Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Carina A.C.M Pittens"'
Autor:
Yumna Masood, Anica Alvarez Nishio, Bella Starling, Shoba Dawson, Jon Salsberg, Steven Blackburn, Esther van Vliet, Carina A.C.M Pittens
Publikováno v:
European Journal of General Practice, Vol 30, Iss 1 (2024)
Public engagement in health research is vital for addressing health disparities and promoting inclusivity among minoritised communities who often face barriers to accessing healthcare. Minoritised communities are groups, which have been made minoriti
Externí odkaz:
https://doaj.org/article/76bff1184c334f389cec49aadda29962
Autor:
Sevgi E. Fruytier, Lidewij Eva Vat, Rob Camp, François Houÿez, Hilde De Keyser, Denise Dunne, Davide Marchi, Laura McKeaveney, Richard H. Pitt, Carina A.C.M. Pittens, Meagan F. Vaughn, Elena Zhuravleva, Tjerk Jan Schuitmaker-Warnaar
Publikováno v:
Journal of Patient-Centered Research and Reviews, Vol 9, Iss 1, Pp 46-57 (2022)
Purpose: While patient engagement is becoming more customary in developing health products, its monitoring and evaluation to understand processes and enhance impact are challenging. This article describes a patient engagement monitoring and evaluatio
Externí odkaz:
https://doaj.org/article/a6e5425ccbb747c4adcf9681723a9554
The most important problems and needs of rasopathy patients with a noonan syndrome spectrum disorder
Autor:
Dagmar K. Tiemens, Lotte Kleimeier, Erika Leenders, Ellen Wingbermühle, Renee L. Roelofs, Barbara Sibbles, Floor S.M. Oostwegel, Eva Vroonland, Conny van Leeuwen, Hanneke Niessen, Paul Sonnega, Anniek Duursma, Michel A. A. P. Willemsen, Jos M. T. Draaisma, Carina A.C.M. Pittens
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-13 (2023)
Abstract Background Noonan syndrome spectrum disorders (NSSDs) constitute a group within the Rasopathies, and are one of the largest groups of syndromes with impact on multi-organ involvement known. The extreme variability of the clinical phenotype i
Externí odkaz:
https://doaj.org/article/8e92a1191a724fcd889347982f848af1