Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Outcomes and  Endpoints.

Autor: Bodien YG; Department of Neurology, Center for Neurotechnology and Neurorecovery, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA. ybodien@mgh.harvard.edu.; Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Harvard Medical School, Charlestown, MA, USA. ybodien@mgh.harvard.edu., LaRovere K; Department of Neurology, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Kondziella D; Department of Neurology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.; Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark., Taran S; Interdepartmental Division of Critical Care Medicine, University of Toronto, Toronto, ON, Canada., Estraneo A; Department of Neurorehabilitation, IRCCS, Don Carlo Gnocchi Foundation, Florence, Italy., Shutter L; Departments of Critical Care Medicine, Neurology, and Neurosurgery, UPMC Healthcare System, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA.

Publikováno v: Neurocritical care [Neurocrit Care] 2024 Oct; Vol. 41 (2), pp. 357-368. Date of Electronic Publication: 2024 Aug 14.

Common data elements for arthrogryposis multiplex congenita: An international framework.

Autor: Nematollahi S; School of Physical and Occupational Therapy, McGill University, Montreal, Canada.; Department of Clinical Research, Shriners Hospitals for Children, Montreal, Canada., Dieterich K; Université Grenoble Alpes, Inserm U1209, Institute of Advanced Biosciences, CHU Grenoble Alpes, Arthrogryposis and Neuromuscular Reference Center, Grenoble, France., Filges I; Medical Genetics, Institute of Medical Genetics and Pathology and Department of Clinical Research, University Hospital Basel and University of Basel, Basel, Switzerland., De Vries JIP; Obstetrics and Gynecology, Amsterdam Movement Sciences, Amsterdam University Medical Center, Vrije Universiteit Medical Center, Amsterdam, the Netherlands., Van Bosse H; Department of Orthopaedic Surgery, Cardinal Glennon Children's Hospital/SSM Health/St. Louis University, St. Louis, MO, USA., Natera de Benito D; Neuromuscular Unit, Hospital Sant Joan de Déu, Barcelona, Spain.; Applied Research in Neuromuscular Diseases, Institut de Recerca Sant Joan de Déu, Barcelona, Spain., Hall JG; Department of Medical Genetics and Pediatrics, University of British Columbia and BC Children's Hospital, Vancouver, British Columbia, Canada., Sawatzky B; Department of Orthopaedics, University of British Columbia, Vancouver, British Columbia, Canada., Bedard T; Alberta Congenital Anomalies Surveillance System, Clinical Genetics, Alberta Children's Hospital, Alberta Health Services, Calgary, Alberta, Canada., Sanchez VC; Asociación Artrogriposis Múltiple Congénita España, Barcelona, Spain., Navalon-Martinez C; Asociación de Pacientes de Artrogriposis Multiple Congénita, Barcelona, Spain., Pan T; Department of Biomedical Informatics, Emory University, Atlanta, GA, USA.; Institute for Data Engineering and Science, Georgia Institute of Technology, Atlanta, GA, USA., Hilton C; Shriners Children's, Headquarters, Tampa, FL, USA., Dahan-Oliel N; School of Physical and Occupational Therapy, McGill University, Montreal, Canada.; Department of Clinical Research, Shriners Hospitals for Children, Montreal, Canada.

Publikováno v: Developmental medicine and child neurology [Dev Med Child Neurol] 2024 Oct; Vol. 66 (10), pp. 1340-1347. Date of Electronic Publication: 2024 Mar 16.

多元主体协同治理的数据要素价值生态体系研究.

Autor: 林镇阳^1,2, 陈荣源³, 郭明军⁴, 赵蓉⁵, 杜 乐²

Publikováno v: Journal of Technology Economics. 2024, Vol. 43 Issue 11, p1-13. 13p.

The Impact of Data Elements on Narrowing the Urban-Rural Consumption Gap in China: Mechanisms and Policy Analysis

Autor: Ma, Mingpu

The urban-rural consumption gap, as one of the important indicators in social development, directly reflects the imbalance in urban and rural economic and social development. Data elements, as an important component of New Quality Productivity, are o

Externí odkaz: http://arxiv.org/abs/2409.02662

Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Behavioral Phenotyping.

Autor: Yakhkind A; Department of Neurology, Tufts University School of Medicine, Boston, MA, USA., Niznick N; Department of Medicine (Critical Care), The Ottawa Hospital, Ottawa, Canada., Bodien YG; Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Charlestown, MA, USA.; Department of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA., Hammond FM; Department of Physical Medicine and Rehabilitation, Indiana University School of Medicine, Indianapolis, IN, USA., Katz D; Department of Neurology, Boston University Chobanian & Avedisian School of Medicine, and Brain Injury Program, Encompass Health Braintree Rehabilitation Hospital, Braintree, MA, USA., Luaute J; Department of Neuro-Rehabilitation, Hospices Civils de Lyon, Université Claude Bernard Lyon 1, Lyon, France., McNett M; College of Nursing, The Ohio State University, Columbus, OH, USA., Naccache L; Sorbonne Université, Paris Brain Institute - Institut du Cerveau, ICM, INSERM, CNRS, AP-HP, Pitié-Salpêtrière Hospital, Paris, France., O'Brien K; TIRR Disorders of Consciousness Program, TIRR Memorial Hermann Hospital, H. Ben Taub Department of Physical Medicine and Rehabilitation, Baylor College of Medicine, Houston, TX, USA., Schnakers C; Research Institute, Casa Colina Hospital and Centers for Healthcare, Pomona, CA, USA., Sharshar T; Neurosciences, Pole Neuro, Sainte-Anne Hospital, Institute of Psychiatry and Neurosciences of Paris, INSERM U1266, Université Paris Cité, Paris, France., Slomine BS; Department of Neuropsychology, Kennedy Krieger Institute, Baltimore, MD, USA.; Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, MD, USA., Giacino JT; Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Charlestown, MA, USA. jgiacino@mgh.harvard.edu.; Department of Physical Medicine and Rehabilitation, Harvard Medical School, Boston, MA, USA. jgiacino@mgh.harvard.edu.

Publikováno v: Neurocritical care [Neurocrit Care] 2024 Jun; Vol. 40 (3), pp. 909-917. Date of Electronic Publication: 2023 Sep 19.