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Understanding who is and isn’t involved and engaged in health research: capturing and analysing demographic data to diversify patient and public involvement and engagement

Autor: Keane, Annie, Islam, Safina, Parsons, Suzanne, Verma, Arpana, Farragher, Tracey, Forde, Davine, Holmes, Leah, Cresswell, Katharine, Williams, Susannah, Arru, Paolo, Howlett, Emily, Turner-Uaandja, Hannah, MacGregor, Issy, Grey, Tracy, Arain, Zahra, Scahill, Maura, Starling, Bella

Publikováno v: Keane, A, Islam, S, Parsons, S, Verma, A, Farragher, T, Forde, D, Holmes, L, Cresswell, K, Williams, S, Arru, P, Howlett, E, Turner-Uaandja, H, MacGregor, I, Grey, T, Arain, Z, Scahill, M & Starling, B 2023, ' Understanding who is and isn't involved and engaged in health research : capturing and analysing demographic data to diversify patient and public involvement and engagement ', Research Involvement and Engagement, vol. 9, no. 1, 30 . https://doi.org/10.1186/s40900-023-00434-5

Background Patient and public involvement and engagement (PPIE) can improve the relevance, quality, ethics and impact of research thus contributing to high quality research. Currently in the UK, people who get involved in research tend to be aged 61

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d8d4f49378b866c73903610b62375ae3
https://doi.org/10.1186/s40900-023-00434-5

Innovating public engagement and patient involvement through strategic collaboration and practice

Autor: Holmes, Leah, Cresswell, Katharine, Williams, Susannah, Parsons, Suzanne, Keane, Annie, Wilson, Cassie, Islam, Safina, Joseph, Olivia, Miah, Jahanara, Robinson, Emily, Starling, Bella

Publikováno v: Research Involvement and Engagement
Research Involvement and Engagement, Vol 5, Iss 1, Pp 1-12 (2019)
Holmes, L, Cresswell, K, Williams, S, Parsons, S, Keane, A, Wilson, C, Islam, S, Joseph, O, Miah, J, Robinson, E & Starling, I 2019, ' Innovating public engagement and patient involvement through strategic collaboration and practice ', Research Involvement and Engagement . https://doi.org/10.1186/s40900-019-0160-4

Background Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid_dedup__::dac8e73111587d330f71a2135a5d9d12
http://europepmc.org/articles/PMC6802177

What do young people with rheumatic disease believe to be important to research about their condition?

Autor: Parsons, Suzanne, Thomson, Wendy, Cresswell, Katharine, Starling, Bella, Mcdonagh, Janet

Publikováno v: Parsons, S, Thomson, W, Cresswell, K, Starling, B & Mcdonagh, J 2017, ' What do young people with rheumatic disease believe to be important to research about their condition? ', Pediatric Rheumatology, vol. 15, 53 . https://doi.org/10.1186/s12969-017-0181-1

BackgroundThe involvement of people of all ages including young people in research is now widely advocated but prioritisation of research topics is still driven largely by professional agendas. Evidence from adult literature has reported a mismatch b

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=od______3818::7cdd82fd313b7669eaf94c8bd4874954
https://doi.org/10.1186/s12969-017-0181-1

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