'We are not hard to reach, but we may find it hard to trust' …. Involving and engaging ‘seldom listened to’ community voices in clinical translational health research: a social innovation approach

Autor: Safina Islam, Olivia Joseph, Atiha Chaudry, Davine Forde, Annie Keane, Cassie Wilson, Nasima Begum, Suzanne Parsons, Tracy Grey, Leah Holmes, Bella Starling

Publikováno v: Research Involvement and Engagement, Vol 7, Iss 1, Pp 1-15 (2021)

Plain English Summary Public involvement in “bench to bedside” research (from laboratory-based research to clinical practice) is increasingly recognised as essential for relevant and reliable research. To enable the findings from health research

Externí odkaz: https://doaj.org/article/ba99c876c0064d7498a0fd5101f10d1f

Patient and public involvement in hearing research:opportunities, impact and reflections with case studies from the Manchester Centre for Audiology and Deafness

Autor: Piers Dawes, Paolo Arru, Rachel Corry, John Henry McDermott, Julia Garlick, Hannah Guest, Emily Howlett, Iain Jackson, Rachel James, Annie Keane, Carlyn Murray, William Newman, Anisa Visram, Kevin J. Munro

Publikováno v: Dawes, P, Arru, P, Corry, R, McDermott, J H, Garlick, J, Guest, H, Howlett, E, Jackson, I, James, R, Keane, A, Murray, C, Newman, W, Visram, A & Munro, K J 2022, ' Patient and public involvement in hearing research : opportunities, impact and reflections with case studies from the Manchester Centre for Audiology and Deafness ', International Journal of Audiology, pp. 1-9 . https://doi.org/10.1080/14992027.2022.2155881
Dawes, P, Arru, P, Guest, H, Howlett, E, Jackson, I, Keane, A, Mcdermott, J, Murray, C, Newman, W, Visram, A & Munro, K 2022, ' Patient and public involvement in hearing research: opportunities, impact and reflections with case studies from the Manchester Centre for Audiology and Deafness ', International Journal of Audiology . https://doi.org/10.1080/14992027.2022.2155881

ObjectivePatient and public involvement (PPI) in research improves relevance to end users and improves processes including recruitment participants. PPI in our research has gone from being non-existent to ubiquitous over a few years. We provide criti

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::989e498e44b27bc0f8a84315f122aa70
https://research.manchester.ac.uk/en/publications/05c8d81b-e606-4886-9b19-7eb86531faf1

The RAPID-RT study: results from a citizens’ jury exploring acceptable consent methods for the collection and analysis of real-world patient data

Autor: Rebecca Holley, Kate Wicks, Sarah Devaney, Søren Holm, Arbaz Kapadi, Hannah Turner-Uaandja, Annie Keane, Tjeerd van Staa, Brian Turner, Leila Hamrang, Gareth Price, Corinne Faivre-Finn

Publikováno v: Lung Cancer. 178:S89

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::e5d389133e229f4663927728c63a2587
https://doi.org/10.1016/s0169-5002(23)00626-8

'We are not hard to reach, but we may find it hard to trust' …. Involving and engaging 'seldom listened to' community voices in clinical translational health research: a social innovation approach

Autor: Safina Islam, Olivia Joseph, Atiha Chaudry, Nasima Begum, Bella Starling, Suzanne Parsons, Cassie Wilson, Davine Forde, Leah E. A. Holmes, Tracy Grey, Annie Keane

Publikováno v: Research Involvement and Engagement
Research Involvement and Engagement, Vol 7, Iss 1, Pp 1-15 (2021)

Background Public involvement in clinical translational research is increasingly recognised as essential for relevant and reliable research. Public involvement must be diverse and inclusive to enable research that has the potential to reach those tha

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e18e3558ea4f1dffa78f901e1d441b89
https://pubmed.ncbi.nlm.nih.gov/34174961