Pain Frequency and Health Care Utilization Patterns in Women with Sickle Cell Disease Experiencing Menstruation-Associated Pain Crises.

Autor: Segbefia C; Department of Child Health, University of Ghana Medical School, Accra, Ghana.; Department of Child Health, Korle Bu Teaching Hospital, Accra, Ghana., Campbell J; Center for Cancer and Blood Disorders, Children's National Hospital, Washington, District of Columbia, USA., Tartaglione I; Department of Women, Child and General and Specialized Surgery, University of Campania 'Luigi Vanvitelli,' Naples, Italy., Asare EV; Department of Hematology, Korle-Bu Teaching Hospital, Accra, Ghana., Andemariam B; Division of Hematology-Oncology, New England Sickle Cell Institute, Neag Comprehensive Cancer Center, University of Connecticut, Farmington, Connecticut, USA., Zempsky W; Department of Pediatrics, Connecticut Children's Medical Center, Hartford, Connecticut, USA., Colombatti R; Department of Women's and Child Health, Clinic of Pediatric Hematology Oncology, Azienda Ospedaliera-Università di Padova, Padova, Italy., Boatemaa GD; Department of Physiology, University of Ghana Medical School, University of Ghana, Accra, Ghana., Boruchov D; Department of Pediatrics, Connecticut Children's Medical Center, Hartford, Connecticut, USA., Rao S; Department of Child Health, Korle Bu Teaching Hospital, Accra, Ghana., Piccone CM; Department of Pediatric Hematology/Oncology, Rainbow Babies and Children's Hospital, Cleveland, Ohio, USA., Smith A; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Haile H; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Kim E; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Wilson S; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Farooq F; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Urbonya R; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Rivers A; Department of Pediatrics, University of California San Francisco, San Francisco, California, USA., Manwani D; Department of Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, New York, USA., Gai J; Division of Biostatistics and Study Methodology, Children's National Hospital, George Washington University School of Medicine and Health Sciences, Washington, District of Columbia, USA., Sey F; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Inusa B; Department of Pediatric Haematology, Evelina Children's Hospital, Guy's and St. Thomas NHS Trust, College of Nursing, London, United Kingdom., Antwi-Boasiako C; Department of Physiology, University of Ghana Medical School, University of Ghana, Accra, Ghana.; College of Health Nursing, University of Wisconsin-Milwaukee, Milwaukee, Wisconsin, USA., Strunk C; Pediatric Hematology Oncology and Blood and Marrow Transplantation, Cleveland Clinic Foundation, Cleveland, OH, USA., Campbell AD; Center for Cancer and Blood Disorders, Children's National Hospital, Washington, District of Columbia, USA.; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA.; Division of Hematology, Department of Pediatrics, Children's National Hospital, George Washington University School of Medicine and Health Sciences, Washington, District of Columbia, USA.

Publikováno v: Journal of women's health (2002) [J Womens Health (Larchmt)] 2023 Dec; Vol. 32 (12), pp. 1284-1291. Date of Electronic Publication: 2023 Nov 23.

Most adults with severe HbSC disease are not treated with hydroxyurea.

Autor: Ghunney WK; Ghana Institute of Clinical Genetics, Korle-Bu, Accra, Ghana.; Department of Haematology, Korle-Bu Teaching Hospital, Accra, Ghana., Asare EV; Ghana Institute of Clinical Genetics, Korle-Bu, Accra, Ghana.; Department of Haematology, Korle-Bu Teaching Hospital, Accra, Ghana., Ayete-Nyampong JB; Department of Haematology, University of Ghana Medical School, Accra, Ghana., Oppong SA; Department of Obstetrics and Gynaecology, University of Ghana Medical School, Accra, Ghana.; Department of Obstetrics and Gynaecology, Korle-Bu Teaching Hospital, Accra, Ghana., Rodeghier M; Consultatnt Statistician, Chicago, IL., DeBaun MR; Vanderbilt-Meharry Sickle Cell Disease Center of Excellence, Nashville, TN.; Vanderbilt University Medical Center, Nashville, TN., Olayemi E; Ghana Institute of Clinical Genetics, Korle-Bu, Accra, Ghana.; Department of Haematology, Korle-Bu Teaching Hospital, Accra, Ghana.; Department of Haematology, University of Ghana Medical School, Accra, Ghana.

Publikováno v: Blood advances [Blood Adv] 2023 Jul 11; Vol. 7 (13), pp. 3312-3319.

Pain Burden in the CASiRe International Cohort of Sickle Cell Patients: United States and Ghana.

Autor: Zempsky WT; Department of Pediatrics, University of Connecticut School of Medicine, Connecticut Children's Medical Center, Hartford, Connecticut, USA., Yanaros M; University of Connecticut School of Medicine, Farmington, Connecticut, USA., Sayeem M; University of Connecticut School of Medicine, Farmington, Connecticut, USA., Boruchov D; Department of Pediatrics, University of Connecticut School of Medicine, Connecticut Children's Medical Center, Hartford, Connecticut, USA., Piccone CM; Pediatric Hematology/Oncology, Rainbow Babies and Children's Hospital, Cleveland, Ohio, USA., Manwani D; Department of Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, New York, USA., Strunk C; ProMedica Russell J. Ebeid Children's Hospital, Toledo, Ohio, USA., Tartaglione I; Department of Woman, Child and Generalized and Special Surgery, University of Campania 'L. Vanvitelli,' Naples, Italy., Colombatti R; Department of Women's and Children's Health, University of Padua, Padua, Italy., Akatue S; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Oteng B; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Owda A; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Bamfo R; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Wilson S; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Rivers A; UCSF Benioff Children's Hospital Oakland, Oakland, California, USA., Farooq F; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Urbonya R; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA., Boatemaa GD; Department of Physiology, University of Ghana Medical School, Accra, Ghana., Rao S; Department of Child Health, University of Ghana Medical School, Accra, Ghana., Inusa B; Department of Pediatrics, Paediatric Haematology, Guys and St Thomas Hospital, London, UK., Antwi-Boasiako C; Department of Physiology, University of Ghana Medical School, Accra, Ghana.; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Segbefia C; Department of Child Health, University of Ghana Medical School, Accra, Ghana., Sey F; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Andemariam B; New England Sickle Cell Institute, University of Connecticut Health Center, Farmington, Connecticut, USA., Asare EV; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Campbell AD; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, Michigan, USA.; Center for Cancer and Blood Disorders, Children's National Medical Center, Washington, DC, USA.

Publikováno v: Pain medicine (Malden, Mass.) [Pain Med] 2022 Aug 01; Vol. 23 (8), pp. 1379-1386.

Global geographic differences in healthcare utilization for sickle cell disease pain crises in the CASiRe cohort.

Autor: Strunk C; Department of Pediatric Hematology/Oncology, ProMedica Russell J. Ebeid Children's Hospital, Toledo, OH, USA. Electronic address: Crawford.Strunk@ProMedica.org., Tartaglione I; Department of Women, Child and General and Specialized Surgery, University of Campania 'Luigi Vanvitelli', Naples, Italy., Piccone CM; Pediatric Hematology, Carle Foundation Hospital, Urbana, IL, USA., Colombatti R; Clinic of Pediatric Hematology Oncology, Department of Women's and Child Health, Azienda Ospedaliera-Università di Padova, Padova, Italy., Andemariam B; New England Sickle Cell Institute, Division of Hematology-Oncology, Neag Comprehensive Cancer Center, UCONN Health, University of Connecticut, Farmington, CT, USA., Manwani D; Department of Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, USA., Smith A; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Haile H; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Kim E; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Wilson S; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Asare EV; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Rivers A; UCSF Benioff Children's Hospital Oakland, Oakland, CA, USA., Farooq F; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Urbonya R; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Boruchov D; Department of Child Health, Korle Bu Teaching Hospital, Accra, Ghana., Boatemaa GD; Department of Physiology, University of Ghana Medical School, University of Ghana, Accra, Ghana., Perrotta S; Department of Women, Child and General and Specialized Surgery, University of Campania 'Luigi Vanvitelli', Naples, Italy., Ekem I; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Sainati L; Clinic of Pediatric Hematology Oncology, Department of Women's and Child Health, Azienda Ospedaliera-Università di Padova, Padova, Italy., Rao S; Department of Child Health, Korle Bu Teaching Hospital, Accra, Ghana., Zempsky W; Division of Pain and Palliative Care, Department of Pediatrics, University of Connecticut School of Medicine, Connecticut Children's Medical Center, Hartford, CT, USA., Sey F; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Antwi-Boasiako C; Department of Physiology, University of Ghana Medical School, University of Ghana, Accra, Ghana; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Segbefia C; Department of Child Health, Korle Bu Teaching Hospital, Accra, Ghana; Department of Child Health, University of Ghana Medical School, University of Ghana, Accra, Ghana., Inusa B; Department of Pediatric Haematology, Evelina Children's Hospital, Guy's and St. Thomas NHS Trust, London, UK., Campbell AD; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA; Department of Pediatrics, Divison of Hematology, Children's National Hospital, George Washington University School of Medicine Health Sciences, Washington, DC, USA.

Publikováno v: Blood cells, molecules & diseases [Blood Cells Mol Dis] 2021 Dec; Vol. 92, pp. 102612. Date of Electronic Publication: 2021 Sep 21.

Age of first pain crisis and associated complications in the CASiRe international sickle cell disease cohort.

Autor: Tartaglione I; Department of Women, Child and General and Specialized Surgery, University of Campania 'Luigi Vanvitelli', Naples, Italy., Strunk C; ProMedica Russell J. Ebeid Children's Hospital, Toledo, OH, USA., Antwi-Boasiako C; Department of Physiology, University of Ghana Medical School, University of Ghana, Accra, Ghana., Andemariam B; New England Sickle Cell Institute, Division of Hematology-Oncology, Neag Comprehensive Cancer Center, UCONN Health, University of Connecticut, Farmington, CT, USA., Colombatti R; Clinic of Pediatric Hematology Oncology, Department of Women's and Child Health, Azienda Ospedaliera-Università di Padova, Padova, Italy., Asare EV; Department of Hematology, Korle-Bu Teaching Hospital, Accra, Ghana., Piccone CM; Pediatric Hematology/Oncology, Rainbow Babies and Children's Hospital, Cleveland, OH, USA., Manwani D; Department of Pediatrics, Albert Einstein College of Medicine, Children's Hospital at Montefiore, Bronx, NY, USA., Boruchov D; Department of Pediatrics, University of Connecticut School of Medicine, Connecticut Children's Medical Center, Hartford, CT, USA., Tavernier F; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Farooq F; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Akatue S; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Oteng B; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Urbonya R; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Wilson S; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Owda A; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Bamfo R; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA., Boatemaa GD; Department of Physiology, University of Ghana Medical School, University of Ghana, Accra, Ghana., Rao S; Department of Child Health, University of Ghana Medical School Accra, Ghana., Zempsky W; Department of Pediatrics, University of Connecticut School of Medicine, Connecticut Children's Medical Center, Hartford, CT, USA., Sey F; Ghana Institute of Clinical Genetics, Korle Bu Teaching Hospital, Accra, Ghana., Inusa BP; Department of Pediatric Haematology, Evelina Children's Hospital, Guy's and St. Thomas NHS Trust, London, UK., Perrotta S; Department of Women, Child and General and Specialized Surgery, University of Campania 'Luigi Vanvitelli', Naples, Italy., Segbefia C; Department of Child Health, University of Ghana Medical School Accra, Ghana., Campbell AD; Division of Pediatric Hematology/Oncology, University of Michigan, Ann Arbor, MI, USA; Center for Cancer and Blood Disorders, Children's National Medical Center; George Washington University School of Medicine Health Sciences, Washington, DC, USA. Electronic address: acampbell@childrensnational.org.

Publikováno v: Blood cells, molecules & diseases [Blood Cells Mol Dis] 2021 May; Vol. 88, pp. 102531. Date of Electronic Publication: 2021 Jan 02.