Measurement instruments for the core outcome set of congenital melanocytic naevi and an assessment of the measurement properties according to COSMIN: a systematic review

Autor: A.C. Fledderus, T. Boom, C.M. Legemate, C.M.A.M. van der Horst, P.I. Spuls

Publikováno v: JPRAS Open, Vol 35, Iss , Pp 58-75 (2023)

Background: Congenital melanocytic naevi (CMN) can impact on patients’ lives due to their appearance and the risk they carry of neurological complications or melanoma development. The development of a core outcome set (COS) will allow standardised

Externí odkaz: https://doaj.org/article/17d486dc8bdf476793ee582ad3042f7e

Appearance-related concerns and their impact on health-related quality of life in patients with peripheral vascular malformations

Autor: M.L.E. Stor, M.M. Lokhorst, S.E.R. Horbach, D.A. Young-Afat, Ph.I. Spuls, C.M.A.M. van der Horst

Publikováno v: Stor, M L E, Lokhorst, M M, Horbach, S E R, Young-Afat, D A, Spuls, P I & van der Horst, C M A M 2022, ' Appearance-related concerns and their impact on health-related quality of life in patients with peripheral vascular malformations ', Journal of Plastic, Reconstructive and Aesthetic Surgery, vol. 75, no. 11, pp. 4202-4211 . https://doi.org/10.1016/j.bjps.2022.08.042
Journal of Plastic, Reconstructive and Aesthetic Surgery, 75(11), 4202-4211. Churchill Livingstone

Background: Peripheral vascular malformations (VMs) may lead to disfigurement of the body and face, potentially impairing aesthetic appearance. Yet, data on appearance in this population is limited. This study aimed to examine appearance-related conc

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4f3ae0a3e63af703cdadf6120c0e9f8b
https://research.vumc.nl/en/publications/269f8e95-48b3-4951-9430-10596d3a7eb8

Responsiveness of quality of life measures in children with peripheral vascular malformations: The OVAMA project

Autor: M.M. Lokhorst, S.E.R. Horbach, M. Waner, T.M. O, C.J.M. van der Vleuten, P.I. Spuls, C.M.A.M. van der Horst

Publikováno v: JPRAS open, 27, 70-79
JPRAS Open
JPRAS Open, 27, 70-79. Elsevier Ltd
JPRAS Open, Vol 27, Iss, Pp 70-79 (2021)
JPRAS open, 27, pp. 70-79

Contains fulltext : 229310.pdf (Publisher’s version ) (Open Access) Background: The OVAMA (Outcome Measures for VAscular MAlformations) project determined quality of life (QoL) as a core outcome domain for evaluating treatment effect in vascular ma

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::90bab72a5564c2bd3324e79108c9bcb1
http://hdl.handle.net/2066/229310

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