The NEALS primary lateral sclerosis registry

Autor: Sabrina, Paganoni, Fabiola, De Marchi, James, Chan, Sara K, Thrower, Nathan P, Staff, Neil, Datta, Yaz Y, Kisanuki, Vivian, Drory, Christina, Fournier, Erik P, Pioro, Stephen A, Goutman, Nazem, Atassi, Maryangel, Jeon, Sarah, Caldwell, Timothy, Mcdonough, Caroline, Gentile, Jianing, Liu, Michelle, Turner, Carol, Denny, Kevin, Felice, Misty, Green, Stephanie, Scarberry, Saad, Abu-Saleh, Beatrice, Nefussy, Debbie, Hastings, Sangri, Kim, Blake, Swihart, Ximena, Arcila-Londono, Daniel S, Newman, Michael, Silverman, Angela, Genge, Kristiana, Salmon, Lauren, Elman, Leo, Mccluskey, Kelly, Almasy, Marc, Gotkine, Kimberly, Goslin, Arlena, Cummings, Eli K, Edwards, Michael, Rivner, Kristy, Bouchard, Brandy, Quarles, Justin, Kwan, Matthew, Jaffa, Robert, Baloh, Peggy, Allred, David, Walk, Samuel, Maiser, Georgios, Manousakis, Valerie, Ferment, J Americo M, Fernandes, Pariwat, Thaisetthawatkul, Deborah, Heimes, Melissa, Phillips, Laura, Sams, Melissa, Kahler, Alecia, Corcoran, Daniel G, Larriviere, Sadie, Chotto, Gracy, Juba

Publikováno v: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 21:74-81

Primary lateral sclerosis (PLS) is a neurodegenerative disease characterized by progressive upper motor neuron dysfunction. Because PLS patients represent only 1 to 4% of patients with adult motor neuron diseases, there is limited information about t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cb97f3bb52c2556e6bc12b50b853c0c5
https://doi.org/10.1080/21678421.2020.1804591

In defense of the AAN position on lawful physician-hastened death

Autor: Justin A. Sattin, Leon G. Epstein, Julie A. Kurek, Richard J. Bonnie, Matthew Rizzo, James A. Russell, William D. Graf, Matthew P. Kirschen, Robin Conwit, Robert M. Pascuzzi, Zachary Simmons, Daniel G. Larriviere, Lynne Taylor, Michael A. Williams

Publikováno v: Neurology. 94(15)

Thoughtful and reasonable people disagree about the boundaries of a physician’s responsibility to dying patients. A vexing case in point is the morality of a physician’s participation in patient requests for hastened death.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::04e99487012458b9c924070a2ef84c57
https://pubmed.ncbi.nlm.nih.gov/32753440

Editorial by concerned physicians: Unintended effect of the orphan drug act on the potential cost of 3,4-diaminopyridine

Autor: Mark B. Bromberg, Miriam Freimer, Nizar Chahin, Laurie Gutmann, Mohammad Salajegheh, Kelly G. Gwathmey, Tyler A. Webb, David P. Richman, Aziz Shaibani, Guillermo Solorzano, Elliot L. Dimberg, Janice M. Massey, Rabi Tawil, James Gilchrist, Michael Benatar, Jeffrey A. Allen, Anthony J. Windebank, Summer Gibson, William J. Litchy, Yuebing Li, Amanda C. Guidon, James A. Russell, Vern C. Juel, William S. David, Shafeeq Ladha, Tahseen Mozaffar, Shawn J. Bird, David Saperstein, Chafic Karam, Noah Kolb, Gordon Smith, Gil I. Wolfe, W. David Arnold, Nicholas E. Johnson, Eric L. Logigian, John C. Kincaid, Duygu Selcen, Annabel K. Wang, Matthew N. Meriggioli, Andrew G. Engel, Pariwat Thaisetthawatkul, Lyle Ostrow, Yuen T. So, Jau Shin Lou, Michael K. Hehir, Eric J. Sorenson, P. James B. Dyck, George Sachs, Julie Khoury, Namita Goyal, Jeffrey T. Guptill, Jinny Tavee, Robert M. Pascuzzi, Jeffrey A. Cohen, Michael D. Weiss, Ted M. Burns, Yadollah Harati, Peter D. Donofrio, Jayashri Srinivasen, Perry B. Shieh, Daniel G Larriviere, Mark A. Ferrante, Sidney M. Gospe, Kathleen D. Kennelly, John T. Kissel, Clifton L. Gooch, Carlayne E. Jackson, Dmitri Gorelov, Nicholas Silvestri, Katherine Ruzhansky, Daniel J L Macgowen, Joon Shik Moon, Jonathan Goldstein, Robert G. Miller, Devon I. Rubin, Karissa L. Gable, Richard J. Barohn, Charles A. Thornton, Emma Ciafaloni, C. Michel Harper, Sarah M. Jones, Ricardo A. Maselli, J. Rob Singleton, Michelle M Mauermann, Brian A. Crum, James F. Howard, Erik R. Ensrud, Sami Khella, Mark A. Ross, Lisa D. Hobson-Webb, Sharon P. Nations, Stephen N. Scelsa, Katherine D. Mathews, Henry J. Kaminski, Andrea M. Corse, Amanda Peltier, Anthony A. Amato, Richard A. Lewis, Steven Vernino, Richard Nowak, Eduardo A De Sousa, Ludwig Gutmann, Benn E. Smith, Brent P. Goodman, David Lacomis, Jaya Trivedi

Publikováno v: Muscle & Nerve. 53:165-168

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::85e9be0fcef30554515b732404e80edd
https://doi.org/10.1002/mus.25009

Medical Marijuana for HIV-Associated Sensory Neuropathy

Autor: Daniel G. Larriviere

Publikováno v: CONTINUUM: Lifelong Learning in Neurology. 20:1426-1429

The number of states legalizing medical marijuana is increasing. Medical marijuana is possibly effective therapy for HIV-associated sensory neuropathy. Despite legalization at the state level, however, the current and contradictory federal drug enfor

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::35f257259a3c65f0cc73215afd145445
https://doi.org/10.1212/01.con.0000455871.22814.e3

Ethical Perspectives in Neurology

Autor: Daniel G. Larriviere

Publikováno v: CONTINUUM: Lifelong Learning in Neurology. 12:185-187

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::9196127700f6340edb10381a059cc2fa
https://doi.org/10.1212/01.con.0000290468.19456.53