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EULAR points to consider for including the perspective of young patients with inflammatory arthritis into patient-reported outcomes measures.

Autor: Studenic P; Department of Internal Medicine 3, Division of Rheumatology, Medical University of Vienna, Wien, Austria paul.studenic@meduniwien.ac.at.; Department of Medicine (Solna), Division of Rheumatology, Karolinska Institute, Stockholm, Sweden., Stamm TA; Ludwig Boltzmann Institut für Arthritis und Rehabilitation, Wien, Austria.; Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria., Mosor E; Ludwig Boltzmann Institut für Arthritis und Rehabilitation, Wien, Austria.; Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria., Bini I; Anmar Young, Rome, Italy.; EULAR Young PARE, Zürich, Switzerland., Caeyers N; EULAR PARE, Zürich, Switzerland., Gossec L; INSERM, Institut Pierre Louis d'Epidémiologie et de Santé Publique, INSERM, Sorbonne Universite, Paris, France.; AP-HP.Sorbonne Université, Rheumatology department, Hopital Universitaire Pitie Salpetriere, Paris, France., Kouloumas M; Cyprus League Against Rheumatism, Aglantzia, Cyprus., Nikiphorou E; Centre for Rheumatic Diseases, King's College London, London, UK.; Rheumatology Department, King's College Hospital, London, UK., Olsder W; EULAR Young PARE, Zürich, Switzerland.; Youth-R-Well, Nieuwegein, The Netherlands., Padjen I; Department of Internal Medicine, Division of Clinical Immunology and Rheumatology, University Hospital Centre Zagreb, Zagreb, Croatia., Ramiro S; Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.; Rheumatology, Zuyderland Medical Centre Heerlen, Heerlen, The Netherlands., Stones S; EULAR PARE, Zürich, Switzerland.; Envision Pharma Group Limited, Wilmslow, UK., Wilhelmer TC; EULAR Young PARE, Zürich, Switzerland.; Österreichische Rheumaliga, Maria Alm, Austria., Alunno A; Department of Life, Health and Environmental Sciences, University of L'Aquila, L'Aguila, Italy.; Internal Medicine and Nephrology Unit, Department of Medicine, ASL Avezzano-Sulmona-L'Aquila, San Salvatore Hospital, L'Aquila, Italy.

Publikováno v: RMD open [RMD Open] 2022 Jul; Vol. 8 (2).

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Defining conditions where long-term glucocorticoid treatment has an acceptably low level of harm to facilitate implementation of existing recommendations: viewpoints from an EULAR task force

Publikováno v: Annals of the Rheumatic Diseases, 75(6), 952-957. BMJ Publishing Group
Annals of the Rheumatic Diseases, 75, 952. BMJ Publishing Group
Annals of the Rheumatic Diseases, 75(6), 952-957
Strehl, C, Bijlsma, J W J, de Wit, M, Boers, M, Caeyers, N, Cutolo, M, Dasgupta, B, Dixon, W G, Geenen, R, Huizinga, T W J, Kent, A, de Thurah, A L, Listing, J, Mariette, X, Ray, D W, Scherer, H U, Seror, R, Spies, C M, Tarp, S, Wiek, D, Winthrop, K L & Buttgereit, F 2016, ' Defining conditions where long-term glucocorticoid treatment has an acceptably low level of harm to facilitate implementation of existing recommendations: viewpoints from an EULAR task force ', Annals of the Rheumatic Diseases, vol. 75, no. 6, pp. 952-957 . https://doi.org/10.1136/annrheumdis-2015-208916

There is convincing evidence for the known and unambiguously accepted beneficial effects of glucocorticoids at low dosages. However, the implementation of existing recommendations and guidelines on the management of glucocorticoid therapy in rheumati

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d5164ac2524eae51d2bf6b4964ce6f9d
https://research.vumc.nl/en/publications/1ba43e04-2191-4330-9039-7e658d3e8b69

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Akademický článek

Young people's perspectives on patient-reported outcome measures in inflammatory arthritis: results of a multicentre European qualitative study from a EULAR task force.

Autor: Mosor E; Section for Outcomes Research, Centre for Medical Statistics, Informatics and Intelligent Systems, Medical University Vienna, Wien, Austria., Studenic P; Internal Medicine 3, Division of Rheumatology, Medical University Vienna, Wien, Austria.; Department of Medicine (Solna), Division of Rheumatology, Karolinska Institute, Stockholm, Sweden., Alunno A; Department of Medicine, Rheumatology Unit, University of Perugia, Perugia, Umbria, Italy., Padjen I; Division of Clinical Immunology and Rheumatology, Department of Internal Medicine, University Hospital Centre Zagreb, Zagreb, Croatia.; University of Zagreb, School of Medicine, Zagreb, Croatia., Olsder W; EULAR Young PARE, Zürich, Switzerland.; Youth-R-Well, Nieuwegein, The Netherlands., Ramiro S; Rheumatology, Leiden University Medical Center, Leiden, South Holland, The Netherlands.; Rheumatology, Zuyderland Medical Centre Heerlen, Heerlen, Limburg, The Netherlands., Bini I; EULAR Young PARE, Zürich, Switzerland.; Anmar Young, Rome, Italy., Caeyers N; EULAR PARE, Zurich, Switzerland.; ReumaNET, Leuven, Belgium., Gossec L; Pierre Louis Institute of Epidemiology and Public Health, Sorbonne University, Paris, France.; APHP, Rheumatology Department, Pitie Salpetriere University Hospital, Paris, France., Kouloumas M; Cyprus League Against Rheumatism, Nikosia, Cyprus., Nikiphorou E; Centre for Rheumatic Diseases, King's College London, London, UK.; Rheumatology Department, King's College Hospital NHS Trust, London, UK., Stones S; EULAR Patient Research Partner, Manchester, UK.; University of Leeds, Leeds, West Yorkshire, UK., Wilhelmer TC; EULAR Young PARE, Zürich, Switzerland.; Austrian Rheumatism League, Maria Alm, Austria., Stamm TA; Section for Outcomes Research, Centre for Medical Statistics, Informatics and Intelligent Systems, Medical University Vienna, Wien, Austria tanja.stamm@meduniwien.ac.at.

Publikováno v: RMD open [RMD Open] 2021 Jan; Vol. 7 (1).

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