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Autor:
Aline Tamalet, Jane S. Lucas, Panayiotis Kouis, Lea Heisch, Claudius Werner, Claire O'Neill, Laura Behan, Bridget Contreras, Anika Lofruthe, Guillaume Thouvenin, Konstantinos Giannakou, N.W.P. Rutjes, Christine Edelbusch, Elisabeth Maurer, Helene Kobbernagel, Panayiotis K. Yiallouros, Claudia E. Kuehni, Aristoula Toliopoulou, Tamara Paff, Anu Jose, Maria C. Philipsen, Eric G. Haarman, Audrey Dunn Galvin, Alexandra L. Quittner
Publikováno v:
5.2 Monitoring Airway Disease.
Introduction: Quality of life is an important parameter in the evaluation of health care and treatments. We have developed the first primary ciliary dyskinesia (PCD) health-related quality of life (HRQoL) measure for children, parents, teenagers and