Use of a mobile application for self-management of pancreatic enzyme replacement therapy is associated with improved gastro-intestinal related quality of life in children with Cystic Fibrosis

Autor: Boon, M., Calvo-Lerma, J., Claes, I., Havermans, T., Asseiceira, I., Bulfamante, A., Garriga, M., Masip, E., van Schijndel, B.A.M., Fornes, V., Barreto, C., Colombo, C., Crespo, P., Vicente, S., Janssens, H., Hulst, J., Witters, P., Nobili, R., Pereira, L., Ruperto, M., Van der Wiel, E., Mainz, J.G., De Boeck, K., Ribes-Koninckx, C.

Publikováno v: In Journal of Cystic Fibrosis July 2020 19(4):562-568

Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents

Autor: Boon M, Claes I, Havermans T, Fornés-Ferrer V, Calvo-Lerma J, Asseiceira I, Bulfamante A, Garriga M, Masip E, Woodcock S, Walet S, Barreto C, Colombo C, Crespo P, Van der Wiel E, Hulst J, Martinez-Barona, S, Nobili R, Pereira L, Ruperto M, Vicente S, De Boeck K, Ribes-Koninckx C, MyCyFAPP consortium

Publikováno v: PLoS ONE
Plos One
r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
instname
PLoS ONE, Vol 14, Iss 12, p e0225004 (2019)
PLoS One (print), 14(12):e0225004. Public Library of Science

BACKGROUND: Most patients with cystic fibrosis (CF) suffer from pancreatic insufficiency, leading to fat malabsorption, malnutrition and abdominal discomfort. Until recently, no specific tool was available for assessing gastro-intestinal related qual

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0a9ab077fdac8294eb0c3b31ed2fdb17
http://europepmc.org/articles/PMC6924691

Nutritional status, nutrient intake and use of enzyme supplements in paediatric patients with Cystic Fibrosis; a European multicentre study with reference to current guidelines

Autor: Calvo-Leima, J, Hulst, JM, Asseiceira, I, Claes, I, Garriga, M, Colombo, C, Fornes, V, Woodcock, S, Martins, T, Boon, M, Ruperto, M, Walet, S, Speziali, C, Witters, P, Masip, E, Barreto, C, de Boeck, K, Ribes-Koninckx, C, MyCyFAPP Project

Publikováno v: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
instname

Background: The New European guidelines have established the most updated recommendations on nutrition and pancreatic enzyme replacement therapy (PERT) in CF. In the context of MyCyFAPP project - a European study in children with CF aimed at developi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=RECOLECTA___::5e1fa01e49ac8c6a87def9fd9b89a3b3
https://fundanet.iislafe.san.gva.es/publicaciones/ProdCientif/PublicacionFrw.aspx?id=5970

P317 Nutritional status and body composition in a cystic fibrosis population: comparison with a healthy population

Autor: Martins, T., Vaz, A.R., Asseiceira, I., Mexia, S., Pereira, L., Lopes, C., Azevedo, P., Barreto, C., Sampaio, D.

Publikováno v: In Journal of Cystic Fibrosis June 2019 18 Supplement 1:S147-S147

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