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How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality?

Autor: Spierings, J., Ende, C.H.M. van den, Schriemer, R.M., Moens, H.J.B., Bijl, E.A. van der, Bonte-Mineur, F., Buck, M.P.D. de, Kanter, M.A.E. de, Knaapen-Hans, H.K.A., Laar, J.M. van, Mulder, U.D.J., Potjewijd, J., Pundert, L.A.J. de, Schoonbrood, T.H.M., Schouffoer, A.A., Stel, A.J., Vercoutere, W., Voskuyl, A.E., Vries-Bouwstra, J.K. de, Vonk, M.C., ARCH Study Grp

Publikováno v: Rheumatology, 59(6), 1226-1232. OXFORD UNIV PRESS
Rheumatology (Oxford, England), 59(6), 1226-1232. Oxford University Press
Rheumatology, 59(6), 1226-1232. Oxford University Press
Spierings, J, van den Ende, C H M, Schriemer, R M, Bernelot Moens, H J, van der Bijl, E A, Bonte-Mineur, F, de Buck, M P D, de Kanter, M A E, Knaapen-Hans, H K A, van Laar, J M, Mulder, U D J, Potjewijd, J, de Pundert, L A J, Schoonbrood, T H M, Schouffoer, A A, Stel, A J, Vercoutere, W, Voskuyl, A E, de Vries-Bouwstra, J K, Vonk, M C & ARCH Study Group 2020, ' How do patients with systemic sclerosis experience currently provided healthcare and how should we measure its quality? ', Rheumatology (Oxford, England), vol. 59, no. 6, pp. 1226-1232 . https://doi.org/10.1093/rheumatology/kez417
Rheumatology, 59, 6, pp. 1226-1232
Rheumatology (Oxford, England)
Rheumatology, 59, 1226-1232
Rheumatology, 59(6):kez417, 1226-1232. Oxford University Press

Objectives To gain insight into SSc patients’ perspective on quality of care and to survey their preferred quality indicators. Methods An online questionnaire about healthcare setting, perceived quality of care (CQ index) and quality indicators, wa

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a8e9965fd83f086a4f551177f3277d26
https://academic.oup.com/rheumatology/article/59/6/1226/5572267

Histone modifications underlie monocyte dysregulation in patients with systemic sclerosis, underlining the treatment potential of epigenetic targeting

Autor: Van Der Kroef, M., Castellucci, M., Mokry, M., Cossu, M., Garonzi, M., Bossini-Castillo, L., Chouri, E., Wichers, C.G.K., Beretta, L., Trombetta, E., Silva-Cardoso, S., Vazirpanah, N., Carvalheiro, T., Angiolilli, C., Bekker, C.P.J., Affandi, A.J., Reedquist, K.A., Bonte-Mineur, F., Zirkzee, E.J.M., Bazzoni, F., Radstake, T.R.D.J., Rossato, M.

Publikováno v: Digital.CSIC. Repositorio Institucional del CSIC
instname
Annals of the Rheumatic Diseases, 78(4), 529. BMJ Publishing Group

Background and objectiveSystemic sclerosis (SSc) is a severe autoimmune disease, in which the pathogenesis is dependent on both genetic and epigenetic factors. Altered gene expression in SSc monocytes, particularly of interferon (IFN)-responsive gene

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f40de77f180edaeb03284373001ed5aa
http://hdl.handle.net/10261/212880

Smoking cessation advice by rheumatologists: results of an international survey

Autor: Naranjo, A, Khan, N. A., Cutolo, M., Lee, S., Lazovskis, J, Laas, K., Pandya, S, Sokka, T., Fabiana, M. S., Da Silveira, I. G., Laurindo, I. M., Horslev-Petersen, K. l, Hetland, M. L, Müller, R., Schett, G., Wassenberg, S., Alten, R., Drosos, A. A, Rojkovich, B, Géher, P, Aggarwal, Tanya, Cazzato, M, Fukuda, W., Nakajima, A., Yamanaka, H., Shono, E., Oyoo, O., Rexhepi, B., Rexhepi, S., Andersone, D., Baranauskaite, A., Bonte-Mineur, F., Haugeberg, G., Majdan, M., Targonska-Stepniak, B., Codrina, A., Ionescu, R., Choe, J. -Y., Lee, E. B., Gogus, F., Inanc, N., Direskeneli, H., Yazici, Y., Bergman, M.

Publikováno v: Rheumatology. 53:1825-1829

Objective The aim of this study was to understand practices regarding smoking cessation among rheumatologists for patients with inflammatory rheumatic diseases. Methods A survey was sent to the rheumatologists participating in the multinational Quant

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5c0e06b467c99a27680ce9aab0130751
https://doi.org/10.1093/rheumatology/keu213

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