarala Naicker, Scott Wilson, Sharon Nessim, Sharon Teo, Simon A. Carter, Simon Davies, Soheli Ahmed Sweety, Ted Toffelmire, Vanita Jassal, Vivekanand Jha, Viviane Calice da Silva, Wim Van Biesen, Wolfgang Winkelmayer, Yasuhiko Ito, Yong-Lim Kim, Zeeshan Butt

Publikováno v: American Journal of Kidney Diseases
American Journal of Kidney Diseases, Elsevier, 2020, ⟨10.1053/j.ajkd.2019.09.017⟩
American journal of kidney diseases, Vol. 75, no. 3, p. 404-412 (2020)

International audience; Outcomes reported in randomized controlled trials in peritoneal dialysis (PD) are diverse, are measured inconsistently, and may not be important to patients, families, and clinicians. The Standardized Outcomes in Nephrology-Pe

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4d6003354cf16e922f6f6c8cb841b22e
https://doi.org/10.1053/j.ajkd.2019.09.017