Patient involvement in medical research: what patients and physicians learn from each other

Autor: Kalen Young, Dana Kaminstein, Ana Olivos, Cristina Burroughs, Celeste Castillo-Lee, Joyce Kullman, Carol McAlear, Dianne G. Shaw, Antoine Sreih, George Casey, Vasculitis Patient-Powered Research Network, Peter A. Merkel

Publikováno v: Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-7 (2019)

Abstract Background There is increasing interest in actively involving patients in the process of medical research to help ensure research is relevant and important to both researchers and people affected by the disease under study. This project exam

Externí odkaz: https://doaj.org/article/31241b7f65b54dc888c130c5073aff00

2022 American College of Rheumatology/EULAR Classification Criteria for Takayasu Arteritis

Autor: Peter C, Grayson, Cristina, Ponte, Ravi, Suppiah, Joanna C, Robson, Katherine Bates, Gribbons, Andrew, Judge, Anthea, Craven, Sara, Khalid, Andrew, Hutchings, Debashish, Danda, Raashid A, Luqmani, Richard A, Watts, Peter A, Merkel, Antoine, Sreih

Publikováno v: Arthritis and Rheumatology, 74(12), 1872-1880. Wiley
Grayson, P, Ponte, C, Suppiah, R, Robson, J C, Bates Gribbons, K, Judge, A, Craven, A, Khalid, S, Hutchings, A, Danda, D, Luqmani, R A, Watts, R & Merkel, P A 2022, ' 2022 American College of Rheumatology-EULAR Classification Criteria for Takayasu’s Arteritis ', Annals of the Rheumatic Diseases, vol. 81, no. 12, pp. 1654-1660 . https://doi.org/10.1136/ard-2022-223482

© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.
Objective: To develop and validate new classification criteria for Takayasu arteritis (TAK). Methods: Patients with vasculitis or compa

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::03a198fb09c8893d8d0e5d311c9b22d6
https://doi.org/10.1002/art.42324

Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study (Preprint)

Autor: Jason Michael Springer, Tanaz A Kermani, Antoine Sreih, Dianne G Shaw, Kalen Young, Cristina M Burroughs, Peter A Merkel

BACKGROUND Utilizing the traditional centers of excellence approach to conduct clinical trials involving rare diseases remains challenging. Patient-based registries have been shown to be both feasible and valid in several other diseases. OBJECTIVE Th

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::9df7aaf3fb30226c1771c98164411833
https://doi.org/10.2196/preprints.17231

Update on Outcome Measure Development for Large Vessel Vasculitis: Report from OMERACT 12

Autor: Sibel Zehra Aydin, Haner Direskeneli, Antoine Sreih, Fatma Alibaz-Oner, Ahmet Gul, Sevil Kamali, Gulen Hatemi, Tanaz Kermani, Sarah L. Mackie, Alfred Mahr, Alexa Meara, Nataliya Milman, Heidi Nugent, Joanna Robson, Gunnar Tomasson, Peter A. Merkel

Objective.The rarity of large vessel vasculitis (LVV) is a major factor limiting randomized controlled trials in LVV, resulting in treatment choices in these diseases that are guided mainly by observational studies and expert opinion. Further complic

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a6102b7d3243de7e3688ea8961873cba
https://hdl.handle.net/11424/245945

Tento výsledek nelze pro nepřihlášené uživatele zobrazit.
K zobrazení výsledku je třeba se přihlásit.