A guide to sharing open healthcare data under the General Data Protection Regulation

Autor: de Kok, Jip W T M, de la Hoz, Miguel Á Armengol, de Jong, Ymke, Brokke, Véronique, Elbers, Paul W G, Thoral, Patrick, Castillejo, Alejandro, Trenor, Tomás, Castellano, Jose M, Bronchalo, Alberto E, Merz, Tobias M, Faltys, Martin, van der Horst, Iwan C C, Xu, Minnan, Celi, Leo Anthony, van Bussel, Bas C T, Borrat, Xavier

Publikováno v: de Kok, Jip W T M; de la Hoz, Miguel Á Armengol; de Jong, Ymke; Brokke, Véronique; Elbers, Paul W G; Thoral, Patrick; Castillejo, Alejandro; Trenor, Tomás; Castellano, Jose M; Bronchalo, Alberto E; Merz, Tobias M; Faltys, Martin; van der Horst, Iwan C C; Xu, Minnan; Celi, Leo Anthony; van Bussel, Bas C T; Borrat, Xavier (2023). A guide to sharing open healthcare data under the General Data Protection Regulation. Scientific data, 10(1), p. 404. Nature Publishing Group 10.1038/s41597-023-02256-2

Sharing healthcare data is increasingly essential for developing data-driven improvements in patient care at the Intensive Care Unit (ICU). However, it is also very challenging under the strict privacy legislation of the European Union (EU). Therefor

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::383ce18df6e3d3d8fa82955cb3cd8eb9
https://boris.unibe.ch/184107/1/s41597-023-02256-2.pdf

A guide to sharing open healthcare data under the General Data Protection Regulation.

Autor: de Kok JWTM; Department of Intensive Care Medicine, Maastricht University Medical Centre+, Maastricht, the Netherlands.; Cardiovascular Research Institute Maastricht (CARIM), Maastricht University, Maastricht, the Netherlands., de la Hoz MÁA; Big Data Department, PMC, Fundacion Progreso y Salud (FPS), Regional Ministry of Health of Andalucia, Seville, Andalucia, Spain., de Jong Y; Philips, Eindhoven, the Netherlands., Brokke V; Philips, Eindhoven, the Netherlands., Elbers PWG; Center for Critical Care Computational Intelligence (C4I), Department of Intensive Care Medicine, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, The Netherlands., Thoral P; Center for Critical Care Computational Intelligence (C4I), Department of Intensive Care Medicine, Amsterdam University Medical Centers, Vrije Universiteit, Amsterdam, The Netherlands., Castillejo A; Sanitas - Data4Good, Madrid, Spain., Trenor T; Sanitas - Data4Good, Madrid, Spain., Castellano JM; Fundación de Investigación HM Hospitales, Grupo HM Hospitales, Madrid, Spain., Bronchalo AE; Fundación de Investigación HM Hospitales, Grupo HM Hospitales, Madrid, Spain., Merz TM; Cardiovascular Intensive Care Unit, Auckland City Hospital, Auckland, New Zealand., Faltys M; Department of Intensive Care Medicine, University Hospital, University of Bern, Bern, Switzerland., van der Horst ICC; Department of Intensive Care Medicine, Maastricht University Medical Centre+, Maastricht, the Netherlands.; Cardiovascular Research Institute Maastricht (CARIM), Maastricht University, Maastricht, the Netherlands., Xu M; Philips Research North America, Cambridge, MA, USA., Celi LA; Laboratory for Computational Physiology, Harvard-MIT Division of Health Sciences & Technology, Cambridge, Massachusetts, USA.; Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, Massachusetts, USA.; Department of Biostatistics Harvard T.H, Chan School of Public Health, Boston, Massachusetts, USA., van Bussel BCT; Department of Intensive Care Medicine, Maastricht University Medical Centre+, Maastricht, the Netherlands. bas.van.bussel@mumc.nl.; Cardiovascular Research Institute Maastricht (CARIM), Maastricht University, Maastricht, the Netherlands. bas.van.bussel@mumc.nl.; Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, the Netherlands. bas.van.bussel@mumc.nl., Borrat X; Department of Biostatistics Harvard T.H, Chan School of Public Health, Boston, Massachusetts, USA. xborrat@mit.edu.; Anaesthesiology and Critical Care Department, Hospital Clinic de Barcelona, Barcelona, Spain. xborrat@mit.edu.; Medical Informatics Department, Hospital Clinic de Barcelona, Barcelona, Spain. xborrat@mit.edu.

Publikováno v: Scientific data [Sci Data] 2023 Jun 24; Vol. 10 (1), pp. 404. Date of Electronic Publication: 2023 Jun 24.