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pro vyhledávání: '"Becky Futers"'
Autor:
Astrid Janssens, Danielle Drachmann, Kristy Barnes-Cullen, Austin Carrigg, Henrik Thybo Christesen, Becky Futers, Yvette Ollada Lavery, Tiffany Palms, Jacob Sten Petersen, Pratik Shah, Paul Thornton, Joseph Wolfsdorf
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-15 (2024)
Abstract Background In rare diseases, limited access to services and rare disease experts may force families to act as medical advocates for their child; they can volunteer to support clinician-initiated research or initiate and lead research themsel
Externí odkaz:
https://doaj.org/article/f8f4cef7cbb940a5b123b0b6e96f438d
