Zobrazeno 1 - 10
of 799
pro vyhledávání: '"Barbara A. Biesecker"'
Autor:
Wess, Robert
Publikováno v:
Rhetoric Society Quarterly, 1999 Apr 01. 29(2), 83-86.
Externí odkaz:
https://www.jstor.org/stable/3886089
Autor:
Hanan, Josh
Publikováno v:
Rhetoric and Public Affairs, 2011 Jul 01. 14(2), 394-397.
Externí odkaz:
https://www.jstor.org/stable/41940546
Autor:
Oksana Kutsa, Sara M. Andrews, Erin Mallonee, Angela Gwaltney, Alissa Creamer, Paul K. J. Han, Melissa Raspa, Barbara B. Biesecker
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-13 (2022)
Abstract Background Severe combined immunodeficiency (SCID) is a group of rare genetic disorders that cause disruption in immune system functioning. Parents of children with SCID experience many uncertainties related to their child’s diagnosis, tre
Externí odkaz:
https://doaj.org/article/2cd48ce294244d43ac7dbdd46c39caea
Autor:
Holly L. Peay, Angela You Gwaltney, Rebecca Moultrie, Heidi Cope, Beth Lincoln‐ Boyea, Katherine Ackerman Porter, Martin Duparc, Amir A. Alexander, Barbara B. Biesecker, Aminah Isiaq, Jennifer Check, Lisa Gehtland, Donald B. Bailey, Nancy M. P. King
Publikováno v:
Frontiers in Genetics, Vol 13 (2022)
A challenge in implementing population-based DNA screening is providing sufficient information, that is, understandable and acceptable, and that supports informed decision making. Early Check is an expanded newborn screening study offered to mothers/
Externí odkaz:
https://doaj.org/article/af819cd8ed5443768ac382dd091662d9
Autor:
Katrina A.B. Goddard, Frank A.N. Angelo, Sara L. Ackerman, Jonathan S. Berg, Barbara B. Biesecker, Maria I. Danila, Kelly M. East, Lucia A. Hindorff, Carol R. Horowitz, Jessica Ezzell Hunter, Galen Joseph, Sara J. Knight, Amy McGuire, Kristin R. Muessig, Jeffrey Ou, Simon Outram, Elizabeth J. Rahn, Michelle A. Ramos, Christine Rini, Jill O. Robinson, Hadley Stevens Smith, Margaret Waltz, Sandra Soo-Jin Lee
Publikováno v:
Journal of Clinical and Translational Science, Vol 4, Pp 537-546 (2020)
Abstract Introduction: Implementation of genome-scale sequencing in clinical care has significant challenges: the technology is highly dimensional with many kinds of potential results, results interpretation and delivery require expertise and coordi
Externí odkaz:
https://doaj.org/article/43c3fbd41791445bafba79ac6cd6e886
Autor:
Jehannine Austin, William G. Honer
Publikováno v:
Clinical Genetics. 69:94-95
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::7160c08d75360c08883110b75f551c03
https://doi.org/10.1111/j.1399-0004.2006.00554b.x
https://doi.org/10.1111/j.1399-0004.2006.00554b.x
Autor:
Nicci Bartley, Christine E. Napier, Zoe Butt, Timothy E. Schlub, Megan C. Best, Barbara B. Biesecker, Mandy L. Ballinger, Phyllis Butow
Publikováno v:
Frontiers in Psychology, Vol 12 (2021)
There is limited knowledge about cancer patients' experiences of uncertainty while waiting for genome sequencing results, and whether prolonged uncertainty contributes to psychological factors in this context. To investigate uncertainty in patients w
Externí odkaz:
https://doaj.org/article/6bc696ac2f41499f9c00511948888747
Autor:
Heidi Cope, Beth Lincoln‐Boyea, Angela You Gwaltney, Barbara B. Biesecker, Rebecca Moultrie, Amir A. Alexander, Nancy M. P. King, Jennifer Check, Allyson Corbo, Janice Tzeng, Katherine Ackerman Porter, Holly L. Peay
Publikováno v:
Clinical Genetics. 103:672-680
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::a7e5907c002d3ef70720b253ac939aaf
https://doi.org/10.1111/cge.14325
https://doi.org/10.1111/cge.14325
Autor:
Amanda M. Gutierrez, Jill O. Robinson, Simon M. Outram, Hadley S. Smith, Stephanie A. Kraft, Katherine E. Donohue, Barbara B. Biesecker, Kyle B. Brothers, Flavia Chen, Benyam Hailu, Lucia A. Hindorff, Hannah Hoban, Rebecca L. Hsu, Sara J. Knight, Barbara A. Koenig, Katie L. Lewis, Kristen Hassmiller Lich, Julianne M. O’Daniel, Sonia Okuyama, Gail E. Tomlinson, Margaret Waltz, Benjamin S. Wilfond, Sara L. Ackerman, Mary A. Majumder
Publikováno v:
Journal of Clinical and Translational Science, Vol 5 (2021)
Abstract Introduction: Ensuring equitable access to health care is a widely agreed-upon goal in medicine, yet access to care is a multidimensional concept that is difficult to measure. Although frameworks exist to evaluate access to care generally,
Externí odkaz:
https://doaj.org/article/4a556b8b5aff4fabb66544725cf2bc0b