Zobrazeno 1 - 5
of 5
pro vyhledávání: '"Anne‐Sophie Hallet"'
Autor:
Nicole Chemaly, Mathieu Kuchenbuch, Théo Teng, Elodie Marie, Gianluca D'Onofrio, Tommaso Lo Barco, Isabella Brambilla, Silke Flege, Anne‐Sophie Hallet, Rima Nabbout
Publikováno v:
Epilepsia Open, Vol 9, Iss 1, Pp 388-396 (2024)
Abstract We aimed to identify caregivers' opinions on the outcome measures that matter in clinical trials in individuals with Dravet syndrome (DS). We conducted a prospective European multicenter study based on an 11 closed questions survey developed
Externí odkaz:
https://doaj.org/article/05f5880e27fe45268bf963808043bab8
Autor:
Isabella Brambilla, José Ángel Aibar, Anne Sophie Hallet, Irena Bibic, Elena Cardenal‐Muñoz, Igor Prpic, Francesca Darra, Nicola Specchio, Rima Nabbout
Publikováno v:
Epilepsia Open, Vol 6, Iss 1, Pp 216-224 (2021)
Abstract We explored the impact of coronavirus virus 2019 (COVID‐19) pandemic on patients with Dravet syndrome (DS) and their family. With European patient advocacy groups (PAGs), we developed an online survey in 10 languages to question health sta
Externí odkaz:
https://doaj.org/article/9a230068502c43e4ac1d353b0195639c
Autor:
Rima Nabbout, Anne-Sophie Hallet, Elodie Marie, Theo Teng, Nicole Chemaly, Tommaso Lo Barco, Silke Flege, Mathieu Kuchenbuch, Gianluca D'Onofrio, Isabella Brambilla
Background Dravet syndrome (DS) is a developmental and epileptic encephalopathy. Patients rapidly develop drug resistant seizures but patients with DS develop non-seizures disorders that are often age related. We aimed to identify the caregivers’ o
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0403c660ba53e36b63ecfe2bd125d68f
https://doi.org/10.21203/rs.3.rs-293272/v1
https://doi.org/10.21203/rs.3.rs-293272/v1
Autor:
Elodie Marie, Rima Nabbout, Anne-Sophie Hallet, Tommaso Lo Barco, Gianluca D'Onofrio, Mathieu Kuchenbuch, Nicole Chemaly, Theo Teng, Silke Flege, Isabella Brambilla
We aimed to identify caregivers' opinions on the outcome measures that matter in clinical trials in individuals with Dravet syndrome (DS). We conducted a prospective European multicentre study based on a 11-closed questions' survey developed by the F
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8b3d2172bdb2eb03e8951588eea5e9e0
https://hdl.handle.net/11380/1290166
https://hdl.handle.net/11380/1290166
Autor:
Elena Cardenal-Muñoz, Igor Prpić, José Ángel Aibar, Isabella Brambilla, Francesca Darra, Nicola Specchio, Irena Bibic, Rima Nabbout, Anne Sophie Hallet
Publikováno v:
Epilepsia Open
Volume 6
Issue 1
Epilepsia Open, Vol 6, Iss 1, Pp 216-224 (2021)
Volume 6
Issue 1
Epilepsia Open, Vol 6, Iss 1, Pp 216-224 (2021)
The COVID-19 pandemic caused a state of alarm in Spain in March 2020. The necessary approach to the care of patients with Dravet syndrome (DS) makes them and their caregivers a vulnerable group in emergency situations.To explore the impact of the COV
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5d5853e33ce2711fa4c01d5d1898cd52
http://hdl.handle.net/11562/1038771
http://hdl.handle.net/11562/1038771