Zobrazeno 1 - 10
of 222
pro vyhledávání: '"Concept elicitation"'
Autor:
Moritz Ilan Truninger, Helene Werner, Markus Andreas Landolt, Andreas Hahn, Julia B. Hennermann, Florian B. Lagler, Dorothea Möslinger, Charlotte Pfrimmer, Marianne Rohrbach, Martina Huemer
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-16 (2024)
Abstract Background Children and adolescents with Pompe disease (PD) face chronic and progressive myopathy requiring time-intensive enzyme replacement therapy (ERT). Little is known about their perspectives on the disease and its treatment. This stud
Externí odkaz:
https://doaj.org/article/898f0b1648bc46198afbdf0e03a3ca98
Autor:
Courtney N. Hurt, Karen Kaiser, Sara Shaunfield, Kimberly A. Webster, Karen Keating, Lara Boyken, Sara Duffey, Jessica Garcia, David Cella
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-10 (2024)
Abstract Background The NFLymSI-18 is a patient-reported outcome measure comprised of the highest priority symptoms, emotional concerns, treatment side effects, and other concerns identified by lymphoma patients and oncologists. This study assessed t
Externí odkaz:
https://doaj.org/article/c803ec6dde33464097c6bf126623d0b2
Autor:
Jing Chen, Sumitra Shantakumar, Jennifer Si, Regina Gowindah, Raunak Parikh, Felix Chan, Macy Chan, Won Suk Choi, Erick Huang, Kuo-Chin Huang, Li-Min Huang, Hyungwoo Kim, Choon Kit Leong, Hoe-Nam Leong, Yubin Seo, Charles Williams, Andrew TY Wong
Publikováno v:
Human Vaccines & Immunotherapeutics, Vol 20, Iss 1 (2024)
ABSTRACTHerpes zoster (HZ) is a prevalent disease characterized by a painful rash. A multi‑country study was conducted to elicit public and physician knowledge, attitude, and practice (KAP) toward HZ disease and vaccination for the assessment of lo
Externí odkaz:
https://doaj.org/article/5a80b0e5ec9b469b90b85791a0230a79
Autor:
Paul M. Karpecki, Amy Findley, Brigitte J. Sloesen, Nicola Hodson, Sarah Bentley, Rob Arbuckle, Paul O’Brien, Michela Montecchi-Palmer, Christel Naujoks, Pedram Hamrah
Publikováno v:
Ophthalmology and Therapy, Vol 13, Iss 2, Pp 615-633 (2024)
Abstract Introduction Chronic ocular surface pain (COSP) is described as a persistent, moderate-to-severe pain at the ocular surface lasting more than 3 months. Symptoms of COSP have a significant impact on patients’ vision-dependent activities of
Externí odkaz:
https://doaj.org/article/ca8e41c209734f1bb715c54b383031e2
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-12 (2023)
Abstract Introduction Treatments for type 2 diabetes vary widely in their complexity. The simplicity or complexity of a treatment regimen may have an impact on patient preference, treatment adherence, and health outcomes. The purpose of this qualitat
Externí odkaz:
https://doaj.org/article/28292e225e8f4c5c92cd3f8e9c54e2cf
Autor:
Amy M. Jones, Todd L. Saretsky, Charlotte Panter, Jane R. Wells, Frances White, Verity Smith, Helen Kendal, Kevin Russell, Madelyn Ruggieri, Shawna R. Calhoun, Adam Gater, Justin O’Hagan, Kathryn B. Anderson, Valerie A. Paz-Soldan, Amy C. Morrison, Lisa Ware, Michelle Klick, Stephen Thomas, Morgan A. Marks
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-18 (2023)
Abstract Background Dengue is the most prevalent arboviral infection causing an estimated 50–60 million cases of febrile illness globally per year, exacting considerable disease burden. Few instruments exist to assess the patient illness experience
Externí odkaz:
https://doaj.org/article/184c2e4578e846c188f7230c30975c5c
Autor:
Timothy J. Amrhein, Molly McFatrich, Kate Ehle, Michael D. Malinzak, Linda Gray, Peter G. Kranz, E. Hope Weant, Christina K. Zigler
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-9 (2023)
Abstract Background & objectives Spontaneous intracranial hypotension (SIH) is an underdiagnosed and debilitating condition caused by a spinal cerebrospinal fluid (CSF) leak. Although SIH can lead to substantial morbidity and disability, little data
Externí odkaz:
https://doaj.org/article/becc404d0f2240629c5bd1cd3220f467
Publikováno v:
Health and Quality of Life Outcomes, Vol 21, Iss 1, Pp 1-12 (2023)
Abstract Background Psoriasis is a common autoimmune dermatologic condition which has a pronounced negative impact on patient quality of life and disease burden. Currently, there are a number of treatments available for psoriasis, with differences in
Externí odkaz:
https://doaj.org/article/f38f3fa2962a4835aceec5324995b35a
Autor:
Aoife Mahon-Smith, Molly Clifford, Anjali Batish, Rosie Sharp, Charlotte Panter, Christel Naujoks, Eva Schruf, Nicolò Compagno, Santiago G. Moreno
Publikováno v:
Dermatology and Therapy, Vol 13, Iss 9, Pp 2001-2017 (2023)
Abstract Introduction Lichen planus (LP) is an inflammatory skin disorder that can present in various forms across the body, including lesions on the skin (cutaneous LP [CLP]), scalp (lichen planopilaris [LPP]), and mucosal regions (mucosal LP [MLP])
Externí odkaz:
https://doaj.org/article/6ea39d2e3096411c8c1de26b7659f6c7
Autor:
Brigitte Sloesen, Alyson Young, Katie Forde, Nicola Hodson, Sarah Bentley, Oonagh Walsh, Christel Naujoks, Paul O’Brien, Garima Sharma
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-15 (2023)
Abstract Background Dry eye disease (DED), Meibomian gland dysfunction (MGD), and Sjögren’s syndrome dry eye disease (SS-DED) are eye dryness conditions that show significant overlap in various symptoms of ocular discomfort. The aim of this study
Externí odkaz:
https://doaj.org/article/f97f5af1db4440caa258ca633b5114be