Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development

Autor: Jenny T. van der Steen, Natashe Lemos Dekker, Marie-José H. E. Gijsberts, Laura H. Vermeulen, Margje M. Mahler, B. Anne-Mei The

Publikováno v: BMC Palliative Care, Vol 16, Iss 1, Pp 1-14 (2017)

Abstract Background When entering the dying phase, the nature of physical, psychosocial and spiritual care needs of people with dementia and their families may change. Our objective was to understand what needs to be in place to develop optimal palli

Externí odkaz: https://doaj.org/article/46183d9de94e45c183eb0a65c82b1a6c

Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success

Autor: Jenny T. van der Steen, Carolien A. van Leussen, Joanne Ballentine, Loretta Gribben, Joanne Reid, Felicity Hasson, Kevin Brazil, B. Anne-Mei The, Dorry McLaughlin

Publikováno v: Journal of Alzheimer's Disease, 91, 551-557
Journal of Alzheimer's Disease, 91, 2, pp. 551-557
van der Steen, J T, van Leussen, C A, Ballentine, J, Gribben, L, Reid, J, Hasson, F, Brazil, K, The, B A-M & McLaughlin, D 2023, ' Implementing palliative care teams specialized in dementia in two countries: experiences of failure and success ', JAD: Journal of Alzheimer's Disease, vol. 91, no. 2, pp. 551-557 . https://doi.org/10.3233/JAD-220772

Much is known about palliative care needs of persons with dementia and their family. Less is known about how to successfully implement models that address those needs. We present specialist models in the Netherlands (2017-2018) and Northern Ireland (

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dbb2d5dee6c0b7d2d4eea007bf3dd28c
http://hdl.handle.net/2066/290133

sj-pdf-2-pmj-10.1177_02692163211030831 – Supplemental material for Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005–2019

Autor: Klapwijk, Maartje S, Bolt, Sascha R, Boogaard, Jannie A (Nienke), ten Koppel, Maud, Gijsberts, Marie-José HE, van Leussen, Carolien, The, B. Anne-Mei, Meijers, Judith MM, Schols, Jos MGA, Pasman, H Roeline W, Onwuteaka-Philipsen, Bregje D, Deliens, Luc, Van den Block, Lieve, Mertens, Bart, de Vet, Henrica CW, Caljouw, Monique AA, Achterberg, Wilco P, van der Steen, Jenny

Supplemental material, sj-pdf-2-pmj-10.1177_02692163211030831 for Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005–2019 by Maartje S Klapwijk, Sascha R Bolt, Jannie A (Nienke) Boogaard,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::4a6cb0cd5ed00bf3f0a8c68c7ece0948

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Truth telling and truthfulness in the care for patients with advanced dementia: an ethnographic study in Dutch nursing homes

Autor: Cees M.P.M. Hertogh, B. Anne Mei The, Bere M.L. Miesen, Jan A. Eefsting

Publikováno v: Social sciencemedicine (1982). 59(8)

The purpose of this study was to investigate and analyze the moral tension that exists in the care for demented nursing home patients, between the principle of respect for autonomy and the value that is attached to respect for the subjective world of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::54ec023e309df5aa64209a6c1a83010d
https://pubmed.ncbi.nlm.nih.gov/15279925