Zobrazeno 1 - 10
of 1 960
pro vyhledávání: '"Clinical, Care"'
Autor:
Negin Ahmadvand Department of Nursing, School of Nursing and Midwifery, Kurdistan University of Medical Sciences, Sanandaj, Iran, Salam Vatandost Clinical Care Research Center, Research Institute for Health Development, Kurdistan University of Medical Sciences, Sanandaj, Iran, Yousef Moradi, Mokhtar Mahmoudi
Publikováno v:
Chronic Diseases Journal, Vol 12, Iss 4, Pp 213-224 (2024)
BACKGROUND: The mission of the emergency department involves addressing the needs of patients and their families. Therefore, this study aimed to determine the needs of patients' families and their relationship with the empathy of nurses working in in
Externí odkaz:
https://doaj.org/article/f367a6d71f4d4dff9c052a4b09043d77
Autor:
China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, Medical Genome Committee
Publikováno v:
罕见病研究, Vol 3, Iss 3, Pp 275-279 (2024)
With the development of medical genomics, whole genome sequencing (WGS) has been playing an increasingly important role in the diagnosis and treatment of rare diseases. To effectively promote the application of WGS in clinical diagnosis and treatment
Externí odkaz:
https://doaj.org/article/cad63ca6ad8b4f6fa6073e7ed53c5cc1
Autor:
Chinese Society of Rare Diseases, Rare Diseases Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, Bartter Syndrome Consensus Working Group
Publikováno v:
罕见病研究, Vol 3, Iss 1, Pp 87-101 (2024)
Bartter syndrome (BS) is a rare inherited salt-losing renal tubular disorder characterized by secondary hyperaldosteronism with hypokalemia and hypochloremic metabolic alkalosis, and normal or low blood pressure. In severe cases, preterm delivery, hy
Externí odkaz:
https://doaj.org/article/5d429952469445eea5e4e008cfed1c3d
Autor:
Rare Disease Society of Chinese Research Hospital Association, China Alliance for Rare Diseases, Beijing Society of Rare Disease Clinical Care and Accessibility, China Expert Group for Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy
Publikováno v:
罕见病研究, Vol 2, Iss 3, Pp 377-397 (2023)
In recent years, spinal muscular atrophy (SMA) has made progress in multidisciplinary treatment and disease-modifying therapeutic drugs, so that the progress has significantly improved the survival and quality of life of the patients. However, no cli
Externí odkaz:
https://doaj.org/article/09ccf4ba805f44f4ae7881637bfb927b
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Akademický článek
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Autor:
Rare Diseases Society of Chinese Research Hospital Association, China Alliance for Rare Disease, Beijing Society of Rare Disease Clinical Care and Accessibility, Gitelman Syndrome Consensus Working Group
Publikováno v:
罕见病研究, Vol 1, Iss 1, Pp 56-67 (2022)
In recent years, research on the clinical phenotypes, new classifications, modified functional tests, biomarkers and management experience for patients with Gitelman syndrome (GS)has made a lot of progress in China. Based on evidence-based medicine,
Externí odkaz:
https://doaj.org/article/2728ef6a45774a8b93e6682431f7b3be
Akademický článek
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Autor:
Roberto Ortiz-Aguayo, Sigita Plioplys, Ruth Russell, Julia Kearney, Willough Jenkins, Sonali Bora, Khyati Brahmbhatt, Maryland Pao, Pathways For Clinical Care Workgroup, Lisa B. Namerow, Gabrielle Silver, Nasuh Malas, Claire De Souza, Lisa L. Giles, Sophia Hrycko
Publikováno v:
Hospital Pediatrics. 9:909-916
Pediatric delirium is an important comorbidity of medical illness in inpatient pediatric care that has lacked a consistent approach for detection and management. A clinical pathway (CP) was developed to address this need. Pediatric delirium contribut
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c5a87fd69eda61f810f17ba3ebf514da
https://doi.org/10.1542/hpeds.2019-0115
https://doi.org/10.1542/hpeds.2019-0115