Zobrazeno 1 - 6
of 6
pro vyhledávání: '"Birthe B Holm"'
Autor:
Michael Schlander, Søren Holm, Erik Nord, Jeff Richardson, Silvio Garattini, Peter Kolominsky-Rabas, Deborah Marshall, Ulf Persson, Maarten Postma, Steven Simoens, Oriol de Solà Morales, Keith Tolley, Mondher Toumi, Harry Telser, James R Bonham, Helmut Hintner, Anja Diem, Martin Laimer, Réjean Hébert, Nabarun Dasgupta, Carrie E. Pierce, Melissa Jordan, Barbara Bori, Mohanad Fors, Emilie Prazakova, Simon Day, Thomas J. Croce, Jonas Fransson, Philip Wood, Anne-Grethe Lauridsen, Joanne Higgs, Vesna Stojmirova Aleksovska, Christina Olsen, Ritchie Head, Antonio Asero, Vincenzo Papa, Christa van Kan, Loic Favennec, Silvana Venturella, Michela Salvador, Alan Krol, Stephanie J. Nielsen, Birthe B. Holm, Daniel Lewi, Patricia Durão, Heather Band, Andrea West, Marinda J. A. Hammann, Marije C. Effing-Boele, Hanka K. Dekker, Amy Hunter, Amy Simpson, Gumei Liu, Katherine Needleman, Debra Lewis, Gayatri Rao, Martin J. Whitaker, Raquel Castro
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 11, Iss S1, Pp 1-9 (2016)
Table of contents O1 The European Social Preferences Measurement (ESPM) study project: social cost value analysis, budget impact, commercial life cycle revenue management, and the economics of biopharmaceutical Research & Development (R&D) Michael Sc
Externí odkaz:
https://doaj.org/article/e08ac2370ca64d8296b3c0c96288eec5
Autor:
Heather Band, Loïc Favennec, Philip Wood, Christina Olsen, Oriol de Solà Morales, Mondher Toumi, Keith Tolley, Raquel Castro, Martin Laimer, Ulf Persson, Anne-Grethe Lauridsen, Hanka Dekker, Amy Hunter, Helmut Hintner, Nabarun Dasgupta, Mohanad Fors, James R. Bonham, Katherine I. Miller Needleman, Marinda J. A. Hammann, Christa van Kan, Simon Day, Gumei Liu, Vesna Stojmirova Aleksovska, Thomas J. Croce, Barbara Bori, Antonio Asero, Marije C. Effing-Boele, Anja Diem, Birthe B Holm, Réjean Hébert, Andrea West, Peter Kolominsky-Rabas, Deborah A. Marshall, Silvana Venturella, Harry Telser, Martin J. Whitaker, Jonas Fransson, Michael Schlander, Vincenzo Papa, Carrie E. Pierce, Gayatri R. Rao, Maarten J. Postma, Steven Simoens, Amy Simpson, Patricia Durão, Daniel Lewi, Melissa Jordan, Stephanie J. Nielsen, Michela Salvador, Jeff Richardson, Søren Holm, Alan Krol, Debra Y. Lewis, Erik Nord, Silvio Garattini, Joanne Higgs, Emilie Prazakova, Ritchie Head
Publikováno v:
Orphanet Journal of Rare Diseases. 11
O1 The European Social Preferences Measurement (ESPM) study project: social cost value analysis, budget impact, commercial life cycle revenue management, and the economics of biopharmaceutical Research & Development (R&D) Michael Schlander, Soren Hol
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::579e3d4992475c1b375494c9e19b24ce
https://doi.org/10.1186/s13023-016-0515-y
https://doi.org/10.1186/s13023-016-0515-y
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 7, Iss Suppl 2, p A34 (2012)
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases
Having a seriously ill child is intrusive for the entire family. Still, knowledge about how to manage family life for these families is limited, especially when the diagnosis is rare. To offer tools to cope with their situation, Rare Disorders Denmar
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3afc7d32f20853b91f85c7af5d224a03
https://doaj.org/article/e42baca3b40f4b499824eda034f1470f
https://doaj.org/article/e42baca3b40f4b499824eda034f1470f
Autor:
Birthe B Holm
Publikováno v:
Orphanet Journal of Rare Diseases
Rare Diseases Denmark has developed a tool, Social Profiles, to promote the dialogue between the rare disease patients and their social workers conducted. This is more necessary than ever - an interview study during the fall 2013 shows substantial pr
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::25c5469d5e6ea32f4a240642f425ff8e
http://europepmc.org/articles/PMC4249635
http://europepmc.org/articles/PMC4249635
Autor:
Lene Jensen, Birthe B Holm
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 5, Iss Suppl 1, p P14 (2010)
Orphanet Journal of Rare Diseases, Vol 5, Iss Suppl 1, p P14 (2010)
Rare disease patients and their families often navigate in unknown territory. Even if medical guidelines for their disease exist, they normally do not mention social and educational matters and the public services in these areas are often inadequate.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b55a943e33c277323692190638a0cd37
Publikováno v:
Orphanet Journal of Rare Diseases
Knowledge society In the knowledge society of today, scientific knowledge is considered as objective and based on evidence, while experience-based knowledge which relates to patients and their organisations is considered as subjective, based on emoti
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::97c5ff85fc9a1370213cdcf117e2fc5e