Living with Crouzon syndrome: transition from childhood to adulthood

Autor: Ulrika Hallberg, Dimitrios Stavropoulos, Bengt Mohlin, Catharina Hagberg

Publikováno v: Scandinavian Journal of Disability Research, Vol 14, Iss 3, Pp 199-211 (2011)

Objective. The aim of this qualitative investigation is to study the subjective experiences of transition from childhood to adulthood in individuals with Crouzon syndrome. Material and methods. Telephone interviews were carried out with eight informa

Externí odkaz: https://doaj.org/article/c333ca7d98db4cda906c25424bcf845e

A Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate:1. Planning and management

Autor: Anette Lohmander, P.J. Davenport, Marjukka Paaso, Maria Lundberg, William C. Shaw, Inger Lundeborg, Jeanette Mooney, Nina Lindberg, Leena Turunen, Nina Schofield, Eli Brinck, Reidunn Blomhoff, Emma Slevan, Øydis Hide, Catharina Hagberg, Kirsten Mølsted, Agneta Karsten, Lillian Kjøll, Berit Emborg, Anna Elander, Birthe Granhof Black, Gunnar Paulin, Annelise Küseler, Haydn Bellardie, Christine Hayden, David Whitby, Karin Jeppesen, Therese Rasmussen, Elisabeth Willadsen, Ola Larson, Lars Enocson, Kristin Billaud Feragen, Terry Gregg, Eileen Bradbury, Frank Åbyholm, Philip Eyres, Gunvor Semb, Pål Skaare, Gry Jacobsen, Elisabeth Rønning, Inger Beate Tørdal, Ann Magritt Semmingsen, Christina Persson, Jyri Hukki, Arja Heliövaara, Paul Sæle, Agneta Marcusson, Hallvard Vindenes, Melanie Bowden, Julie Davies, Annica Gustavsson, Anna Paganini, Christina Havstam, Eilish McAleer, Jill Nyberg, Nina Helen Pedersen, Elina Hölttä, Ulla Elfving-Little, Maria Boers, Antje Schöps, Suvi Alaluusua, Dorte Marxen, Gunilla Henningsson, Jorma Rautio, Ragnhild Aukner, Erik Neovius, Mikael Skou Andersen, Hans Friede, Midia Najar Chalien, Anders Holmefjord, Kirsti Humerinta, Anja Bau, Helen V Worthington, Helene Søgaard Andersen, Mia Kisling-Møller, Rolf S. Tindlund, Sara Rizell, Alan Leonard, Anna Britta Mjönes, Hans Enemark, Margareta Larson, R. Patricia Bannister, Sigvor Reisæter, Kjartan Arctander, Stig Bolund, Jan Lilja, Anders Berggren

Publikováno v: Semb, G, Enemark, H, Friede, H, Paulin, G, Lilja, J, Rautio, J, Andersen, M, Åbyholm, F, Lohmander, A, Shaw, W, Mølsted, K, Heliövaara, A, Bolund, S, Hukki, J, Vindenes, H, Davenport, P, Arctander, K, Larson, O, Berggren, A, Whitby, D, Leonard, A, Neovius, E, Elander, A, Willadsen, E, Bannister, R P, Bradbury, E, Henningsson, G, Persson, C, Eyres, P, Emborg, B, Kisling-Møller, M, Küseler, A, Granhof Black, B, Schöps, A, Bau, A, Boers, M G C, Andersen, H S, Jeppesen, K, Marxen, D, Paaso, M, Hölttä, E, Alaluusua, S, Turunen, L, Humerinta, K, Elfving-Little, U, Tørdal, I B, Kjøll, L, Aukner, R, Hide, Ø, Feragen, K B, Rønning, E, Skaare, P, Brinck, E, Semmingsen, A-M, Lindberg, N, Bowden, M, Davies, J, Mooney, J, Bellardie, H, Schofield, N, Nyberg, J, Lundberg, M, Karsten, A L-A, Larson, M, Holmefjord, A, Reisæter, S, Pedersen, N-H, Rasmussen, T, Tindlund, R, Sæle, P, Blomhoff, R, Jacobsen, G, Havstam, C, Rizell, S, Enocson, L, Hagberg, C, Najar Chalien, M, Paganini, A, Lundeborg, I, Marcusson, A, Mjönes, A-B, Gustavsson, A, Hayden, C, McAleer, E, Slevan, E, Gregg, T & Worthington, H 2017, ' A Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate : 1. Planning and management ', Journal of Plastic Surgery and Hand Surgery, vol. 51, no. 1, pp. 2-13 . https://doi.org/10.1080/2000656X.2016.1263202

Background and aims: Longstanding uncertainty surrounds the selection of surgical protocols for the closure of unilateral cleft lip and palate, and randomised trials have only rarely been performed. This paper is an introduction to three randomised t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8988889bb25b223cfa1c20c8d50ac22f
https://pure.au.dk/portal/da/publications/a-scandcleft-randomised-trials-of-primary-surgery-for-unilateral-cleft-lip-and-palate(c8c5f6b0-dc7b-498d-9093-f51a6927788b).html

Dental agenesis patterns of permanent teeth in Apert syndrome

Autor: Catharina Hagberg, Bengt Mohlin, Dimitrios Stavropoulos, Ewald M. Bronkhorst, Theodosia Bartzela

Publikováno v: European Journal of Oral Sciences. 119:198-203

Dental agenesis may either occur as an isolated trait (non-syndromic) or as a component in a congenital syndrome. The aim of the present study was to identify the prevalence of dental agenesis for each type of tooth and to look for dental agenesis pa

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::5c487eaf54160f1ec11d959e512cbe93
https://doi.org/10.1111/j.1600-0722.2011.00821.x

A Longitudinal Three-Center Study of Dental Arch Relationship in Patients with Bilateral Cleft Lip and Palate

Autor: Anne Marie Kuijpers-Jagtman, Susana Dominguez-Gonzalez, Terumi Ozawa Okada, Elisabeth Rønning, Catharina Hagberg, Ewald M. Bronkhorst, Gunvor Semb, William C. Shaw, Sara Rizell, Theodosia Bartzela, Christos Katsaros, Fabio Henrique de Sa Leitao Pinheiro

Publikováno v: Repositório Institucional da USP (Biblioteca Digital da Produção Intelectual)
Universidade de São Paulo (USP)
instacron:USP
Cleft Palate-Craniofacial Journal, 47, 2, pp. 167-74
Cleft Palate-Craniofacial Journal, 47, 167-74

ObjectiveTo compare and evaluate longitudinally the dental arch relationships from 4.5 to 13.5 years of age with the Bauru-BCLP Yardstick in a large sample of patients with bilateral cleft lip and palate (BCLP).DesignRetrospective longitudinal interc

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1d663882f3f44439e7d292d4c23b708a
https://doi.org/10.1597/08-249_1

Social life aspects of young adults with cleft lip and palate: Grounded theory approach

Autor: Woranuch Chetpakdeechit, Catharina Hagberg, Ulrika Hallberg, Bengt Mohlin

Publikováno v: Acta Odontologica Scandinavica. 67:122-128

The findings of many questionnaire and inventory studies suggest that people with cleft lip and/or palate report a decreased quality of life. Common problems include dissatisfaction with the external appearance of the lips and nose, speech problems,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::18d35ba89f4ea8b11c4de435a8abc350
https://doi.org/10.1080/00016350902720888