Zobrazeno 1 - 10
of 15
pro vyhledávání: '"Beverley Power"'
Autor:
Beverley Power
Publikováno v:
Frontiers in Pediatrics, Vol 11 (2023)
BackgroundCongenital Diaphragmatic Hernia is a malformation of the diaphragm resulting in ongoing clinical symptoms and problems. Mortality remains high, particularly where there are other issues involved. Tracking a patient throughout their lifetime
Externí odkaz:
https://doaj.org/article/e1eb773418cc4de7914142468d55fdff
Autor:
Clare Skerritt, Massimo Caputo, Andrew Mumford, Karen Luyt, Mai Baquedano, Andrew R Bamber, Catherine Bradshaw, Deborah Lawlor, Samantha E de Jesus, Stuart Mires, Beverley Power, Hannah Gill, Tim Overton
Publikováno v:
BMJ Open, Vol 12, Iss 12 (2022)
Introduction Congenital anomalies affect over 2% of pregnancies. Surgical advances have reduced mortality and improved survival for patients with congenital anomalies potentially requiring surgical (CAPRS) intervention. However, our understanding of
Externí odkaz:
https://doaj.org/article/e336b2ee8a3c4b8699ffddb82bde5c87
Autor:
Simen Vergote, Felix De Bie, Jan Bosteels, Holly Hedrick, James Duffy, Beverley Power, Alexandra Benachi, Paolo De Coppi, Caraciolo Fernandes, Kevin Lally, Irwin Reiss, Jan Deprest
Publikováno v:
Trials, Vol 22, Iss 1, Pp 1-7 (2021)
Abstract Background Congenital diaphragmatic hernia (CDH) is, depending of the severity, a birth defect associated with significant mortality and morbidity. Prenatal screening by ultrasound may detect this condition and comprehensive assessment of se
Externí odkaz:
https://doaj.org/article/43261585d01e45b3adf5a5be06487c97
Autor:
Aymara Taillieu, Jan Deprest, Simen Vergote, Anne Debeer, Francesca Maria Russo, Beverley Power, Frank Meijer, Neeltje Crombag
Publikováno v:
Prenatal diagnosis.
To identify Patient-reported outcomes (PROs) for parents with a lived experience of a prenatal diagnosis of isolated congenital diaphragmatic hernia (CDH).Thematic analysis of in-depth interview transcripts.Interviews (n= 26) identified 11 PROs, for
Autor:
Neeltje Crombag, Vanessa Ceulemans, Anne Debeer, Francesca Russo, Bieke Bollen, Beverley Power, Frank Meijer, Nancy Henrotte, Kathleen Depré, Josefien Laurent, Jan Deprest
Publikováno v:
Prenatal diagnosisREFERENCES. 42(3)
To define the dimensions of patient-centeredness of prenatal care for parents who had a fetus with isolated congenital diaphragmatic hernia (CDH) by exploring their values, experiences, needs and preferences.In-depth interviews with parents who were
Autor:
Francesc Figueras, Kurt Hecher, Eduard Gratacós, Alan W. Flake, Kathleen J. Beach, Gillian Yaz, Mehali Patel, Anna L. David, Helena M. Gardiner, Karel Marsal, Albert Batista, Christoph Lees, James Power, Steve Thornton, Anke Diemert, Jan Deprest, Rebecca Spencer, Helen Turier, Neil Marlow, Magnus Westgren, Gill Norman, Donald Peebles, Beverley Power, Fatima Crispi, Marcy Powell, Jana Brodszki
Publikováno v:
PRENATAL DIAGNOSIS
r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
instname
Spencer, R N, Hecher, K, Norman, G, Marsal, K, Deprest, J, Flake, A, Figueras, F, Lees, C, Thornton, S, Beach, K, Powell, M, Crispi, F, Diemert, A, Marlow, N, Peebles, D M, Westgren, M, Gardiner, H, Gratacos, E, Brodszki, J, Batista, A, Turier, H, Patel, M, Power, B, Power, J, Yaz, G & David, A L 2021, ' Development of standard definitions and grading for Maternal and Fetal Adverse Event Terminology ', Prenatal diagnosis . https://doi.org/10.1002/pd.6047
r-FSJD. Repositorio Institucional de Producción Científica de la Fundació Sant Joan de Déu
instname
Spencer, R N, Hecher, K, Norman, G, Marsal, K, Deprest, J, Flake, A, Figueras, F, Lees, C, Thornton, S, Beach, K, Powell, M, Crispi, F, Diemert, A, Marlow, N, Peebles, D M, Westgren, M, Gardiner, H, Gratacos, E, Brodszki, J, Batista, A, Turier, H, Patel, M, Power, B, Power, J, Yaz, G & David, A L 2021, ' Development of standard definitions and grading for Maternal and Fetal Adverse Event Terminology ', Prenatal diagnosis . https://doi.org/10.1002/pd.6047
OBJECTIVE: Adverse event (AE) monitoring is central to assessing therapeutic safety. The lack of a comprehensive framework to define and grade maternal and fetal AEs in pregnancy trials severely limits understanding risks in pregnant women. We create
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d5f7c167ca0c01c66dbc1c92a7c4bb2f
http://fundanet.fsjd.org/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=20117
http://fundanet.fsjd.org/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=20117
Publikováno v:
Pediatric Surgery International
Background CDH UK is a registered charity governed by a volunteer committee and providing informal support to patients, families and healthcare workers affected directly or indirectly with congenital diaphragmatic hernia (CDH) internationally. This i
Autor:
Stuart Mires, Samantha E de Jesus, Andrew R Bamber, Andrew Mumford, Beverley Power, Catherine Bradshaw, Deborah Lawlor, Hannah Gill, Karen Luyt, Mai Baquedano, Tim Overton, Massimo Caputo, Clare Skerritt
Publikováno v:
Mires, S, de Jesus, S E, Bamber, A R, Mumford, A, Power, B, Bradshaw, C, Lawlor, D, Gill, H, Luyt, K, Baquedano, M, Overton, T, Caputo, M & Skerritt, C 2022, ' Surgical-PEARL protocol : a multicentre prospective cohort study exploring aetiology, management and outcomes for patients with congenital anomalies potentially requiring surgical intervention ', BMJ Open, vol. 12, no. 12, e066480 . https://doi.org/10.1136/bmjopen-2022-066480
IntroductionCongenital anomalies affect over 2% of pregnancies. Surgical advances have reduced mortality and improved survival for patients with congenital anomalies potentially requiring surgical (CAPRS) intervention. However, our understanding of a
Autor:
Holly L. Hedrick, Paolo De Coppi, Simen Vergote, Alexandra Benachi, Felix De Bie, Jan Bosteels, Caraciolo J. Fernandes, Jan Deprest, James Duffy, Kevin P. Lally, Beverley Power, Irwin K.M. Reiss
Publikováno v:
Trials
Trials, Vol 22, Iss 1, Pp 1-7 (2021)
Trials, 22(1):158. BioMed Central Ltd.
Trials, Vol 22, Iss 1, Pp 1-7 (2021)
Trials, 22(1):158. BioMed Central Ltd.
Background Congenital diaphragmatic hernia (CDH) is, depending of the severity, a birth defect associated with significant mortality and morbidity. Prenatal screening by ultrasound may detect this condition and comprehensive assessment of severity is
Publikováno v:
Lancet (London, England). 397(10268)