Zobrazeno 1 - 9 of 9 pro vyhledávání: '"Colin M. E. Halverson"'
1
Akademický článek
Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region
Autor: Wendy Wagner, Tom A. Doyle, Clair A. Francomano, Dacre R. T. Knight, Colin M. E. Halverson
Publikováno v: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-9 (2024)
Abstract Background The Ehlers-Danlos Syndromes (EDS) are a group of connective tissue disorders that are hereditary in nature and characterized by joint hypermobility and tissue fragility. The complex nature of this unique patient population require
Externí odkaz: https://doaj.org/article/4277de450cc64d21a164d93af46a235a
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2
Akademický článek
Social media use by patients with hypermobile Ehlers–Danlos syndrome
Autor: Colin M. E. Halverson, Tom A. Doyle, Samantha Vershaw
Publikováno v: Molecular Genetics & Genomic Medicine, Vol 12, Iss 6, Pp n/a-n/a (2024)
Abstract Background Patients with uncommon genetic conditions often face limited in‐person resources for social and informational support. Hypermobile Ehlers–Danlos syndrome (hEDS) is a rare or underdiagnosed hereditary disorder of the connective
Externí odkaz: https://doaj.org/article/0af1686f0ede42d8a17e8ce2bacd7509
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3
Akademický článek
Use of complementary and alternative medicine by patients with hypermobile Ehlers–Danlos Syndrome: A qualitative study
Autor: Tom A. Doyle, Colin M. E. Halverson
Publikováno v: Frontiers in Medicine, Vol 9 (2022)
BackgroundPatients with hypermobile Ehlers–Danlos Syndrome (hEDS) often make use of complementary and alternative medical (CAM) techniques to manage their chronic pain and other symptoms. Nevertheless, how they use CAM, which techniques they favor,
Externí odkaz: https://doaj.org/article/b8168719803e4c809fabac5ba7356287
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4
Akademický článek
Patient perspectives on variant reclassification after cancer susceptibility testing
Autor: Colin M. E. Halverson, Laurie M. Connors, Bronson C. Wessinger, Ellen W. Clayton, Georgia L. Wiesner
Publikováno v: Molecular Genetics & Genomic Medicine, Vol 8, Iss 7, Pp n/a-n/a (2020)
Abstract Background Little is known about the impact of reclassification on patients’ perception of medical uncertainty or trust in genetics‐based clinical care. Methods Semistructured telephone interviews were conducted with 20 patients who had
Externí odkaz: https://doaj.org/article/f14e889c24484deda57d6d2df82370eb
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9
Genetic Essentialism and Social Warranting
Autor: Colin M. E. Halverson
Publikováno v: Perspectives in biology and medicine. 65(3)
Genetic essentialism is the notion that genes can reveal to us the core of what it means to be humans and individuals, that our genes are the ultimate source of who we are and who we have been and will be. A recent collection of articles in a special
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2d0a674e22c38a0c4cdc27ad2f40d8c0
https://pubmed.ncbi.nlm.nih.gov/36093773
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