Fibrodysplasia Ossificans Progressiva: What Have We Achieved and Where Are We Now? Follow-up to the 2015 Lorentz Workshop

Autor: Ruben D. de Ruiter, Bernard J. Smilde, Gerard Pals, Nathalie Bravenboer, Petra Knaus, Ton Schoenmaker, Esmée Botman, Gonzalo Sánchez-Duffhues, Maurizio Pacifici, Robert J. Pignolo, Eileen M. Shore, Marjolein van Egmond, Hans Van Oosterwyck, Frederick S. Kaplan, Edward C. Hsiao, Paul B. Yu, Renata Bocciardi, Carmen Laura De Cunto, Patricia Longo Ribeiro Delai, Teun J. de Vries, Susanne Hilderbrandt, Richard T. Jaspers, Richard Keen, Peter Koolwijk, Rolf Morhart, Jan C. Netelenbos, Thomas Rustemeyer, Christiaan Scott, Clemens Stockklausner, Peter ten Dijke, James Triffit, Francesc Ventura, Roberto Ravazzolo, Dimitra Micha, Elisabeth M. W. Eekhoff

Publikováno v: Frontiers in Endocrinology, Vol 12 (2021)

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare progressive genetic disease effecting one in a million individuals. During their life, patients with FOP progressively develop bone in the soft tissues resulting in increasing immobility an

Externí odkaz: https://doaj.org/article/0fd0baada54340b8bb1355163a563232

Reply to 'Screening for high fracture risk'

Autor: J. C. Netelenbos, Petra J. M. Elders, Thomas Merlijn, Karin M A Swart

Publikováno v: Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, 31(6), 1183-1184. Springer London
Merlijn, T, Swart, K M A, Netelenbos, J C & Elders, P J M 2020, ' Reply to "Screening for high fracture risk" ', Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, vol. 31, no. 6, pp. 1183-1184 . https://doi.org/10.1007/s00198-020-05417-w

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b37f5b1f196d379bd886d511738722a8
https://doi.org/10.1007/s00198-020-05417-w

Self-perception of fracture risk: what can it tell us?

Autor: Nelson B. Watts, Stephen H. Gehlbach, Maurizio Rossini, Jonathan D. Adachi, Elaine M. Dennison, A Diez-Perez, A E Litwic, C. Roux, Susan L. Greenspan, Jeri W. Nieves, S. Silverman, Johannes Pfeilschifter, Lyn March, J C Netelenbos, Allison Wyman, Roland Chapurlat, Juliet E. Compston, Celia L Gregson, Ethel S. Siris, Kenneth G. Saag, Andrea Z. LaCroix, C Cooper

Publikováno v: Osteoporosis International, 28(12), 3495-3500. Springer London
Compston, J E, Wyman, A, Siris, E S, Adachi, J D, Chapurlat, R, Díez-Pérez, A, LaCroix, A Z, Nieves, J W, Netelenbos, J C, Pfeilschifter, J, Rossini, M, Roux, C, Saag, K G, Silverman, S, Watts, N B, Greenspan, S L, March, L, Gregson, C L, Dennison, E M 2017, ' Self-perception of fracture risk : what can it tell us? ', Osteoporosis International . https://doi.org/10.1007/s00198-017-4200-3
Litwic, A E, Compston, J E, Wyman, A, Siris, E S, Gehlbach, S H, Adachi, J D, Chapurlat, R, Díez-Pérez, A, LaCroix, A Z, Nieves, J W, Netelenbos, J C, Pfeilschifter, J, Rossini, M, Roux, C, Saag, K G, Silverman, S, Watts, N B, Greenspan, S L, March, L, Gregson, C L, Cooper, C, Dennison, E M & Global Longitudinal Study of Osteoporosis in Women (GLOW) Investigators 2017, ' Self-perception of fracture risk : what can it tell us? ', Osteoporosis International, vol. 28, no. 12, pp. 3495-3500 . https://doi.org/10.1007/s00198-017-4200-3
Litwic, AE; Compston, JE; Wyman, A; Siris, ES; Gehlbach, SH; Adachi, JD; et al.(2017). Self-perception of fracture risk: what can it tell us?. Osteoporosis International, 28(12), 3495-3500. doi: 10.1007/s00198-017-4200-3. UC San Diego: Retrieved from: http://www.escholarship.org/uc/item/16n5h67t

Summary:In this study, we report that self-perception of fracture risk captures some aspect of fracture risk not currently measured using conventional fracture prediction tools and is associated with improved medication uptake. It suggests that adequ

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::12b177cfc770f3a4e3f9a2304c6ca9dd
https://research.vumc.nl/en/publications/489cd865-2b66-437c-82f2-196ee9ef912c

The Global Longitudinal Study of Osteoporosis in Women (GLOW): rationale and study design

Autor: Stuart L. Silverman, Johannes Pfeilschifter, Cyrus Cooper, Frederick A. Anderson, Pierre D. Delmas, P. N. Sambrook, J C Netelenbos, S. Adami, Susan L. Greenspan, C Roux, Adolfo Diez-Perez, Juliet E. Compston, F H Hooven, Nelson B. Watts, Robert Lindsay, Ethel S. Siris, Kenneth G. Saag, Andrea Z. LaCroix, Stephen H. Gehlbach, Steven Boonen, Jonathan D. Adachi

Publikováno v: Osteoporosis International
Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, vol 20, iss 7
Osteoporosis International, 20(7), 1107-1116. Springer London
Hooven, F H, Adachi, J D, Adami, S, Boonen, S, Compston, J, Cooper, C, Delmas, P D, Diez Perez, A, Gehlbach, S, Greenspan, S L, Lacroix, A, Lindsay, R, Netelenbos, J C, Pfeilschifter, J, Roux, C, Saag, KG, Sambrook, P N, Silverman, S, Siris, E, Watts, N B & Anderson, F A 2009, ' The Global Longitudinal Study of Osteoporosis in Women (GLOW): rationale and study design ', Osteoporosis International, vol. 20, no. 7, pp. 1107-1116 . https://doi.org/10.1007/s00198-009-0958-2

SUMMARY: The Global Longitudinal study of Osteoporosis in Women (GLOW) is a prospective cohort study involving 723 physicians and 60,393 women subjects >or=55 years. The data will provide insights into the management of fracture risk in older women o

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e2964c329763a45356a69c88cd808257
https://ora.ox.ac.uk/objects/uuid:1fac6eb9-964d-43dd-9000-6870b50442b5

An increased rate of falling leads to a rise in fracture risk in postmenopausal women with self-reported osteoarthritis: a prospective multinational cohort study (GLOW)

Autor: Stephen H. Gehlbach, Xavier Nogués, Maurizio Rossini, Adolfo Diez-Perez, Nelson B. Watts, Susan L. Greenspan, Cyrus Cooper, J C Netelenbos, F H Hooven, Juliet E. Compston, Daniel Prieto-Alhambra, P. N. Sambrook, Rafael Azagra, Johannes Pfeilschifter, Ethel S. Siris, Steven Boonen, Jonathan D. Adachi, Muhammad Javaid, S. Silverman, Allison Wyman, Nigel K Arden, Roland Chapurlat

Publikováno v: Prieto-Alhambra, D, Nogues, X, Javaid, M K, Wyman, A, Arden, N K, Azagra, R, Cooper, C, Adachi, J D, Boonen, S, Chapurlat, R D, Compston, J E, Gehlbach, S H, Greenspan, S L, Hooven, F H, Netelenbos, J C, Pfeilschifter, J, Rossini, M, Sambrook, P N, Silverman, S, Siris, E S, Watts, N B & Diez-Perez, A 2013, ' An increased rate of falling leads to a rise in fracture risk in postmenopausal women with self-reported osteoarthritis: a prospective multinational cohort study (GLOW) ', Annals of the Rheumatic Diseases, vol. 72, no. 6, pp. 911-917 . https://doi.org/10.1136/annrheumdis-2012-201451
Annals of the Rheumatic Diseases, 72(6), 911-917. BMJ Publishing Group

ObjectivesPatients with osteoarthritis have increased bone mass but no decrease in fractures. The association between self-reported osteoarthritis and incident falls and fractures was studied in postmenopausal women.MethodsThe Global Longitudinal Stu

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f033cd75aa8be38bc44795bda6fd91d6
https://doi.org/10.1136/annrheumdis-2012-201451