Zobrazeno 1 - 10
of 88
pro vyhledávání: '"Brenda Riske"'
Publikováno v:
Haemophilia. 26:991-998
Introduction Patient satisfaction with health care is a key quality metric, associated with adherence and better outcomes. However, satisfaction with US Hemophilia Treatment Centers (HTC) is unknown. Aim To assess patient satisfaction with US Hemophi
Publikováno v:
Blood. 127:3073-3081
The availability of longitudinal data collected prospectively from 1998 to 2011 at federally funded US hemophilia treatment centers provided an opportunity to construct a descriptive analysis of how outcomes of men with severe hemophilia have been al
Autor:
Judith Baker, M. Lou, Michael B. Nichol, Xiaoli Niu, Kristi Norton, Randall Curtis, M. Ullman, Brenda Riske
Publikováno v:
American Journal of Hematology. 90:S11-S16
Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young adults with hemophilia. However, few published reports specifically examine health status indicators in this populatio
Autor:
K. M. Mclaughlin, Diane J. Aschman, Guy Young, Regina Butler, S. Senter, Ann D. Forsberg, Sanjay P Ahuja, A. Cheadle, Brenda Riske
Publikováno v:
Haemophilia. 22:e11-e17
Aim The National Hemophilia Program Coordinating Center, with the U.S. Regional Hemophilia Network conducted a national needs assessment of U.S. Hemophilia Treatment Center (HTC) patients. The objectives were to determine: (i) To what extent do patie
Autor:
Brenda Riske, J Wu, Michael B. Nichol, Y. Ding, Marion A. Koerper, Randall Curtis, M. Lou, Judith Baker, E.R. Aliyev, M. Ullman, D.Q. Tran
Publikováno v:
Value in Health. 22:S345
Autor:
Kerri Alderson, Brenda Riske, Janice Karasevich, Andrea Kennedy, Lisa Semple, Sheri van Gunst, Vanessa Bouskill
Publikováno v:
Journal of pediatric nursing. 35
Purpose Children who are living with chronic conditions may be supported in self-care through enjoyable active learning and family social processes. This research focused on development and evaluation of “Don't Push Your Luck!”, an educational bo
Autor:
R. Atwood, Judith Baker, Ann D. Forsberg, Brenda Riske, Mariam Voutsis, Rick Shearer, John H. Drake
Publikováno v:
Haemophilia. 19:21-26
For several decades, US government agencies have partially supported regional networks of Hemophilia Treatment Centers (HTC). HTC multidisciplinary teams provide comprehensive and coordinated diagnosis, treatment, prevention, education, outreach and
Autor:
Cassie Ross, Joanne Wu, Ann D. Forsberg, Brenda Riske, M. Lou, J.L. Poon, Jason N. Doctor, Z.Y. Zhou, M. Ullman, Randall Curtis, Marion A. Koerper, F. Gwadry-Sridhar, Kathleen A. Johnson, K. L. Parish
Publikováno v:
Haemophilia. 18:699-707
This study describes health-related quality of life (HRQoL) of persons with haemophilia A in the United States (US) and determines associations between self-reported joint pain, motion limitation and clinically evaluated joint range of motion (ROM),
Autor:
Jussara Almeida Cruz, Gerry Dolan, Carmen Altisent, Jesper Haaning, Cedric Hermans, Georg Lemm, Paula H. B. Bolton-Maggs, Brenda Riske, Elisabeth Steinhagen-Thiessen, Caesar Guerrero, Craig M. Kessler
Publikováno v:
Advances in Therapy. 29:1-16
The World Federation of Hemophilia (WFH) 2010 World Congress held in Buenos Aires, Argentina, in July 2010, attracted more than 4,300 participants from 106 countries. This report summarizes two symposia held during the congress. The first, titled "Em
Publikováno v:
American Journal of Preventive Medicine. 41:S338-S345
Background Home infusion therapy, particularly on a prophylactic regimen, is linked with reduced morbidity among youth with severe hemophilia. However, the association of insurance coverage with these home therapies is unknown. Purpose This study exp