Zobrazeno 1 - 10
of 120
pro vyhledávání: '"Anne Sophie Darlington"'
Autor:
Cecilie Delphin Amdal, Katherine Taylor, Dagmara Kuliś, Ragnhild Sørum Falk, Andrew Bottomley, Juan Ignacio Arraras, James Harold Barte, Anne Sophie Darlington, Kristin Hofsø, Bernard Holzner, Nina Marie Høyning Jørgensen, Melissa Paulita Mariano, Madeline Pe, Claire Piccinin, Nicola Riccetti, Melanie Schranz, Sally Wheelwright, Kristin Bjordal
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-13 (2022)
Abstract Background We aimed to create a questionnaire to assess the health-related quality of life including functioning, symptoms, and general health status of adult patients with current or previous COVID-19. Here, we report on Phase I and II of t
Externí odkaz:
https://doaj.org/article/a5eadded60044adba62366bfea136fd2
Autor:
Helen Pearson, Carol Bell, Karl Cox, Catherine Kayum, Leona Knox, Faith Gibson, Michelle Myall, Anne-Sophie Darlington, Emma Potter, Nicholas Bird
Publikováno v:
Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-19 (2024)
Abstract Background Patient and public involvement (PPI) in research is widely acknowledged as essential to achieving successful and impactful research. Despite this acknowledgement, there are limited reports on how to approach and apply meaningful P
Externí odkaz:
https://doaj.org/article/52414df031984cdb977497175819f556
Publikováno v:
SSM: Qualitative Research in Health, Vol 6, Iss , Pp 100487- (2024)
Parents often become involved in making treatment decisions for their child with cancer when there is no standard treatment protocol, typically seen in poor-prognosis cancers. Advances in scientific medicine has led to more treatment options being av
Externí odkaz:
https://doaj.org/article/a519541c870c4f4997e706b075adbd9b
Autor:
Olga Husson, Silvie H. M. Janssen, Bryce B. Reeve, Samantha C. Sodergren, Christabel K. Cheung, Martin G. McCabe, John M. Salsman, Winette T. A. van der Graaf, Anne-Sophie Darlington
Publikováno v:
BMC Cancer, Vol 24, Iss 1, Pp 1-12 (2024)
Abstract Background Adolescents and young adults (AYAs) with cancer, defined as individuals aged 15–39 years at initial cancer diagnosis, form a unique population; they face age-specific issues as they transition to adulthood. This paper presents t
Externí odkaz:
https://doaj.org/article/0fcd4b9e3aff47ba828dfec7fdedec57
Autor:
Maria Rothmund, Andreas Meryk, Gerhard Rumpold, Roman Crazzolara, Samantha Sodergren, Anne-Sophie Darlington, David Riedl, the EORTC Quality of Life Group
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-26 (2023)
Abstract Background With increasing survival rates in pediatric oncology, the need to monitor health-related quality of life (HRQOL) is becoming even more important. However, available patient-reported outcome measures (PROMs) have been criticized. T
Externí odkaz:
https://doaj.org/article/b4abd9817c2c4301a2d3c15ff7d23fae
Publikováno v:
BMC Pediatrics, Vol 22, Iss 1, Pp 1-23 (2022)
Abstract Background Parents of children who are diagnosed with a poor-prognosis cancer want to be involved in making treatment-related decisions for their child. They often make repeated decisions depending on their child’s response to treatment an
Externí odkaz:
https://doaj.org/article/c2e55c3c2d554bd288ff922c449e15aa
Publikováno v:
Palliative Care and Social Practice, Vol 16 (2022)
Background: Play is central to children’s lives. Children living with palliative care needs experience disruption in their play. In this study, we sought to discover the characteristics and patterns of children’s play when receiving care in child
Externí odkaz:
https://doaj.org/article/2d60c2c465d741e3aafff2ed9bbbff5d
Autor:
Samantha C. Sodergren, Colin D. Johnson, Alexandra Gilbert, Anne-Sophie Darlington, Kim Cocks, Marianne G. Guren, Eleonor Rivin del Campo, Christine Brannan, Peter Christensen, William Chu, Hans Chung, Kristopher Dennis, Isacco Desideri, Duncan C. Gilbert, Rob Glynne-Jones, Michael Jefford, Mia Johansson, Anders Johnsson, Therese Juul, Dimitrios Kardamakis, Julia Lai-Kwon, Vicky McFarlane, Isalia M.C. Miguel, Karen Nugent, Femke Peters, Rachel P. Riechelmann, Nazim S. Turhal, Shun Wong, Vassilios Vassiliou
Publikováno v:
Sodergren, S C, Johnson, C D, Gilbert, A, Darlington, A-S, Cocks, K, Guren, M G, Rivin Del Campo, E, Brannan, C, Christensen, P, Chu, W, Chung, H, Dennis, K, Desideri, I, Gilbert, D C, Glynne-Jones, R, Jefford, M, Johansson, M, Johnsson, A, Juul, T, Kardamakis, D, Lai-Kwon, J, McFarlane, V, Miguel, I M C, Nugent, K, Peters, F, Riechelmann, R P, Turhal, N S, Wong, S, Vassiliou, V & European Organisation for Research and Treatment of Cancer Quality of Life Group 2023, ' International Validation of the EORTC QLQ-ANL27, a Field Study to Test the Anal Cancer-Specific Health-Related Quality of Life Questionnaire ', International Journal of Radiation Oncology, Biology, Physics, vol. 115, no. 5, pp. 1155-1164 . https://doi.org/10.1016/j.ijrobp.2022.11.002
PURPOSE: The European Organisation for Research and Treatment of Cancer (EORTC) health-related quality of life questionnaire for anal cancer (QLQ-ANL27) supplements the EORTC cancer generic measure (QLQ-C30) to measure concerns specific to people wit
Autor:
Claire Piccinin, Ethan Basch, Vishal Bhatnagar, Melanie Calvert, Alicyn Campbell, David Cella, Charles S Cleeland, Corneel Coens, Anne-Sophie Darlington, Amylou C Dueck, Mogens Groenvold, Ralf Herold, Bellinda L King-Kallimanis, Paul G Kluetz, Dagmara Kuliś, Daniel O'Connor, Kathy Oliver, Madeline Pe, Bryce B Reeve, Jaap C Reijneveld, Xin Shelley Wang, Andrew Bottomley
Publikováno v:
Piccinin, C, Basch, E, Bhatnagar, V, Calvert, M, Campbell, A, Cella, D, Cleeland, C S, Coens, C, Darlington, A-S, Dueck, A C, Groenvold, M, Herold, R, King-Kallimanis, B L, Kluetz, P G, Kuliś, D, O'Connor, D, Oliver, K, Pe, M, Reeve, B B, Reijneveld, J C, Wang, X S & Bottomley, A 2023, ' Recommendations on the use of item libraries for patient-reported outcome measurement in oncology trials : findings from an international, multidisciplinary working group ', Lancet Oncology, vol. 24, no. 2, pp. e86-e95 . https://doi.org/10.1016/S1470-2045(22)00654-4
The use of item libraries for patient-reported outcome (PRO) measurement in oncology allows for the customisation of PRO assessment to measure key health-related quality of life concepts of relevance to the target population and intervention. However
Autor:
Nicole Collaço, Ashley Gamble, Jessica Elizabeth Morgan, Bob Phillips, David Culliford, Anne-Sophie Darlington
Publikováno v:
Archives of Disease in Childhood. 108:198-203
ObjectiveTo explore the experiences, information and support needs of parents/caregivers of children with cancer and how these changed as the COVID-19 pandemic evolved.DesignOnline surveys containing closed and free-text questions on experiences, inf