Zobrazeno 1 - 10
of 18
pro vyhledávání: '"Daima Bukini"'
Autor:
Daima Bukini, Julie Makani, Joseph McCune, Dennis Lee, Cathy Bansbach, Serena De Vita, Dominic Kemps, Elianna Amin, Jonathan Spector, John Tisdale
Publikováno v:
Molecular Therapy: Methods & Clinical Development, Vol 32, Iss 3, Pp 101287- (2024)
Therapeutic innovation to address sickle cell disease (SCD) is at a historical apex, characterized by a drug discovery, development, and commercialization landscape that includes potentially curative gene therapies. Given the wide geographic distribu
Externí odkaz:
https://doaj.org/article/61e617179782482faff6d68ead4aa67b
Autor:
Nchangwi Syntia Munung, Victoria Nembaware, Lawrence Osei-Tutu, Marsha Treadwell, Okocha Emmanuel Chide, Daima Bukini, Hilda Tutuba, SickleInAfrica ELSI WG, Ambroise Wonkam
Publikováno v:
BMC Medical Ethics, Vol 23, Iss 1, Pp 1-10 (2022)
Abstract The enrolment of children and adolescents in health research requires that attention to be paid to specific assent and consent requirements such as the age range for seeking assent; conditions for parental consent (and waivers); the age grou
Externí odkaz:
https://doaj.org/article/860302283f764fe59c60cf93cba63ddc
Autor:
Daima Bukini, Columba Mbekenga, Siana Nkya, Lisa Purvis, Sheryl McCurdy, Michael Parker, Julie Makani
Publikováno v:
BMC Medical Ethics, Vol 21, Iss 1, Pp 1-7 (2020)
Abstract Background Low literacy of study participants in Sub - Saharan Africa has been associated with poor comprehension during the consenting process in research participation. The concerns in comprehension are far greater when consenting to parti
Externí odkaz:
https://doaj.org/article/e5ce5d1a37ca4d5fa918d877e6945a21
Autor:
Nchangwi Syntia Munung, Victoria Nembaware, Jantina de Vries, Daima Bukini, Furahini Tluway, Marsha Treadwell, Raphael Zozimus Sangeda, Gaston Mazandu, Mario Jonas, Vivian Paintsil, Obiageli E. Nnodu, Emmanuel Balandya, Julie Makani, Ambroise Wonkam
Publikováno v:
Frontiers in Genetics, Vol 10 (2019)
Sickle cell disease (SCD) is one of the most prevalent genetic conditions in sub-Saharan Africa. It is a chronic, lifelong disease often characterized by severe pain. However, SCD has received little investment terms of health research, though there
Externí odkaz:
https://doaj.org/article/dc59e4cb1a4c408c970ae599fa87826a
Autor:
Daima Bukini, Siana Nkya, Sheryl McCurdy, Columba Mbekenga, Karim Manji, Michael Parker, Julie Makani
Publikováno v:
International Journal of Neonatal Screening, Vol 7, Iss 1, p 12 (2021)
The prevalence of sickle cell disease is high in Africa, with significant public health effects on the affected countries. Many of the countries with the highest prevalence of the disease also have poor health care systems and a high burden of infect
Externí odkaz:
https://doaj.org/article/b4246c6d7eba47d8a701b88302dc2003
Autor:
Richard Waddell, Daima Bukini, Muhsin Aboud, Susan Adams, Eligius Lyamuya, Lorri Wettemann, Elizabeth Bankert, Joyce Masalu
Publikováno v:
South African Journal of Bioethics and Law, Vol 9, Iss 2, Pp 84-84 (2016)
As international collaborative health research activities increase, building research ethics committees (REC) infrastructure and capacity in lowand middle-income countries for efficient and thorough review of research protocols becomes more critical,
Externí odkaz:
https://doaj.org/article/f8a21fe56d234f2199cf577384748bd1
Autor:
Daima Bukini, Irene Msirikale, Collins Kanza, Jesca Odengo, Deogratius Maingu, Upendo Masamu, Karim Manji, Julie Makani, Columba Mbekenga
BackgroundThe care of children with Sickle cell disease (SCD) in Africa has been the work of mothers or women within communities. Previous studies have indicated that mothers in these families are supported by other women within the family or even fr
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::8cca7965b04fe90eaed2ab266f913df6
https://doi.org/10.1101/2022.11.01.22281740
https://doi.org/10.1101/2022.11.01.22281740
Autor:
Daima Bukini, Irene Msirikale, Emanuela Marco, Michael Msangawale, Lulu Chirande, Columba Mbekenga, Karim Manji, Julie Makani
IntroductionTanzania is amongst the countries in Africa with one of the highest prevalence of individuals with Sickle Cell Trait (SCT). Identifying individuals with SCT is important as they may potentially have children with Sickle Cell Disease (SCD)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::1d6c0bcae6783aa85634396f4eb1362f
https://doi.org/10.1101/2022.10.30.22281739
https://doi.org/10.1101/2022.10.30.22281739
Autor:
Kambe Banda, David N. Adjei, Uzima Chirwa, Obiageli E Nnodu, Assaf P. Oron, Isaac Nyanor, Upendo Masamu, Gaston K. Mazandu, Patience Kuona, Victoria Nembaware, Andre Pascal Kengne, Andrew D. Campbell, Daima Bukini, Jade Hotchkiss, Julie Makani, Nchangwi Syntia Munung, Mario Jonas, Catherine Chunda-Liyoka, Vivian Painstil, Jean-Michel Serufuri, Jill Kent, Kevin K Esoh, Miriam V Flor-Park, Malula Nkanyemka, Deogratias Munube, Ambroise Wonkam, Chandré Oosterwyk, Valentina Josiane Ngo Bitoungui, Annette Uwineza, Bamidele O. Tayo, Arthemon Nguweneza, Khuthala Mnika, Jack Morrice, Nicola Mulder, Nathan Edward Siebu, Kofi A. Anie, Agnes Jonathan
Publikováno v:
OMICS : a Journal of Integrative Biology
Sickle cell disease (SCD) is one of the most common blood disorders impacting planetary health. Over 300,000 newborns are diagnosed with SCD each year globally, with an increasing trend. The sickle cell disease ontology (SCDO) is the most comprehensi
Autor:
Leonard Malasa, Daima Bukini, Siana Nkya, Columba Mbekenga, Sheryl A. McCurdy, Karim Manji, Michael W. Parker, Julie Makani
Publikováno v:
J Community Genet
Introducing newborn screening (NBS) services for sickle cell disease (SCD) in Africa has been proven to be one of the most cost-effective approach to reducing morbidity and mortality associated with this condition. In view of this evidence, efforts h