Zobrazeno 1 - 10
of 22
pro vyhledávání: '"Cristina Burroughs"'
Autor:
Janelle Applequist, Cristina Burroughs, Peter A Merkel, Marc Rothenberg, Bruce Trapnell, Robert Desnick, Mustafa Sahin, Jeffrey Krischer
Publikováno v:
Journal of Medical Internet Research, Vol 25, p e39262 (2023)
BackgroundRecruitment into clinical trials is a challenging process, with as many as 40% of studies failing to meet their target sample sizes. The principles of direct-to-consumer (DTC) advertising rely upon novel marketing strategies. The ability to
Externí odkaz:
https://doaj.org/article/617468133f264e778fb7a7695de3209a
Autor:
Antoine G. Sreih, Keri Cronin, Dianne G. Shaw, Kalen Young, Cristina Burroughs, Joyce Kullman, Kirthi Machireddy, Carol A. McAlear, Peter A. Merkel, for the Vasculitis Patient-Powered Research Network
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Background Patients with vasculitis, a set of rare diseases, encounter delays in obtaining an accurate diagnosis which can lead to substantial morbidity and increased mortality. This study sought to describe the diagnostic journey of patient
Externí odkaz:
https://doaj.org/article/00ccab25353a4cfc92deb61775d20863
Autor:
Irena Doubelt, Jason M Springer, Tanaz A Kermani, Antoine G Sreih, Cristina Burroughs, David Cuthbertson, Simon Carette, Nader A Khalidi, Curry L Koening, Carol Langford, Carol A McAlear, Larry W Moreland, Paul A Monach, Dianne G Shaw, Philip Seo, Ulrich Specks, Kenneth J Warrington, Kalen Young, Peter A Merkel, Christian Pagnoux
Publikováno v:
Interactive Journal of Medical Research, Vol 11, Iss 1, p e27273 (2022)
BackgroundPatient-based registries can help advance research on rare diseases such as eosinophilic granulomatosis with polyangiitis (EGPA), a complex multiorgan form of antineutrophil cytoplasmic antibody (ANCA)–associated vasculitis. ObjectiveThe
Externí odkaz:
https://doaj.org/article/56119628cf6c4a39a62f8ed95e17f3cc
Autor:
Shubhasree Banerjee, Michael George, Kalen Young, Shilpa Venkatachalam, Jennifer Gordon, Cristina Burroughs, David Curtis, Marcela Ferrada, Kelly Gavigan, Peter C. Grayson, Joyce Kullman, Maria I. Danila, Jeffrey R. Curtis, Dianne G. Shaw, W. Benjamin Nowell, Peter A. Merkel, the Vasculitis Patient‐Powered Research Network
Publikováno v:
ACR Open Rheumatology, Vol 3, Iss 1, Pp 17-24 (2021)
Objective This study aimed to analyze the concerns and health‐related behaviors in patients with vasculitis during the early phase of the coronavirus disease 2019 (COVID‐19) pandemic in North America. Methods Patients with vasculitis in North Ame
Externí odkaz:
https://doaj.org/article/673b4b1082ab4575bbf150622c7addf3
Autor:
Janelle Applequist, Cristina Burroughs, Artemio Ramirez, Peter A. Merkel, Marc E. Rothenberg, Bruce Trapnell, Robert J. Desnick, Mustafa Sahin, Jeffrey P. Krischer
Publikováno v:
BMC Medical Research Methodology, Vol 20, Iss 1, Pp 1-14 (2020)
Abstract Background Participant recruitment for clinical research studies remains a significant challenge for researchers. Novel approaches to recruitment are necessary to ensure that populations are easier to reach. In the context of rare diseases,
Externí odkaz:
https://doaj.org/article/cf7eb05029ce4ff5ba2931c574a762fa
Autor:
Kalen Young, Dana Kaminstein, Ana Olivos, Cristina Burroughs, Celeste Castillo-Lee, Joyce Kullman, Carol McAlear, Dianne G. Shaw, Antoine Sreih, George Casey, Vasculitis Patient-Powered Research Network, Peter A. Merkel
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-7 (2019)
Abstract Background There is increasing interest in actively involving patients in the process of medical research to help ensure research is relevant and important to both researchers and people affected by the disease under study. This project exam
Externí odkaz:
https://doaj.org/article/31241b7f65b54dc888c130c5073aff00
Autor:
Janelle Applequist, Cristina Burroughs, Peter A Merkel, Marc Rothenberg, Bruce Trapnell, Robert Desnick, Mustafa Sahin, Jeffrey Krischer
BACKGROUND Recruitment into clinical trials is a challenging process, with as many as 40% of studies failing to meet their target sample sizes. The principles of direct-to-consumer (DTC) advertising rely upon novel marketing strategies. The ability t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::161ff8214da6bbf9b350f9fbc11ce9eb
https://doi.org/10.2196/preprints.39262
https://doi.org/10.2196/preprints.39262
Autor:
Kalen Young, Joyce Kullman, Marcela A. Ferrada, David Curtis, Shilpa Venkatachalam, Cristina Burroughs, K. Gavigan, Jennifer Gordon, Michael D. George, Maria I. Danila, Shubhasree Banerjee, W. Benjamin Nowell, Peter A. Merkel, Jeffrey R. Curtis, Dianne G Shaw, Peter C. Grayson
Publikováno v:
ACR Open Rheumatology
Objective This study aimed to analyze the concerns and health-related behaviors in patients with vasculitis during the early phase of the coronavirus disease 2019 (COVID-19) pandemic in North America. Methods Patients with vasculitis in North America
Autor:
Irena Doubelt, Jason M Springer, Tanaz A Kermani, Antoine G Sreih, Cristina Burroughs, David Cuthbertson, Simon Carette, Nader A Khalidi, Curry L Koening, Carol Langford, Carol A McAlear, Larry W Moreland, Paul A Monach, Dianne G Shaw, Philip Seo, Ulrich Specks, Kenneth J Warrington, Kalen Young, Peter A Merkel, Christian Pagnoux
BACKGROUND Patient-based registries can help advance research on rare diseases such as eosinophilic granulomatosis with polyangiitis (EGPA), a complex multiorgan form of antineutrophil cytoplasmic antibody (ANCA)–associated vasculitis. OBJECTIVE Th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::d0ef15be9b69fdd001c8573f5cfd1bd1
https://doi.org/10.2196/preprints.27273
https://doi.org/10.2196/preprints.27273
Autor:
Antoine Sr, Keri Cronin, Dianne Shaw, Kalen Young, Cristina Burroughs, Joyce Kullman, Kirthi Machireddy, Carol McAlear, Peter Merkel
Background: Patients with vasculitis, a set of rare diseases, encounter delays in obtaining an accurate diagnosis which can lead to substantial morbidity and increased mortality. This study sought to describe the diagnostic journey of patients with v
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::cb1c8524184b012333780e3355e6edaf
https://doi.org/10.21203/rs.3.rs-88022/v1
https://doi.org/10.21203/rs.3.rs-88022/v1