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Establishing a core outcome set for autosomal dominant polycystic kidney disease : report of the Standardized Outcomes in Nephrology–Polycystic Kidney Disease (SONG-PKD) consensus workshop

Autor: Cho, Y., Tong, A., Craig, J.C., Mustafa, R.A., Chapman, A., Perrone, R.D., Ahn, C., Fowler, K., Torres, V., Gansevoort, R.T., Ong, A.C.M., Coolican, H., Tze-Wah Kao, J., Harris, T., Gutman, T., Shen, J.I., Viecelli, A.K., Johnson, D.W., Au, E., El-Damanawi, R., Logeman, C., Ju, A., Manera, K.E., Chonchol, M., Odland, D., Baron, D., Pei, Y., Sautenet, B., Rastogi, A., Sharma, A., Rangan, G.

The omission of outcomes that are of relevance to patients, clinicians and regulators across trials in autosomal dominant polycystic kidney disease (ADPKD) limits shared decision-making. The Standardized Outcomes in Nephrology – Polycystic Kidney D

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=core_ac_uk__::7b0cd65597b0bb7ced84a9c6bdcef9b3
https://eprints.whiterose.ac.uk/164533/1/SONGPKD_Workshop_AJKD_2020ccepted.pdf

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Prescribed Water Intake in Autosomal Dominant Polycystic Kidney Disease.

Autor: Rangan GK; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia.; Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Westmead, New South Wales, Australia., Wong ATY; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia., Munt A; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia., Zhang JQJ; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia., Saravanabavan S; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia., Louw S; McCloud Consulting Group, Belrose, New South Wales, Australia., Allman-Farinelli M; Faculty of Medicine and Health, Charles Perkins Centre, The University of Sydney, Sydney., Badve SV; Department of Renal Medicine, St. George Hospital, Kogarah, New South Wales, Australia.; The George Institute for Global Health, University of New South Wales, Sydney., Boudville N; Department of Renal Medicine, Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia.; Medical School, University of Western Australia, Perth, Western Australia, Australia., Chan J; McCloud Consulting Group, Belrose, New South Wales, Australia., Coolican H; PKD Australia, Roseville, New South Wales, Australia., Coulshed S; North Shore Nephrology, Crows Nest, New South Wales, Australia., Edwards ME; Translational Polycystic Kidney Disease Center, Mayo Clinic, Rochester, MN., Erickson BJ; Translational Polycystic Kidney Disease Center, Mayo Clinic, Rochester, MN., Fernando M; Department of Renal Medicine, Prince of Wales Hospital, Eastern Sydney Health District Randwick, New South Wales, Australia., Foster S; Department of Radiology, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia.; School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney., Gregory AV; Translational Polycystic Kidney Disease Center, Mayo Clinic, Rochester, MN., Haloob I; Department of Renal Medicine, Bathurst Hospital, Bathurst, New South Wales, Australia., Hawley CM; Australasian Kidney Trials Network, University of Queensland at Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.; Faculty of Medicine, Princess Alexandra Hospital Southside Clinical Unit, Brisbane, Queensland, Australia., Holt J; Department of Renal Medicine, Wollongong Hospital, Illawarra Shoalhaven Local Health District, Wollongong, New South Wales, Australia., Howard K; School of Public Health, The University of Sydney, Sydney., Howell M; School of Public Health, The University of Sydney, Sydney., Johnson DW; Australasian Kidney Trials Network, University of Queensland at Princess Alexandra Hospital, Woolloongabba, Queensland, Australia.; Faculty of Medicine, Princess Alexandra Hospital Southside Clinical Unit, Brisbane, Queensland, Australia., Kline TL; Translational Polycystic Kidney Disease Center, Mayo Clinic, Rochester, MN., Kumar K; Gosford Nephrology, Gosford, New South Wales, Australia., Lee VW; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia.; Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Westmead, New South Wales, Australia.; School of Public Health, The University of Sydney, Sydney.; Department of Renal Medicine, Norwest Private Hospital, Bella Vista, New South Wales, Australia., Lonergan M; Department of Renal Medicine, Wollongong Hospital, Illawarra Shoalhaven Local Health District, Wollongong, New South Wales, Australia., Mai J; Department of Renal Medicine, Liverpool Hospital, Southwestern Sydney Local Health District, Liverpool, New South Wales, Australia., McCloud P; McCloud Consulting Group, Belrose, New South Wales, Australia., Pascoe E; Australasian Kidney Trials Network, University of Queensland at Princess Alexandra Hospital, Woolloongabba, Queensland, Australia., Peduto A; Department of Radiology, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia., Rangan A; Faculty of Medicine and Health, Charles Perkins Centre, The University of Sydney, Sydney., Roger SD; Renal Research, Gosford, New South Wales, Australia., Sherfan J; Chemical Pathology Department, Royal Prince Alfred Hospital, NSW Health Pathology, Sydney., Sud K; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia.; Department of Renal Medicine, Nepean Hospital, Nepean Blue Mountains Local Health District, Sydney.; Nepean Clinical School, The University of Sydney Medical School, Kingswood, New South Wales, Australia., Torres VE; Translational Polycystic Kidney Disease Center, Mayo Clinic, Rochester, MN., Vilayur E; Department of Nephrology, John Hunter Hospital, Newcastle, New South Wales, Australia., Harris DCH; Michael Stern Laboratory for Polycystic Kidney Disease, Westmead Institute for Medical Research, The University of Sydney, Westmead, New South Wales, Australia.; Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Westmead, New South Wales, Australia.; Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Westmead, New South Wales, Australia.

Publikováno v: NEJM evidence [NEJM Evid] 2022 Jan; Vol. 1 (1), pp. EVIDoa2100021. Date of Electronic Publication: 2021 Nov 04.

Is there a relationship between psychiatrist's clinical assessment of medication non-adherence and treatment outcomes? Implications for practice.

Autor: Danzer, Graham¹ (AUTHOR) graham.danzer@gmail.com, Sugarbaker, David² (AUTHOR) dr.davidsugarbaker@gmail.com, Zanello, Adriano³ (AUTHOR) adriano.zanello@gmail.com, Barkin, Sam⁴ (AUTHOR) sbarkin@gmail.com, Cort, Doug⁴ (AUTHOR) drdoug.cort@gmail.com

Publikováno v: BMC Psychiatry. 12/18/2024, Vol. 24 Issue 1, p1-9. 9p.