Zobrazeno 1 - 6
of 6
pro vyhledávání: '"Benjamin Ruban-Fell"'
Autor:
Paul Gissen, Nicola Specchio, Andrew Olaye, Mohit Jain, Thomas Butt, Wrik Ghosh, Benjamin Ruban-Fell, Annabel Griffiths, Charlotte Camp, Zlatko Sisic, Christoph Schwering, Eva Wibbeler, Marina Trivisano, Laura Lee, Miriam Nickel, Amanda Mortensen, Angela Schulz
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-13 (2021)
Abstract Background Utility studies enable preference-based quantification of a disease’s impact on patients’ health-related quality of life (HRQoL). It is often difficult to obtain utility values for rare, neurodegenerative conditions due to cog
Externí odkaz:
https://doaj.org/article/05ce73df0f3c470db18d58551b88cab3
Publikováno v:
Brain and Behavior, Vol 12, Iss 7, Pp n/a-n/a (2022)
Abstract Introduction The onset of severe, drug‐resistant seizures in early childhood is characteristic of the rare epileptic disorders Lennox‐Gastaut syndrome (LGS), Dravet syndrome (DS), and CDKL5 deficiency disorder (CDD) and is frequently obs
Externí odkaz:
https://doaj.org/article/fa82877854094915aa0d8045e437067d
Autor:
Benjamin Ruban-Fell, George Attilakos, Tao Haskins-Coulter, Christopher Hyde, Jeanette Kusel, Anne Mackie, Oliver Rivero-Arias, Basky Thilaganathan, Nigel Thomson, Cristina Visintin, John Marshall
Publikováno v:
PLoS ONE, Vol 17, Iss 12, p e0279229 (2022)
The objective of this exploratory modelling study was to estimate the effects of second-trimester, ultrasound-based antenatal detection strategies for vasa praevia (VP) in a hypothetical cohort of pregnant women. For this, a decision-analytic tree mo
Externí odkaz:
https://doaj.org/article/82b0df6815b245348c8d0cb689ac8b58
Autor:
Richard F. Chin, Ana Mingorance, Benjamin Ruban-Fell, Isabelle Newell, Jenni Evans, Kishan Vyas, Charlotte Nortvedt, Sam Amin
Publikováno v:
Frontiers in Neurology, Vol 12 (2021)
Background: Dravet syndrome (DS), Lennox-Gastaut syndrome (LGS) and CDKL5 deficiency disorder (CDD) are rare epileptic conditions, characterised by drug-resistant seizures. Seizure management in these patients requires careful therapy selection. This
Externí odkaz:
https://doaj.org/article/935c122a46d6484fbf4bbe58c070217c
Autor:
Benjamin Ruban-Fell, George Attilakos, Tao Haskins-Coulter, Christopher Hyde, Jeanette Kusel, Anne Mackie, Oliver Rivero-Arias, Basky Thilaganathan, Nigel Thomson, Cristina Visintin, John Marshall
The objective of this exploratory modelling study was to estimate the effects of second-trimester, ultrasound-based antenatal detection strategies for vasa praevia (VP) in a hypothetical cohort of pregnant women. For this, a decision-analytic tree mo
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7a802639cbb8e6692dd55f3356bc2e42
https://doi.org/10.1371/journal.pone.0279229
https://doi.org/10.1371/journal.pone.0279229
Autor:
Thomas Butt, Andrew Olaye, Mohit Jain, Nicola Specchio, Marina Trivisano, Laura Lee, Charlotte Camp, Eva Wibbeler, Benjamin Ruban-Fell, Amanda Mortensen, A Griffiths, Christoph Schwering, Zlatko Sisic, Angela Schulz, Miriam Nickel, W Ghosh, Paul Gissen
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-13 (2021)
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-13 (2021)
Background Utility studies enable preference-based quantification of a disease’s impact on patients’ health-related quality of life (HRQoL). It is often difficult to obtain utility values for rare, neurodegenerative conditions due to cognitive bu