Recommendations from a James Lind Alliance priority setting partnership - a qualitative interview study

Autor: Karin Jongsma, Juliette van Seventer, Anouk Verwoerd, Annemiek van Rensen

Publikováno v: Research Involvement and Engagement, Vol 6, Iss 1, Pp 1-13 (2020)

Abstract Background The James Lind Alliance (JLA) offers a method for research priority setting with patients, clinicians and carers. The method is increasingly used but publications primarily discuss the outcome of such projects, rather than reflect

Externí odkaz: https://doaj.org/article/b317ea2929734a7a9af1e5f1abe0e930

Research agenda setting with children with juvenile idiopathic arthritis: Lessons learned

Autor: Wineke Ambrust, Katherine Cowan, Karijn Aussems, Christine Dedding, Casper Schoemaker, Anouk Verwoerd

Publikováno v: Child: Care, Health and Development, 48(1), 68-79. Wiley-Blackwell
Child: Care, Health and Development, 48(1), 68-79. Wiley
Aussems, K, Schoemaker, C G, Verwoerd, A, Ambrust, W, Cowan, K & Dedding, C 2022, ' Research agenda setting with children with juvenile idiopathic arthritis : Lessons learned ', Child: Care, Health and Development, vol. 48, no. 1, pp. 68-79 . https://doi.org/10.1111/cch.12904

Aim: The aim of this qualitative study is to understand the research priorities of Dutch children with juvenile idiopathic arthritis (JIA) as well as researching how children can be involved.Background: Several health research agendas have successful

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e6f82dc247c74396f0e588751bea8816
https://doi.org/10.1111/cch.12904

Recommendations from a James Lind Alliance priority setting partnership - a qualitative interview study

Autor: Juliette van Seventer, Karin R. Jongsma, Annemiek van Rensen, Anouk Verwoerd

Publikováno v: Research Involvement and Engagement, Vol 6, Iss 1, Pp 1-13 (2020)
Research Involvement and Engagement

BackgroundThe James Lind Alliance (JLA) offers a method for research priority setting with patients, clinicians and carers. The method is increasingly used but publications primarily discuss the outcome of such projects, rather than reflecting on the

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f17ae28ae3a212a33185fadfb2a27de3
http://link.springer.com/article/10.1186/s40900-020-00240-3

Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method

Autor: Janjaap van der Net, Wineke Armbrust, Anouk Verwoerd, Els Versluis, Sanne L Bookelman, Petra C E Hissink Muller, Annemiek van Rensen, Katherine Cowan, Jorg van Loosdregt, Rens van Vliet, Joke H. de Boer, Caroline Whiting, Sylvia Kamphuis, Marlous J Fernhout, E.J.H. Schatorjé, Sebastiaan J. Vastert, Christine Dedding, Nico M Wulffraat, Karin R. Jongsma, Jeannette Cappon, Otto T H M Lelieveld, J. Merlijn van den Berg, Wendy Olsder, Joost F. Swart, Casper Schoemaker

Publikováno v: Pediatric Rheumatology, 16, 1, pp. 57
Pediatric Rheumatology, 16(1). BioMed Central
Schoemaker, C G, Armbrust, W, Swart, J F, Vastert, S J, Van Loosdregt, J, Verwoerd, A, Whiting, C, Cowan, K, Olsder, W, Versluis, E, Van Vliet, R, Fernhout, M J, Bookelman, S L, Cappon, J, Van Den Berg, J M, Schatorjé, E, Muller, P C E H, Kamphuis, S, De Boer, J, Lelieveld, O T H M, Van Der Net, J, Jongsma, K R, Van Rensen, A, Dedding, C & Wulffraat, N M 2018, ' Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method : A study protocol ', Pediatric Rheumatology, vol. 16, no. 1, 57 . https://doi.org/10.1186/s12969-018-0276-3
Pediatric Rheumatology, 16(1):57. BioMed Central Ltd.
Pediatric Rheumatology, 16, 57
Pediatric Rheumatology Online Journal, Vol 16, Iss 1, Pp 1-5 (2018)

Contains fulltext : 200061.pdf (Publisher’s version ) (Open Access) BACKGROUND: Research on Juvenile Idiopathic Arthritis (JIA) should support patients, caregivers/parents (carers) and clinicians to make important decisions in the consulting room a

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::828e39b2562f263bcb1a6042fc9e6751
https://doi.org/10.1186/s12969-018-0276-3

Reversal of Sepsis-Like Features of Neutrophils by Interleukin-1 Blockade in Patients With Systemic-Onset Juvenile Idiopathic Arthritis

Autor: Sytze de Roock, Thomas Vogl, Tamar Tak, Johannes Roth, Rianne C. Scholman, Leo Koenderman, Nienke M. ter Haar, Pieter H. C. Leliefeld, Wilco de Jager, Jenny Meerding, Anouk Verwoerd, Dirk Foell, Jorg van Loosdregt, Sebastiaan J. Vastert, Michal Mokry

Publikováno v: Arthritisrheumatology (Hoboken, N.J.). 70(6)

Objective Neutrophils are the most abundant innate immune cells in the blood, but little is known about their role in (acquired) chronic autoinflammatory diseases. This study was undertaken to investigate the role of neutrophils in systemic-onset juv

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3a97f58b681301490a2069b6d73a89c9
https://pubmed.ncbi.nlm.nih.gov/29426067