Zobrazeno 1 - 10
of 68
pro vyhledávání: '"Anne A Schouffoer"'
Autor:
Arsène Mekinian, Thierry Martin, Eric Hachulla, Carter Thorne, Danielle Rice, Andrea Benedetti, Brooke Levis, Virginia Steen, Paul R Fortin, Vincent Poindron, Aurélien Guffroy, David Launay, Luc Mouthon, Mandana Nikpour, John Varga, Benjamin Chaigne, Sindhu R Johnson, Sébastien Rivière, Michael Hughes, Daphna Harel, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Susan J Bartlett, Karen Gottesman, Maureen Sauve, Ghassan El-Baalbaki, Kim Fligelstone, Catherine Fortune, Tracy Frech, Marie Hudson, Maggie Larche, Catarina Leite, Janet Pope, Anne A Schouffoer, Maria E Suarez-Almazor, Christian Agard, Marc André, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Christopher Denton, Robyn Domsic, James V Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-bancel, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Marc Lambert, Hélène Maillard, Joanne Manning, Ariel Masetto, François Maurier, Susanna Proudman, Alexis Régent, David Robinson, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Evelyn Sutton, Pearce Wilcox, Laurent Alric, Grégory Pugnet, François Rannou, Amy Gietzen, Christelle Nguyen, Michelle Richard, Nancy Maltez, Isabelle Marie, Mara Cañedo Ayala, Geneviève Guillot, Elana J Bernstein, Brett Thombs, Paul Legendre, Thylbert Deltombe, Sabrina Hoa, Laura K Hummers, Sophie Blaise, Yvonne C Lee, Louis Olagne, Marie-Claude Geoffroy, Richard S Henry, Robyn Wojeck, Maureen Mayes, Tiffany Dal Santo, Kimberly Lakin, Gabrielle Virgili-Gervais, Vanessa Malcarne, Claire E Adams, Rodriguez-Reyna Tatiana Sofia, Floryan Beaslay, Eva Bories, Carlotta Cacciatore, Benjamin Crichi, Tannvir Desroche, Loraine Gauzère, Anne Gerber, Maria Martin Lopez, Sheila Melchor Díaz, Morgane Mourguet, Loïc Raffray, Frederic Renou, Esther Rodríguez Almazar, Damien Vagner, Vanessa Cook, Sophie Hu, Elsa-Lynn Nassar, Marieke Alexandra Neyer, Sabrina Provencher
Publikováno v:
RMD Open, Vol 10, Iss 1 (2024)
Objective The objectives were to (1) compare satisfaction with social roles and activities in a large multinational systemic sclerosis (SSc) cohort to general population normative data and (2) identify sociodemographic, lifestyle and SSc disease fact
Externí odkaz:
https://doaj.org/article/013d8f853a3b4acc8eb9cc91a6f17411
Autor:
Cornelia F Allaart, Tom W J Huizinga, Jeska De Vries-Bouwstra, Anne A Schouffoer, Philippine Kiès, Liesbeth J J Beaart-van de Voorde, Saad Ahmed, Nina Ajmone Marsan, Maaike Boonstra, Maarten K Ninaber, Jacopo Ciaffi, Nina Marijn van Leeuwen, Maarten E Tushuizen, Sophie I E Liem, Anja Corsel, Talitha Dhondai, J J Miranda Geelhoed-Veltman, Marlies E Heuvers
Publikováno v:
RMD Open, Vol 9, Iss 2 (2023)
Background Since 2009, Dutch patients with a confirmed diagnosis/suspicion of systemic sclerosis (SSc) can be referred to the Leiden Combined Care in Systemic Sclerosis (CCISS) cohort. This study evaluated whether early recognition of SSc has improve
Externí odkaz:
https://doaj.org/article/fd84ee86a96c49fb8571f0ad6a188a2a
Autor:
Doortje I. Krijbolder, Xanthe M.E. Matthijssen, Bastiaan T. van Dijk, Hanna W van Steenbergen, Debbie M Boeters, Annemiek Willemze, Anne A Schouffoer, Annette H.M. van der Helm‐van Mil
Publikováno v:
Arthritis & Rheumatology.
Autor:
Amanda Wurz, Delaney Duchek, Kelsey Ellis, Mannat Bansal, Marie-Eve Carrier, Lydia Tao, Laura Dyas, Linda Kwakkenbos, Brooke Levis, Ghassan El-Baalbaki, Danielle B. Rice, Yin Wu, Richard S. Henry, Laura Bustamante, Sami Harb, Shannon Hebblethwaite, Scott B. Patten, Susan J. Bartlett, John Varga, Luc Mouthon, Sarah Markham, Brett D. Thombs, S. Nicole Culos-Reed, Catherine Fortuné, Amy Gietzen, Geneviève Guillot, Karen Nielsen, Nancy Lewis, Michelle Richard, Maureen Sauvé, Joep Welling, Lacey Battaglio, Tina Burger, Adrienne Burleigh, Peggy Collins, Jacob Davila, Louise Inglese, Franny Kaplan, Violet Konrad, Silvia Petrella, Audrey Potvin, Natalie Puccio, Karen Gottesman, Marie Hudson, Laura K. Hummers, Amanda Lawrie-Jones, Vanessa L. Malcarne, Maureen D. Mayes, Warren R. Nielson, Shervin Assassi, Carolyn Ells, Kim Fligelstone, Tracy Frech, Daphna Harel, Monique Hinchcliff, Sindhu R. Johnson, Maggie Larche, Catarina Leite, Christelle Nguyen, Janet Pope, François Rannou, Tatiana Sofia Rodriguez-Reyna, Anne A. Schouffoer, Maria E. Suarez-Almazor, Christian Agard, Nassim Ait Abdallah, Marc André, Elana J. Bernstein, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Benjamin Chaigne, Lorinda Chung, Benjamin Crichi, Christopher Denton, Robyn Domsic, James V. Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-Bancel, Paul R. Fortin, Jessica Gordon, Brigitte Granel-Rey, Aurélien Guffroy, Genevieve Gyger, Eric Hachulla, Ariane L. Herrick, Sabrina Hoa, Alena Ikic, Niall Jones, Nader Khalidi, Marc Lambert, David Launay, Yvonne C. Lee, Hélène Maillard, Nancy Maltez, Joanne Manning, Isabelle Marie, Maria Martin Lopez, Thierry Martin, Ariel Masetto, François Maurier, Arsene Mekinian, Sheila Melchor Díaz, Mandana Nikpour, Louis Olagne, Vincent Poindron, Susanna Proudman, Alexis Régent, Sébastien Rivière, David Robinson, Esther Rodríguez Almazar, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Virginia Steen, Evelyn Sutton, Carter Thorne, Pearce Wilcox, Mara Cañedo Ayala, Marie-Nicole Discepola, Laury Montemurro, Elsa Lynn Nassar, Marieke Alexandra Neyer, Julia Nordlund, Nora Østbø, Sabrina Provencher
Publikováno v:
Disability and Rehabilitation
Explore trial participants’ and research team members’ perceptions of the impact of the videoconference-based, supportive care program (SPIN-CHAT Program) during early COVID-19 for individuals with systemic sclerosis (SSc). Data were collected cr
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::82da0ee61159ef50f46b598695398ac1
http://hdl.handle.net/2066/289894
http://hdl.handle.net/2066/289894
Autor:
Evelyn Sutton, Lorinda Chung, Sophie Roux, Robert Spiera, Maria E. Suarez-Almazor, Thierry Martin, Shadi Gholizadeh, Carolyn Ells, Isabelle Marie, Louis Olagne, Monique Hinchcliff, Karen Nielsen, Geneviève Guillot, Alena Ikic, Jessica K. Gordon, Christian Agard, Maria Gagarine, Hélène Maillard, Julie Cumin, Angelica Bourgeault, David Robinson, Susanna Proudman, Amy Gietzen, Maureen D. Mayes, François Rannou, Dan Bilsker, Joanne Manning, Richard S. Henry, Ariel Masetto, Isabelle Boutron, Catherine Fortune, Elana J. Bernstein, Carter Thorne, Cornelia H. M. van den Ende, Christopher P. Denton, Sindhu R. Johnson, Regina Fare, Nassim Ait Abdallah, Alexander W. Levis, Maria Martin, Sabrina Hoa, Eric Hachulla, Anne A. Schouffoer, Susan J. Bartlett, Marie Hudson, Sébastien Rivière, Pearce G. Wilcox, Mara Cañedo Ayala, Sheila Melchor, Ariane L. Herrick, Tracy M. Frech, Andrea Benedetti, Laura Dyas, Janet E. Pope, Dominique Farge-Bancel, Andrea Carboni Jiménez, Maggie Larché, Perrine Smets, Vanessa L. Malcarne, Julia Nordlund, Marie-Nicole Discepola, Lyne Bissonnette, Maureen Sauve, Christelle Nguyen, Marion Casadevall, Brett D. Thombs, Karen Gottesman, Patricia Carreira, Marie-Eve Carrier, Sabine Berthier, Mandana Nikpour, Alexandra Albert, Luc Mouthon, Alessandra Bruns, Claire Fedoruk, John Varga, Linda Kwakkenbos, Vincent Poindron, Brooke Levis, Shervin Assassi, Amanda Wurz, Benjamin Crichi, Daphna Harel, Suzanne Kafaja, Esther Rodriguez, Nancy Maltez, Vincent Sobanski, Catarina Leite, Marc André, François Maurier, Ghassan El-Baalbaki, Lisa R. Jewett, Nora Østbø, Marc Lambert, Michelle Richard, James V. Dunne, Niall Jones, Robyn T. Domsic, Kimberly A. Turner, Chase Correia, Joep Welling, Nicole Culos-Reed, Benjamin Chaigne, Kim Fligelstone, Tatiana Sofia Rodriguez-Reyna, Paul R. Fortin, Bertrand Dunogue, Virginia D. Steen, Warren R. Nielson, Ward van Breda, Arsene Mekinian, Nader Khalidi, Brigitte Granel-Rey, David Launay, Pamela Piotrowski, Alexis Régent, Genevieve Gyger, Robert Riggs, Lydia Tao
Publikováno v:
Trials, Vol 22, Iss 1, Pp 1-22 (2021)
Trials
SPIN Investigators 2021, ' The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program : protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial ', Trials, vol. 22, 856, pp. 856-856 . https://doi.org/10.1186/s13063-021-05827-z
Trials, 22
Trials, 22:856, 856-856. BioMed Central
Trials
SPIN Investigators 2021, ' The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program : protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial ', Trials, vol. 22, 856, pp. 856-856 . https://doi.org/10.1186/s13063-021-05827-z
Trials, 22
Trials, 22:856, 856-856. BioMed Central
Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-Management
Autor:
Sophie I E Liem, Jacopo Ciaffi, Nina Marijn van Leeuwen, Maaike Boonstra, Saad Ahmed, Liesbeth J J Beaart-van de Voorde, Anja Corsel, Talitha Dhondai, Maarten K Ninaber, J J Miranda Geelhoed-Veltman, Marlies E Heuvers, Maarten E Tushuizen, Nina Ajmone Marsan, Philippine Kiès, Anne A Schouffoer, Tom W J Huizinga, Cornelia F Allaart, Jeska De Vries-Bouwstra
Publikováno v:
RMD Open. 9:e002971
BackgroundSince 2009, Dutch patients with a confirmed diagnosis/suspicion of systemic sclerosis (SSc) can be referred to the Leiden Combined Care in Systemic Sclerosis (CCISS) cohort. This study evaluated whether early recognition of SSc has improved
Autor:
Tom W J Huizinga, Maarten K. Ninaber, Jeska K de Vries-Bouwstra, M. Boonstra, Anne A. Schouffoer, Nina M van Leeuwen, Lucia J.M. Kroft, Jacopo Ciaffi
Publikováno v:
Arthritis Care and Research, 74(3), 433-441. WILEY
Objective Hematopoietic stem cell transplantation (HSCT) and cyclophosphamide (CYC) are treatment options for progressive systemic sclerosis associated with interstitial lung disease (SSc-ILD). The aims of our retrospective observational study were t
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::73b9d1b056938b62e7d02c3f7815dcca
http://hdl.handle.net/1887/3250645
http://hdl.handle.net/1887/3250645
Autor:
Frank H J van den Hoogen, Judith Potjewijd, Madelon C. Vonk, Julia Spierings, J. Bart Staal, Ton Satink, Marisca R Schriemer, J.K. Stöcker, Lian de Pundert, Cornelia H. M. van den Ende, Maria W.G. Nijhuis-van der Sanden, Anne A. Schouffoer
Publikováno v:
Rheumatology, 61, 1476-1486
Rheumatology, 61, 4, pp. 1476-1486
Rheumatology, 61(4), 1476-1486. Oxford University Press
Rheumatology, 61, 4, pp. 1476-1486
Rheumatology, 61(4), 1476-1486. Oxford University Press
Objective SSc is a complex CTD affecting mental and physical health. Fatigue, hand function loss, and RP are the most prevalent disease-specific symptoms of systemic sclerosis. This study aimed to develop consensus and evidence-based recommendations
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::63dc036d9fc1d31dc5fe6ea10fa09f39
http://hdl.handle.net/20.500.12470/2766
http://hdl.handle.net/20.500.12470/2766
Autor:
Jingnan Jia, Marius Staring, Irene H. Girón, Lucia J. Kroft, Anne A. Schouffoer, Berend C. Stoel
Visually scoring lung involvement in systemic sclerosis from CT scans plays an important role in monitoring progression, but its labor intensiveness hinders practical application. We proposed, therefore, an automatic scoring framework that consists o
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e11f3cbb6dd5e201fa3950f438e975bc
http://arxiv.org/abs/2110.08085
http://arxiv.org/abs/2110.08085
Autor:
Suzanne Kafaja, Jessica K. Gordon, Nader Khalidi, Esther Rodriguez, Ariel Masetto, Anne A. Schouffoer, Nancy Maltez, Geneviève Guillot, Virginia D. Steen, Joep Welling, Tatiana Sofia Rodriguez-Reyna, Paul R. Fortin, Bertrand Dunogue, Niall Jones, Robyn T. Domsic, Eric Hachulla, Arsene Mekinian, Warren R. Nielson, Joanne Manning, Sindhu R. Johnson, Chase Correia, Evelyn Sutton, Nassim Ait Abdallah, David Robinson, Benjamin Chaigne, Susanna Proudman, Geneviève Gyger, Karen Gottesman, Mara Cañedo Ayala, Christian Agard, Susan J. Bartlett, Yvonne C. Lee, Kim Fligelstone, Carter Thorne, Mandana Nikpour, Marie Hudson, Catherine Fortune, Thierry Martin, Maggie Larché, Laura K. Hummers, Benjamin Crichi, Carolyn Ells, Sabine Berthier, Angelica Bourgeault, Marie-Nicole Discepola, Ariane L. Herrick, Tracy M. Frech, Andrea Benedetti, Brett D. Thombs, Sébastien Rivière, Marion Casadevall, Sheila Melchor, Janet E. Pope, Maria E. Suarez-Almazor, Regina Fare, Alessandra Bruns, John Varga, Vincent Poindron, Rina S. Fox, Lyne Bissonnette, Vanessa L. Malcarne, Richard S. Henry, Hélène Maillard, Maureen Sauve, Maria Martin, Lorinda Chung, Marc Lambert, Marie-Eve Carrier, Louis Olagne, Sophie Roux, Maria Gagarine, François Rannou, Elana J. Bernstein, Andrea Carboni Jiménez, Monique Hinchcliff, Amy Gietzen, Alena Ikic, Christelle Nguyen, Julia Nordlund, Brigitte Granel-Rey, Alexis Régent, Robert Riggs, David Launay, Sabrina Hoa, Michelle Richard, Robert Spiera, Isabelle Marie, James V. Dunne, Brooke Levis, Shervin Assassi, Catarina Leite, Daphna Harel, Marc André, Ghassan El-Baalbaki, François Maurier, Nora Østbø, Vincent Sobanski, Karen Nielsen, Patricia Carreira, Alexandra Albert, Luc Mouthon, Linda Kwakkenbos, Christopher Denton, Maureen D. Mayes, Pearce G. Wilcox, Dominique Farge-Bancel, Perrine Smets
Publikováno v:
The Lancet. Rheumatology, 3, e844-e854
The Lancet. Rheumatology, 3, 12, pp. e844-e854
The Lancet. Rheumatology, 3, 12, pp. e844-e854
Summary Background Pain is an important and detrimental feature of systemic sclerosis but is often overlooked or deprioritised in research and clinical care. Raynaud's phenomenon, arthritis, and cutaneous ulcers are among the commonly reported diseas
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::be7dba04b84e4d46ac11ce2a34e6ec10
http://hdl.handle.net/2066/240697
http://hdl.handle.net/2066/240697