Zobrazeno 1 - 10
of 62
pro vyhledávání: '"Anne Skalicky"'
Autor:
Anne Skalicky, Bryan Bennett, Judith Raimbourg, Sara Lonardi, Julia Correll, Iwona Lugowska, Matthew Dixon, Nashmel Sargalo, Mona L. Martin
Publikováno v:
Frontiers in Pharmacology, Vol 15 (2024)
Introduction: A better understanding of patient experience of intravenous (IV) or subcutaneous (SC) routes of administration is fundamental to providing optimal administration of medical therapies to oncology patients. The objective of this study was
Externí odkaz:
https://doaj.org/article/2da9c67996654577ac3ebbde7f794c5c
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-12 (2023)
Abstract Background Refractory chronic cough (RCC), a cough lasting longer than 8 weeks with an unexplained underlying etiology and unresponsive to conventional treatment, can have substantial effects on patients’ quality of life. For assessment of
Externí odkaz:
https://doaj.org/article/680ed8975b7644daac803f6a5b3f908c
Autor:
William R. Lenderking, Milena Anatchkova, Robin Pokrzywinski, Anne Skalicky, Mona L. Martin, Heather Gelhorn
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-7 (2021)
Abstract Background There has been a growing emphasis on health-related quality of life (HRQoL) as an important outcome in rare disease drug development, although its assessment may be useful outside the drug development context, including in clinica
Externí odkaz:
https://doaj.org/article/33e20763b7ad4099b3574a7557381c8e
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-13 (2021)
Abstract Background Several options for granulocyte colony-stimulating factor (G-CSF) prophylaxis of chemotherapy-induced febrile neutropenia are available to patients worldwide. We have developed a novel patient-reported outcome measure, the Satisfa
Externí odkaz:
https://doaj.org/article/41ff44655bfb42f285232d082622f1d5
Autor:
Barbara K. Burton, Anne Skalicky, Christoph Baerwald, Deborah A. Bilder, Cary O. Harding, Aaron B. Ilan, Elaina Jurecki, Nicola Longo, David T. Madden, H. Serap Sivri, Gisela Wilcox, Janet Thomas, Kathleen Delaney
Publikováno v:
Molecular Genetics and Metabolism Reports, Vol 29, Iss , Pp 100810- (2021)
Introduction: Current clinical outcome assessments (COAs) are not effectively capturing the complex array of symptoms of adults with phenylketonuria (PKU). This study aimed to identify concepts of interest relevant to adults with PKU. Based on these
Externí odkaz:
https://doaj.org/article/6a03469383fc40518ebc40fcf2d89078
Autor:
Magdalena Harrington, Asha Hareendran, Anne Skalicky, Hilary Wilson, Marci Clark, Jaromir Mikl
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-14 (2019)
Abstract Background Capturing the impact of caring for patients with debilitating rare disease is important for understanding disease burden. We aimed to develop and validate an instrument to measure the impact on caregivers of caring for children wi
Externí odkaz:
https://doaj.org/article/dbf688b2323b48aca9cb9a7be9c2f38c
Autor:
Asha Hareendran, Sally Mannix, Anne Skalicky, Martha Bayliss, Andrew Blumenfeld, Dawn C. Buse, Pooja R. Desai, Brian G. Ortmeier, Sandhya Sapra
Publikováno v:
Health and Quality of Life Outcomes, Vol 15, Iss 1, Pp 1-10 (2017)
Abstract Background Adults with migraine experience substantial reductions in quality of life during and in-between migraine attacks. Clinical and regulatory guidelines encourage the inclusion of patient reported outcomes for the evaluation of benefi
Externí odkaz:
https://doaj.org/article/7ec8a61cfd8a40b59676b71a3eda3d79
Autor:
Elaina Jurecki, Nicola Longo, H. Serap Sivri, Deborah A. Bilder, Janet A. Thomas, Christoph Baerwald, Gisela Wilcox, Kathleen A. Delaney, Cary O. Harding, Anne Skalicky, Aaron B. Ilan, Barbara K. Burton, David T. Madden
Publikováno v:
Molecular Genetics and Metabolism Reports, Vol 29, Iss, Pp 100810-(2021)
Molecular Genetics and Metabolism Reports
Molecular Genetics and Metabolism Reports
Introduction: Current clinical outcome assessments (COAs) are not effectively capturing the complex array of symptoms of adults with phenylketonuria (PKU). This study aimed to identify concepts of interest relevant to adults with PKU. Based on these
Autor:
Dylan Trundell, Anne Skalicky, Hannah Staunton, Asha Hareendran, Stephanie Le Scouiller, Louise Barrett, Owen Cooper, Ksenija Gorni, Tim Seabrook, Sangeeta Jethwa, Stefan Cano
Publikováno v:
Journal of the neurological sciences. 432
The amount of assistance required to perform daily activities for individuals with Type 2 and non-ambulant Type 3 spinal muscular atrophy (SMA) is often cited as meaningful for quality of life, and important to routinely assess.The SMA Independence S
Autor:
Anne Skalicky, Robin Pokrzywinski, Milena D. Anatchkova, Heather L. Gelhorn, Mona L. Martin, William R. Lenderking
Publikováno v:
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-7 (2021)
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-7 (2021)
Background There has been a growing emphasis on health-related quality of life (HRQoL) as an important outcome in rare disease drug development, although its assessment may be useful outside the drug development context, including in clinical applica