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pro vyhledávání: '"Caitlin Doolittle"'
Autor:
Gregory S. Sawicki, Rachel W. Linnemann, Patricia J. O'Malley, Suhayla Islam, Samuel M. Moskowitz, Deborah Friedman, Lael M. Yonker, Caitlin Doolittle, Chelsea Lamb, Lily L. Altstein, Anna M. Georgiopoulos, Anita St. John, John Della Volpe, Kieu-Tram Bach
Publikováno v:
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society. 17(1)
Background Current palliative care tools do not address distressing chronic symptoms that are most relevant to cystic fibrosis. Methods A CF-specific structured assessment based on a primary palliative care framework was administered to 41 adolescent