Zobrazeno 1 - 10 of 41 pro vyhledávání: '"D. Abeln"'
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Akademický článek
Patient’s thoughts and expectations about centres of expertise for PKU
Autor: A. M. J. van Wegberg, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. van Vliet, F. J. van Spronsen
Publikováno v: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Background In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. Methods To identi
Externí odkaz: https://doaj.org/article/80ea178ef13847edae2b73f7ab61e429
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2
Akademický článek
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Patient's thoughts and expectations about centres of expertise for PKU
Autor: F. K. Trefz, D. van Vliet, D. Abeln, E. Lange, T. S. Hagedorn, F. J. van Spronsen, A.M.J. van Wegberg, Anita MacDonald
Publikováno v: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Orphanet journal of rare diseases, 16(1):2. BMC
Orphanet Journal of Rare Diseases
Background In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. Methods To identify expect
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eb314866c66ef075b94d671c2d5f4f98
https://doi.org/10.1186/s13023-020-01647-7
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4
Additional file 3 of Patient’s thoughts and expectations about centres of expertise for PKU
Autor: Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 3: Table 2. Answers of the correspondents to the question: What do you expect from the PKU centres of expertise and not so much from the other hospitals?
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a4056b274d7d5bae58f7bc116bdd920e
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7
Additional file 2 of Patient’s thoughts and expectations about centres of expertise for PKU
Autor: Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 2: Table 1. Answers of the correspondents to the question: Who do you think can benefit from the PKU centres of expertise in your country that are affiliated with the European collaboration?
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9eaac2cad9078bfc6efc142427e1d9b1
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Additional file 4 of Patient’s thoughts and expectations about centres of expertise for PKU
Autor: Wegberg, A. M. J. Van, A. MacDonald, D. Abeln, T. S. Hagedorn, E. Lange, F. Trefz, D. Van Vliet, F. J. Van Spronsen
Additional file 4: Table 3. Answers of the correspondents to the question: How would you like to receive information about participation in scientific research?
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0a7446bb248aa3de5c311f4c7276b670
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