Zobrazeno 1 - 2
of 2
pro vyhledávání: '"Aysha Stroobach"'
Autor:
Jessica Keeley, Aysha Stroobach, Meg Huston, Andrew Wilson, Jenny Lam, Adelaide Withers, Cornelia van Veldhuisen, Gareth Baynam, Jenny Downs
Publikováno v:
Rare, Vol 2, Iss , Pp 100039- (2024)
People living with rare diseases had a high risk of negative health outcomes due to COVID-19. Pandemic preparedness will ensure best practice procedures and optimal outcomes during future pandemic events. This paper sought to understand the needs of
Externí odkaz:
https://doaj.org/article/637ce87cd5384d2f967dad04862a7fd9
Publikováno v:
Developmental Medicine & Child Neurology. 65:664-673
This study explored how children and adolescents with a neuromuscular disorder (NMD) and their parents experienced barriers and enablers to the child's participation.This was a qualitative descriptive design. Fourteen semi-structured interviews were
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cdb9db8d2b4235f7c7991d2842195c32
https://doi.org/10.1111/dmcn.15437
https://doi.org/10.1111/dmcn.15437