Zobrazeno 1 - 10
of 20
pro vyhledávání: '"Barbara Farlow"'
Publikováno v:
World Journal for Pediatric and Congenital Heart Surgery. 13:72-76
This report is informed by the themes of the session Trisomy 13/18, Exploring the Changing Landscape of Interventions at NeoHeart 2020—The Fifth International Conference of the Neonatal Heart Society. The faculty reviewed the present evidence in th
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::81ab862d64396b2a811af4e3006cf63f
https://doi.org/10.1177/21501351211044132
https://doi.org/10.1177/21501351211044132
Publikováno v:
Seminars in Perinatology. 40:571-577
Medium- and long-term outcomes have been collected and described among survivors of neonatal intensive care units for decades, for a number of purposes: (1) quality control within units, (2) comparisons of outcomes between NICUs, (3) clinical trials
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::52465919577a2f95671bbac5ddd94698
https://doi.org/10.1053/j.semperi.2016.09.009
https://doi.org/10.1053/j.semperi.2016.09.009
Publikováno v:
American Journal of Medical Genetics Part C: Seminars in Medical Genetics. 172:279-287
Trisomy 13 and 18 are life-limiting conditions for which a palliative approach is frequently recommended. The objective of this study was to examine parental goals/decisions, the length of life of their child and factors associated with survival. Par
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::08f6ca35c0c63f87c598d46fa38654b0
https://doi.org/10.1002/ajmg.c.31526
https://doi.org/10.1002/ajmg.c.31526
Autor:
Annie Janvier, Barbara Farlow
Publikováno v:
Seminars in Fetal and Neonatal Medicine. 20:436-441
The ethics of neonatal research are complex because vulnerable new parents are asked to provide consent on behalf of their fragile baby. Whereas clinical neonatal care has evolved to value personalized and shared decision-making, the goal of research
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e1025613e4f884d212a32840163e2f71
https://doi.org/10.1016/j.siny.2015.10.003
https://doi.org/10.1016/j.siny.2015.10.003
Publikováno v:
ARCHIVES OF DISEASE IN CHILDHOOD-FETAL AND NEONATAL EDITION, 102(2), F96-F97. BMJ PUBLISHING GROUP
The majority of neonatal deaths occur after a decision to limit life-sustaining interventions (LSIs).1 Decisions on when to withhold/withdraw LSIs in fragile neonates are among the most difficult decisions in paediatric practice. Two rigorous investi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b8b5b4534ebb5558d4cce4e5ba391374
https://research.rug.nl/en/publications/8de0bc95-7ccb-45c9-ad08-8ecc5a8e0021
https://research.rug.nl/en/publications/8de0bc95-7ccb-45c9-ad08-8ecc5a8e0021
Publikováno v:
American Journal of Medical Genetics Part A. 164:308-318
Trisomy 13 and trisomy 18 (T13-18) are associated with high rates of perinatal death and with severe disability among survivors. Prenatal diagnosis (PND) may lead many women to terminate their pregnancy but some women choose to continue their pregnan
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::94f11b9251021a69018e8e5d89a0c169
https://doi.org/10.1002/ajmg.a.36298
https://doi.org/10.1002/ajmg.a.36298
Publikováno v:
Seminars in perinatology. 40(4)
The objective is to examine whether cardiac surgery should be considered for children with trisomy 13 or 18 (T13 or 18).T13 or 18 were previously referred to as "lethal" conditions due to high mortality rates and severe disability among survivors. In
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::79a22754791e6f1eae26c06e6e85af17
https://pubmed.ncbi.nlm.nih.gov/26847083
https://pubmed.ncbi.nlm.nih.gov/26847083
Publikováno v:
Pediatrics. 130:293-298
BACKGROUND: Children with trisomy 13 and trisomy 18 (T13-18) have low survival rates and survivors have significant disabilities. For these reasons, interventions are generally not recommended by providers. After a diagnosis, parents may turn to supp
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5ef2b920f43e00df66dd0bb39e4f163e
https://doi.org/10.1542/peds.2012-0151
https://doi.org/10.1542/peds.2012-0151
Publikováno v:
Pediatrics. 127:754-759
Decisions for critically ill infants with trisomy 18 raise thorny issues about values, futility, the burdens of treatment, cost-effectiveness, and justice. We presented the case of an infant with trisomy 18 to 2 neonatologists with experience in clin
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c574fbd6cd332274b07cc43e76237d11
https://doi.org/10.1542/peds.2010-1971
https://doi.org/10.1542/peds.2010-1971
Autor:
Jamie R, Wingate, Iki, Adachi, Kathleen, Fenton, Anne, Janvier, Barbara, Farlow, Emad B, Mossad
Publikováno v:
Journal of cardiothoracic and vascular anesthesia. 28(6)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::0269cbefb0974ab7f9856dc0298df101
https://pubmed.ncbi.nlm.nih.gov/25263774
https://pubmed.ncbi.nlm.nih.gov/25263774