Survey of adolescents’ needs and parents’ views on sexual health in juvenile idiopathic arthritis

Autor: Carine Savel, Aurélie Chausset, Pauline Berland, Candy Guiguet-Auclair, Laura Cabane, Bruno Fautrel, Philippe Gaudin, Pascale Guillot, Gilles Hayem, Delphine Lafarge, Etienne Merlin, Nadine Pezière, Christelle Sordet, Sonia Trope, Anne Tournadre, Sandrine Malochet, Jean-David Cohen

Publikováno v: Pediatric Rheumatology Online Journal, Vol 21, Iss 1, Pp 1-11 (2023)

Abstract Background Although the advent of new therapeutics for juvenile idiopathic arthritis (JIA) patients has considerably lessened the impact of the disease and reduced its sequelae, the outcomes of JIA remain important in their lives. Disease re

Externí odkaz: https://doaj.org/article/05aef4722e5e4a7e967fa3a29dc950c9

Individual and environmental determinants associated with longer times to access pediatric rheumatology centers for patients with juvenile idiopathic arthritis, a JIR cohort study

Autor: Aurélie Chausset, Céline Lambert, Alexandre Belot, Etienne Merlin, Elvira Cannizzaro, Isabelle Kone-Paut, Claire Ballot, Valérie Devauchelle, Sylvaine Poignant, Raffaella Carlomagno, Anne Lohse, Catherine Barbier, Véronique Despert, Aurélia Carbasse, Laetitia Sparsa, Eva Adank, Federica Vanoni, Héloise Reumaux, Pascal Pillet, Daniela Kaiser, Michael Hofer, Caroline Freychet, Anne-Marie Schott

Publikováno v: Pediatric Rheumatology Online Journal, Vol 21, Iss 1, Pp 1-10 (2023)

Abstract Background Despite guidelines, poor access to appropriate care for juvenile idiopathic arthritis (JIA) patients remains a global issue. Prompt referral to a pediatric rheumatology (PR) center and effective care is known to be critical for ch

Externí odkaz: https://doaj.org/article/9d9027683f0b4b31942845f22638fc59

Is an association of acro-osteolysis, bone fragility, and enchondromatosis a newfound disease caused by an amplification of PTHLH? A case report

Autor: Stéphane Echaubard, Céline Pebrel-Richard, Aurélie Chausset, Jean-Louis Kemeny, Etienne Merlin, Fanny Laffargue

Publikováno v: Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-10 (2022)

Abstract Background Acro-osteolysis (AO) refers to resorption of the distal finger and toe phalanges. It displays two patterns: (i) diffuse AO and (ii) transverse or bandlike AO. AO can be a sign of local distress (e.g. of toxic origin), but is very

Externí odkaz: https://doaj.org/article/336f7c67222f4d6699cf9717b9decfe0

Survey of adolescents' needs and parents' views on sexual health in juvenile idiopathic arthritis.

Autor: Savel, Carine^1,2 (AUTHOR) csavel@chu-clermontferrand.fr, Chausset, Aurélie^1,3 (AUTHOR), Berland, Pauline⁴ (AUTHOR), Guiguet-Auclair, Candy² (AUTHOR), Cabane, Laura⁵ (AUTHOR), Fautrel, Bruno⁶ (AUTHOR), Gaudin, Philippe^7,8 (AUTHOR), Guillot, Pascale⁹ (AUTHOR), Hayem, Gilles¹⁰ (AUTHOR), Lafarge, Delphine¹¹ (AUTHOR), Merlin, Etienne^1,12 (AUTHOR), Pezière, Nadine¹³ (AUTHOR), Sordet, Christelle¹⁴ (AUTHOR), Trope, Sonia¹⁵ (AUTHOR), Tournadre, Anne¹⁶ (AUTHOR), Malochet, Sandrine¹⁶ (AUTHOR), Cohen, Jean-David¹⁷ (AUTHOR)

Publikováno v: Pediatric Rheumatology. 9/5/2023, Vol. 21 Issue 1, p1-11. 11p.

Description du parcours de soins d’enfants atteints d’arthrite juvénile idiopathique jusqu’à la première consultation de rhumatologie pédiatrique

Autor: Freychet, Caroline, Lambert, Céline, Pereira, Bruno, Stephan, Jean L., Echaubard, Stéphane, Merlin, Etienne, Chausset, Aurélie

Publikováno v: In Revue du rhumatisme December 2020 87(6):459-465