Understanding dentatorubral-pallidoluysian atrophy (DRPLA) symptoms and impacts on daily life: a qualitative interview study with patients and caregivers.

Autor: Contesse MG; Emmes Endpoint Solutions, Emmes, 401 North Washington Street, Rockville, MD 20850-1707, USA., Woods RJ; Emmes Endpoint Solutions, Emmes, Rockville, MD, USA., Leffler M; Emmes Endpoint Solutions, Emmes, Rockville, MD, USA., Prades S; Ataxia UK, London, UK., Greenfield J; Ataxia UK, London, UK., Compton A; CureDRPLA, Brooklyn, NY, USA., Carroll JB; Department of Psychology, Western Washington University, Bellingham, WA, USA.

Publikováno v: Therapeutic advances in rare disease [Ther Adv Rare Dis] 2024 May 20; Vol. 5, pp. 26330040241252447. Date of Electronic Publication: 2024 May 20 (Print Publication: 2024).

Development of Duchenne Video Assessment scorecards to evaluate ease of movement among those with Duchenne muscular dystrophy.

Autor: Contesse MG; Casimir, Kingston, Massachusetts, United States of America., Lowes LP; Nationwide Children's Hospital, Columbus, Ohio, United States of America., White MK; Quality Metric, Johnston, Rhode Island, United States of America., Dalle Pazze L; Charley's Fund, New York, New York, United States of America., McSherry C; Casimir, Kingston, Massachusetts, United States of America., Alfano LN; Nationwide Children's Hospital, Columbus, Ohio, United States of America., Iammarino M; Nationwide Children's Hospital, Columbus, Ohio, United States of America., Reash N; Casimir, Kingston, Massachusetts, United States of America., Bonarrigo K; Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States of America., Kiefer M; MGH Institute of Health Professions, Boston, Massachusetts, United States of America., Laubscher K; University of Iowa Hospitals & Clinics, Iowa City, Iowa, United States of America., McIntyre M; University of Utah, Salt Lake City, Utah, United States of America., Mockler S; University of Iowa Hospitals & Clinics, Iowa City, Iowa, United States of America., Nelson L; University of Texas Southwestern Medical Center, Dallas, Texas, United States of America., Vogel L; Seattle Children's Hospital, Seattle, Washington, United States of America., Leffler MG; Casimir, Kingston, Massachusetts, United States of America.

Publikováno v: PloS one [PLoS One] 2022 Apr 13; Vol. 17 (4), pp. e0266845. Date of Electronic Publication: 2022 Apr 13 (Print Publication: 2022).

Factors Associated With Poor Linkage to Human Immunodeficiency Virus Care Among Index Clients and Sex Partners Receiving Human Immunodeficiency Virus Assisted Partner Services in Kenya.

Autor: Wamuti B; From the Research and Programs, Kenyatta National Hospital, Nairobi, Kenya., Contesse MG; Department of Epidemiology, University of Washington, Seattle, WA., Maingi P; Voluntary Counseling and Testing (VCT) and HIV Prevention Unit, Kenyatta National Hospital., Macharia P; Kenya Ministry of Health, Nairobi, Kenya., Abuna F; From the Research and Programs, Kenyatta National Hospital, Nairobi, Kenya., Sambai B; From the Research and Programs, Kenyatta National Hospital, Nairobi, Kenya., Ng'ang'a A; Kenya Ministry of Health, Nairobi, Kenya., Spiegel H; Kelly Government Solutions, Contractor to Division of AIDS, PMPRB/Prevention Sciences Program, Division of AIDS, NIAID, NIH, Rockville, MD., Richardson B, Cherutich P, Bukusi D; Voluntary Counseling and Testing (VCT) and HIV Prevention Unit, Kenyatta National Hospital., Farquhar C

Publikováno v: Sexually transmitted diseases [Sex Transm Dis] 2020 Sep; Vol. 47 (9), pp. 610-616.

Index participant characteristics and HIV assisted partner services efficacy in Kenya: results of a cluster randomized trial.

Autor: Masyuko SJ; National AIDS and STI Control Program, Ministry of Health, Nairobi, Kenya.; Department of Global Health, University of Washington, Seattle, WA, USA., Cherutich PK; Department of Preventive and Promotive Health Services, Ministry of Health, Nairobi, Kenya., Contesse MG; Department of Epidemiology, University of Washington, Seattle, WA, USA., Maingi PM; VCT and HIV Prevention Unit, Kenyatta National Hospital, Nairobi, Kenya., Wamuti BM; Department of Research and Programs, Kenyatta National Hospital, Nairobi, Kenya., Macharia PM; National AIDS and STI Control Program, Ministry of Health, Nairobi, Kenya., Bukusi DE; VCT and HIV Prevention Unit, Kenyatta National Hospital, Nairobi, Kenya., Otieno FA; Department of Research and Programs, Kenyatta National Hospital, Nairobi, Kenya., Spiegel HM; Department of Health and Human Services, Kelly Government Solutions, Contractor to National Institute of Allergy and Infectious Diseases, National Institutes of Health, Rockville, MD, USA., Dunbar MD; Department of Computer Science and Demography, University of Washington, Seattle, WA, USA., Golden MR; Department of Medicine, University of Washington, Seattle, WA, USA., Richardson BA; Department of Global Health, University of Washington, Seattle, WA, USA.; Department of Biostatistics, University of Washington, Seattle, WA, USA., Farquhar C; Department of Global Health, University of Washington, Seattle, WA, USA.; Department of Epidemiology, University of Washington, Seattle, WA, USA.; Department of Medicine, University of Washington, Seattle, WA, USA.

Publikováno v: Journal of the International AIDS Society [J Int AIDS Soc] 2019 Jul; Vol. 22 Suppl 3, pp. e25305.

The Case for the Use of Patient and Caregiver Perception of Change Assessments in Rare Disease Clinical Trials: A Methodologic Overview.

Autor: Contesse MG; Casimir, Plymouth, MA, USA. mariellec@casimirtrials.com., Valentine JE; Hyman, Phelps & McNamara, P.C., Washington, DC, USA., Wall TE; Stealth BioTherapeutics Inc., Newton, MA, USA., Leffler MG; Casimir, Plymouth, MA, USA.

Publikováno v: Advances in therapy [Adv Ther] 2019 May; Vol. 36 (5), pp. 997-1010. Date of Electronic Publication: 2019 Mar 16.