Multiple sclerosis registries in Europe - An updated mapping survey.

Autor: Glaser A; Department of Clinical Neuroscience and Centrum for Molecular Medicine at Karolinska, Institutet, Stockholm, Sweden. Electronic address: anna.glaser@ki.se., Stahmann A; MS-Register of the German MS-Society, MS Forschungs- und Projektentwicklungs-gGmbH, Hannover, Germany., Meissner T; University Medical Center Göttingen, Department of Medical Informatics, Göttingen, Germany., Flachenecker P; Neurological Rehabilitation Center Quellenhof, Bad Wildbad, Germany., Horáková D; Department of Neurology and Center of Clinical Neuroscience, First Faculty of Medicine, Charles University and General University Hospital in Prague, Czech Republic., Zaratin P; Italian Multiple Sclerosis Foundation, Via Operai 40, Genoa 16149, Italy; MS International Federation, London, UK., Brichetto G; MS International Federation, London, UK; Scientific Research Area, Italian MS Society, Genoa, Italy., Pugliatti M; Department of Biomedical and Surgical Sciences, University of Ferrara, Italy; S. Anna University Hospital, Via Aldo Moro 8 - 1C3, 44124 Ferrara, (FE), Italy., Rienhoff O; University Medical Center Göttingen, Department of Medical Informatics, Göttingen, Germany., Vukusic S; Hospices Civils de Lyon, Service de Neurologie, sclérose en plaques, pathologies de la myéline et neuro-inflammation, F-69677 Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 et CNRS UMR5292, F-69003, Lyon, France; Université de Lyon, Université Claude Bernard Lyon 1, F-69000, Lyon, France; Eugène Devic EDMUS Foundation against Multiple Sclerosis, state-approved foundation, F-69677 Bron, France., de Giacomoni AC; Hospices Civils de Lyon, Service de Neurologie, sclérose en plaques, pathologies de la myéline et neuro-inflammation, F-69677 Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 et CNRS UMR5292, F-69003, Lyon, France; Université de Lyon, Université Claude Bernard Lyon 1, F-69000, Lyon, France; Eugène Devic EDMUS Foundation against Multiple Sclerosis, state-approved foundation, F-69677 Bron, France., Battaglia MA; Italian Multiple Sclerosis Foundation, Via Operai 40, Genoa 16149, Italy; MS International Federation, London, UK; Department of Life Sciences, University of Siena, Italy., Brola W; Department of Neurology, Specialist Hospital, Końskie, Poland; The Faculty of Medicine and Health Science, Institute of Physiotherapy, Jan Kochanowski University, Kielce, Poland., Butzkueven H; Central Clinical School, Alfred Centre, Monash University, 99 Commercial Rd, Melbourne, VIC 3004, Australia., Casey R; Hospices Civils de Lyon, Service de Neurologie, sclérose en plaques, pathologies de la myéline et neuro-inflammation, F-69677 Bron, France; Observatoire Français de la Sclérose en Plaques, Centre de Recherche en Neurosciences de Lyon, INSERM 1028 et CNRS UMR5292, F-69003, Lyon, France; Université de Lyon, Université Claude Bernard Lyon 1, F-69000, Lyon, France; Eugène Devic EDMUS Foundation against Multiple Sclerosis, state-approved foundation, F-69677 Bron, France., Drulovic J; Clinic of Neurology, CCS, Faculty of Medicine, University of Belgrade, Belgrade, Serbia., Eichstädt K; MS-Register of the German MS-Society, MS Forschungs- und Projektentwicklungs-gGmbH, Hannover, Germany., Hellwig K; Department of Neurology, St. Josef-Hospital Bochum, Ruhr University Bochum, Bochum, Germany., Iaffaldano P; Department of Basic Medical Sciences, Neurosciences and Sense Organs, University of Bari 'Aldo Moro', Italy., Ioannidou E; The Greek Multiple Sclerosis Society, Thessaloniki, Greece., Kuhle J; Neurology, Departments of Medicine, Biomedicine and Clinical Research, University Hospital Basel, University of Basel, Switzerland., Lycke K; Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden., Magyari M; The Danish Multiple Sclerosis Registry, Department of Neurology, Rigshospitalet, University of Copenhagen, Denmark., Malbaša T; Association of multiple sclerosis societies of Croatia, Trnsko 34, p.p.74, Zagreb 10020, Croatia., Middleton R; Swansea University Medical School, SWANSEA SA2 8PP, United Kingdom., Myhr KM; Department of Clinical Medicine, University of Bergen, Norway; The Norwegian MS-Registry and Biobank, Department of Neurology, Haukeland University Hospital, Bergen, Norway., Notas K; The Greek Multiple Sclerosis Society, Thessaloniki, Greece; Aristotle University of Thessaloniki, Greece., Orologas A; Aristotle University of Thessaloniki, Greece., Otero-Romero S; Preventive Medicine and Epidemiology Department, Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelona, Barcelona, Spain; Department of Neurology / Neuroimmunology, Multiple Sclerosis Centre of Catalonia (Cemcat), Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelona, Barcelona, Spain., Pekmezovic T; Institute of Epidemiology, Faculty of Medicine, University of Belgrade, Serbia., Sastre-Garriga J; Department of Neurology / Neuroimmunology, Multiple Sclerosis Centre of Catalonia (Cemcat), Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelona, Barcelona, Spain., Seeldrayers P; President of the Belgian Study Group for Multiple Sclerosis, Belgium., Soilu-Hänninen M; Division of Clinical Neurosciences, Turku University Hospital and University of Turku, Turku, Finland., Stawiarz L; Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden., Trojano M; Department of Basic Medical Sciences, Neurosciences and Sense Organs, University of Bari 'Aldo Moro', Italy., Ziemssen T; Department of Neurology, MS Center Dresden, Center of Clinical Neuroscience, University Hospital Carl Gustav Carus, Dresden University of Technology, Germany., Hillert J; Department of Clinical Neuroscience and Centrum for Molecular Medicine at Karolinska, Institutet, Stockholm, Sweden., Thalheim C; European Multiple Sclerosis Platform (EMSP), Schaerbeek, Belgium.

Publikováno v: Multiple sclerosis and related disorders [Mult Scler Relat Disord] 2019 Jan; Vol. 27, pp. 171-178. Date of Electronic Publication: 2018 Oct 04.