Výsledky vyhledávání - "Cara Schofield"

Akademický článek

Using Focussed Ethnography to Observe and Understand the Actions and Interactions of People With Prader-Willi Syndrome When They Exercise at a Community Gym: A Protocol

Autor: Cara Schofield, Christine Bigby, Jenny Downs, Nicholas F. Taylor, Nora Shields

Publikováno v: International Journal of Qualitative Methods, Vol 23 (2024)

Exercise for people with Prader-Willi syndrome (PWS) is important for their health and wellbeing and can provide opportunities for community participation. However, they may find it difficult to participate in some contexts, such as community gyms be

Externí odkaz: https://doaj.org/article/223d5ea1c6e549a9b2e1a0604cdbce88

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Akademický článek

Progressive resistance training in young people with Prader-Willi syndrome: protocol for a randomised trial (PRESTO)

Autor: Kim L Bennell, Nicholas F Taylor, Nora Shields, David Levitt, Jennifer J Watts, Luke Prendergast, Joseph Proietto, Lauren J Rice, Zoë McCallum, Alesha Southby, Tania Markovic, Christine Bigby, Cara Schofield, Georgina Loughnan, Janet Franklin, Viral Chikani, Susan Blair

Publikováno v: BMJ Open, Vol 12, Iss 12 (2022)

Introduction Preliminary evidence suggests that progressive resistance training may be beneficial for people with Prader-Willi Syndrome (PWS), a rare genetic condition that results in muscle weakness and low muscle tone.To establish whether community

Externí odkaz: https://doaj.org/article/6f7bddf066d840f29578684277739502

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Associations Between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study

Publikováno v: Journal of Autism and Developmental Disorders, 52(9), 3877-3889. Springer New York

Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may neg

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::33b98a188b75e12ced8c13a7cd3754bf
https://pure.eur.nl/en/publications/219e78a3-1f63-4637-9cd1-e0c1562e0124

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Benefits of powered standing wheelchair devices for adolescents with Duchenne muscular dystrophy in the first year of use

Autor: Stephanie Parkinson, Maina P. Kava, Cara Schofield, Donna Cross, Klair Bayley, Peter Jacoby, Odette Gaynor, Jenny Downs, Damian Clark, Susan Morris, Kerry Evans, Anita Cairns, Monique M. Ryan, Linda Chiu, Nitamarie Vorster, Aris Siafarikas

Publikováno v: Journal of Paediatrics and Child Health. 56:1419-1425

Aim Poorer physical and mental health often accompany loss of walking in Duchenne muscular dystrophy. This study assessed the impacts of powered wheelchair standing device (PWSD) use on muscle and joint pain, joint angles when standing and mental hea

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4e3d558be118fd7c1119d26c44730e2c
https://doi.org/10.1111/jpc.14963

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Daytime sleepiness and emotional and behavioral disturbances in Prader-Willi syndrome

Individuals with Prader-Willi syndrome (PWS) often have excessive daytime sleepiness and emotional/behavioral disturbances. The objective of this study was to examine whether daytime sleepiness was associated with these emotional/behavioral problems,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c49abea05f75736662a7a97e80b6d3de

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Progressive resistance training in young people with Prader-Willi syndrome: protocol for a randomised trial (PRESTO)

Autor: Nora Shields, Kim L Bennell, Alesha Southby, Lauren J Rice, Tania Markovic, Christine Bigby, Luke Prendergast, Jennifer J Watts, Cara Schofield, Georgina Loughnan, Janet Franklin, David Levitt, Viral Chikani, Zoe McCallum, Susan Blair, Joseph Proietto, Nicholas F Taylor

Publikováno v: BMJ Open. 12:e060306

IntroductionPreliminary evidence suggests that progressive resistance training may be beneficial for people with Prader-Willi Syndrome (PWS), a rare genetic condition that results in muscle weakness and low muscle tone.To establish whether community-

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bd0deed313c22bdb859aca9eb1bd7448
https://doi.org/10.1136/bmjopen-2021-060306

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Requirements for improving health and well‐being of children with Prader‐Willi syndrome and their families

Publikováno v: Journal of Paediatrics and Child Health, 55(9), 1029-1037. Wiley-Blackwell Publishing Ltd
Journal of Paediatrics and Child Health

Prader‐Willi syndrome (PWS) is a rare genetic condition with multi‐system involvement. The literature was reviewed to describe neurodevelopment and the behavioural phenotype, endocrine and metabolic disorders and respiratory and sleep functioning

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8af5c3082d00ffc5ff691e06a9a1ee5b
https://doi.org/10.1111/jpc.14546

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The development of a consensus statement for the prescription of powered wheelchair standing devices in Duchenne muscular dystrophy

Autor: H. Young, J. Sodhi, M. McGuire, Jenny Downs, Cara Schofield, M. Kiefer, Kiah Evans, Klair Bayley, Nitamarie Vorster, K. Carroll, Paula Bray, S. G. Paguinto, E. Townsend

Publikováno v: Disability and rehabilitation. 44(10)

Purpose To develop a consensus statement for the prescription of a Powered Wheelchair Standing Device (PWSD) in young people with Duchenne muscular dystrophy (DMD). Materials and methods An international multidisciplinary panel comprising clinicians

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d0c93e6b822aa1be2867e8da2186d9e9
https://pubmed.ncbi.nlm.nih.gov/32878485

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Using a trauma informed practice framework to enhance understanding of and identify support strategies for behavioural difficulties in young people with Prader-Willi syndrome

Autor: Catherine S. Choong, David Gibson, Jenny Downs, Rachel Skoss, Cara Schofield, Karen Martin

Publikováno v: Research in Developmental Disabilities. 110:103839

Background Behavioural support for young people with Prader-Willi syndrome (PWS) is necessary in home and school environments. The Trauma Informed Practice (TIP) framework has been used to support young people with complex behavioural needs in school

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cc05e51fb1d615fe0908a84324867c03
https://doi.org/10.1016/j.ridd.2020.103839

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