Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

Autor: Linda Kwakkenbos, Nora Østbø, Marie-Eve Carrier, Warren R. Nielson, Claire Fedoruk, Brooke Levis, Richard S. Henry, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Lydia Tao, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauvé, Tatiana Sofia Rodriguez Reyna, Marie Hudson, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Susan J. Bartlett, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators

Publikováno v: Pilot and Feasibility Studies, Vol 8, Iss 1, Pp 1-15 (2022)

Abstract Background The Scleroderma Patient-centered Intervention Network (SPIN) developed an online self-management program (SPIN-SELF) designed to improve disease-management self-efficacy in people with systemic sclerosis (SSc, or scleroderma). The

Externí odkaz: https://doaj.org/article/b34149341f2740519aca1039e7c0187a

The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

Autor: Evelyn Sutton, Lorinda Chung, Sophie Roux, Robert Spiera, Maria E. Suarez-Almazor, Thierry Martin, Shadi Gholizadeh, Carolyn Ells, Isabelle Marie, Louis Olagne, Monique Hinchcliff, Karen Nielsen, Geneviève Guillot, Alena Ikic, Jessica K. Gordon, Christian Agard, Maria Gagarine, Hélène Maillard, Julie Cumin, Angelica Bourgeault, David Robinson, Susanna Proudman, Amy Gietzen, Maureen D. Mayes, François Rannou, Dan Bilsker, Joanne Manning, Richard S. Henry, Ariel Masetto, Isabelle Boutron, Catherine Fortune, Elana J. Bernstein, Carter Thorne, Cornelia H. M. van den Ende, Christopher P. Denton, Sindhu R. Johnson, Regina Fare, Nassim Ait Abdallah, Alexander W. Levis, Maria Martin, Sabrina Hoa, Eric Hachulla, Anne A. Schouffoer, Susan J. Bartlett, Marie Hudson, Sébastien Rivière, Pearce G. Wilcox, Mara Cañedo Ayala, Sheila Melchor, Ariane L. Herrick, Tracy M. Frech, Andrea Benedetti, Laura Dyas, Janet E. Pope, Dominique Farge-Bancel, Andrea Carboni Jiménez, Maggie Larché, Perrine Smets, Vanessa L. Malcarne, Julia Nordlund, Marie-Nicole Discepola, Lyne Bissonnette, Maureen Sauve, Christelle Nguyen, Marion Casadevall, Brett D. Thombs, Karen Gottesman, Patricia Carreira, Marie-Eve Carrier, Sabine Berthier, Mandana Nikpour, Alexandra Albert, Luc Mouthon, Alessandra Bruns, Claire Fedoruk, John Varga, Linda Kwakkenbos, Vincent Poindron, Brooke Levis, Shervin Assassi, Amanda Wurz, Benjamin Crichi, Daphna Harel, Suzanne Kafaja, Esther Rodriguez, Nancy Maltez, Vincent Sobanski, Catarina Leite, Marc André, François Maurier, Ghassan El-Baalbaki, Lisa R. Jewett, Nora Østbø, Marc Lambert, Michelle Richard, James V. Dunne, Niall Jones, Robyn T. Domsic, Kimberly A. Turner, Chase Correia, Joep Welling, Nicole Culos-Reed, Benjamin Chaigne, Kim Fligelstone, Tatiana Sofia Rodriguez-Reyna, Paul R. Fortin, Bertrand Dunogue, Virginia D. Steen, Warren R. Nielson, Ward van Breda, Arsene Mekinian, Nader Khalidi, Brigitte Granel-Rey, David Launay, Pamela Piotrowski, Alexis Régent, Genevieve Gyger, Robert Riggs, Lydia Tao

Publikováno v: Trials, Vol 22, Iss 1, Pp 1-22 (2021)
Trials
SPIN Investigators 2021, ' The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program : protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial ', Trials, vol. 22, 856, pp. 856-856 . https://doi.org/10.1186/s13063-021-05827-z
Trials, 22
Trials, 22:856, 856-856. BioMed Central

Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-Management

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4efe637031e7ea4a14d754b4459075e4
https://doaj.org/article/1357d21853f5484f8f43ccef5c8ce654

The scleroderma patient-centered intervention network self-management program:Protocol for a randomized feasibility trial

Autor: Julie Cumin, Kimberly A. Turner, Janet E. Pope, Shadi Gholizadeh, Jessica K. Gordon, Marie-Eve Carrier, Sindhu R. Johnson, Karen Gottesman, Tracy M. Frech, Katherine Milette, Catherine Fortune, Isabelle Boutron, Susan J. Bartlett, Ward van Breda, Tatiana S. Rodriguez-Reyna, Lorinda Chung, Vanessa L. Malcarne, Warren R. Nielson, Spin Investigators, Marie Hudson, Fredrick M. Wigley, Pamela Piotrowski, Maureen Sauve, Dan Bilsker, Lisa R. Jewett, Laura K. Hummers, Joep Welling, Luc Mouthon, Linda Kwakkenbos, Maria E. Suarez-Almazor, Brett D. Thombs, Catarina Leite, Karen Nielsen, Maureen D. Mayes, Maggie Larché, Claire Fedoruk

Publikováno v: SPIN Investigators 2020, ' The scleroderma patient-centered intervention network self-management program : Protocol for a randomized feasibility trial ', Journal of Medical Internet Research, vol. 22, no. 4, e16799, pp. 1-15 . https://doi.org/10.2196/16799
JMIR Research Protocols
JMIR Research Protocols, 9, 4
JMIR Research Protocols, 9
Journal of Medical Internet Research, 22(4):e16799, 1-15. Journal of medical Internet Research
JMIR Research Protocols, Vol 9, Iss 4, p e16799 (2020)

Background Systemic sclerosis (SSc), or scleroderma, is a rare disease that often results in significant disruptions to activities of daily living and can negatively affect physical and psychological well-being. Because there is no known cure, SSc tr

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8d29feaac681fa4ce7b1f85c19282cff
https://hdl.handle.net/1871.1/4d575372-adff-4e13-87b6-7561fb21e28d

Feasibility and impact of brief interventions for frequent cannabis users in Canada

Autor: Fraser McGuire, Katherine Rudzinski, Meghan Dawe, Rielle Capler, Jürgen Rehm, Benjamin Taylor, Dan Bilsker, Paul A. Shuper, Wayne Jones, Benedikt Fischer

Publikováno v: Journal of Substance Abuse Treatment. 44:132-138

Cannabis use is prevalent among young people, and frequent users are at an elevated risk for health problems. Availability and effectiveness of conventional treatment are limited, and brief interventions (BIs) may present viable alternatives. One hun

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6c4053db75d5ac74bce05626fe4e7fc0
https://doi.org/10.1016/j.jsat.2012.03.006

Brief Intervention Experiences of Young High-Frequency Cannabis Users in a Canadian Setting

Autor: Paul A. Shuper, Meghan Dawe, Jürgen Rehm, Rielle Capler, Dan Bilsker, Benedikt Fischer, Fraser McGuire, Katherine Rudzinski

Publikováno v: Contemporary Drug Problems. 39:49-72

High-frequency cannabis use is prevalent among young adults and has been linked to negative health consequences, yet effective therapeutic interventions are currently limited. Brief Interventions (BIs) for problematic substance use have shown promise

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::ecf3847c383df53c5d1ba88a9f9e1862
https://doi.org/10.1177/009145091203900104