Zobrazeno 1 - 10
of 12
pro vyhledávání: '"Anna H. Noda"'
Autor:
Johann Philipp Zöllner, Janina Grau, Felix Rosenow, Matthias Sauter, Markus Knuf, Gerhard Kurlemann, Thomas Mayer, Christoph Hertzberg, Astrid Bertsche, Ilka Immisch, Karl Martin Klein, Susanne Knake, Klaus Marquard, Sascha Meyer, Anna H. Noda, Felix von Podewils, Hannah Schäfer, Charlotte Thiels, Laurent M. Willems, Bianca Zukunft, Susanne Schubert-Bast, Adam Strzelczyk
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-18 (2021)
Abstract Background Tuberous sclerosis complex (TSC) is a monogenetic, multisystem disorder characterized by benign growths due to TSC1 or TSC2 mutations. This German multicenter study estimated the costs and related cost drivers associated with orga
Externí odkaz:
https://doaj.org/article/b879b72ede654f86a67051fc4680d82e
Autor:
Janina Grau, Johann Philipp Zöllner, Susanne Schubert-Bast, Gerhard Kurlemann, Christoph Hertzberg, Adelheid Wiemer-Kruel, Thomas Bast, Astrid Bertsche, Ulrich Bettendorf, Barbara Fiedler, Andreas Hahn, Hans Hartmann, Frauke Hornemann, Ilka Immisch, Julia Jacobs, Matthias Kieslich, Karl Martin Klein, Kerstin A. Klotz, Gerhard Kluger, Markus Knuf, Thomas Mayer, Klaus Marquard, Sascha Meyer, Hiltrud Muhle, Karen Müller-Schlüter, Anna H. Noda, Susanne Ruf, Matthias Sauter, Jan-Ulrich Schlump, Steffen Syrbe, Charlotte Thiels, Regina Trollmann, Bernd Wilken, Laurent M. Willems, Felix Rosenow, Adam Strzelczyk
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-16 (2021)
Abstract Background Tuberous sclerosis complex (TSC), a multisystem genetic disorder, affects many organs and systems, characterized by benign growths. This German multicenter study estimated the disease-specific costs and cost-driving factors associ
Externí odkaz:
https://doaj.org/article/6b5b4f15ce534c76ba366fc0ad9156c1
Autor:
Johann Philipp Zöllner, Nadine Conradi, Matthias Sauter, Markus Knuf, Susanne Knake, Gerhard Kurlemann, Thomas Mayer, Christoph Hertzberg, Astrid Bertsche, Ilka Immisch, Karl Martin Klein, Klaus Marquard, Sascha Meyer, Anna H. Noda, Felix von Podewils, Hannah Schäfer, Charlotte Thiels, Bianca Zukunft, Susanne Schubert-Bast, Janina Grau, Laurent M. Willems, Felix Rosenow, Jens-Peter Reese, Adam Strzelczyk
Publikováno v:
Neurological Research and Practice, Vol 3, Iss 1, Pp 1-18 (2021)
Abstract Background Tuberous sclerosis complex (TSC) is a monogenetic, multisystemic disease characterised by the formation of benign tumours that can affect almost all organs, caused by pathogenic variations in TSC1 or TSC2. In this multicentre stud
Externí odkaz:
https://doaj.org/article/3ad1b24a799446d5a772b6363f953eb6
Autor:
Matthias Sauter, Bernd Wilken, Adelheid Wiemer-Kruel, Regina Trollmann, Astrid Bertsche, Hans Hartmann, Steffen Syrbe, Markus Knuf, Barbara Fiedler, Karl Martin Klein, Laurent M. Willems, Janina Grau, Andreas Hahn, Jan-Ulrich Schlump, Ulrich Bettendorf, Klaus Marquard, Julia Jacobs, Sascha Meyer, Susanne Schubert-Bast, Anna H. Noda, Matthias Kieslich, Johann Philipp Zöllner, Susanne Ruf, Christoph Hertzberg, Hiltrud Muhle, Ilka Immisch, Gerhard Kluger, Kerstin Alexandra Klotz, Thomas U. Mayer, Karen Müller-Schlüter, Charlotte Thiels, Frauke Hornemann, Gerhard Kurlemann, Felix Rosenow, Thomas Bast, Adam Strzelczyk
Publikováno v:
European Journal of Paediatric Neurology. 35:111-122
Objective This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers. Methods Adequate metrics were used to a
Autor:
Doris Fischer, Susanne Schubert-Bast, Edgar Bollensen, Anna H. Noda, Johann Philipp Zöllner, Anne-Christine Leyer, Jeannie McCoy, Christian Roth, Felix Rosenow, Karl-Heinz Henn, Laurent M. Willems, Adam Strzelczyk
Publikováno v:
Zeitschrift Fu¨r Epileptologie
Zusammenfassung Hintergrund In Anbetracht ihres bedeutenden Potenzials zur Verbesserung der medizinischen Versorgung wird Telemedizin weiterhin zu wenig genutzt. Trotz einiger erfolgreicher Pilotprojekte in den vergangenen Jahren ist insbesondere üb
Autor:
Johann Philipp Zöllner, Anna H. Noda, Jeannie McCoy, Juliane Schulz, Panagiota-Eleni Tsalouchidou, Lisa Langenbruch, Stjepana Kovac, Susanne Knake, Felix von Podewils, Mario Hamacher, Catrin Mann, Anne-Christine Leyer, Natascha van Alphen, Susanne Schubert-Bast, Felix Rosenow, Adam Strzelczyk
Publikováno v:
Telemedicine journal and e-health : the official journal of the American Telemedicine Association.
Autor:
Christoph Hertzberg, Felix von Podewils, Matthias Sauter, Felix Rosenow, Susanne Schubert-Bast, Anna H. Noda, Thomas E. Mayer, Laurent M. Willems, Klaus Marquard, Jens-Peter Reese, Ilka Immisch, Bianca Zukunft, Johann Philipp Zöllner, Janina Grau, Nadine Conradi, Susanne Knake, Astrid Bertsche, Markus Knuf, Karl Martin Klein, Sascha Meyer, Gerhard Kurlemann, Hannah Schäfer, Charlotte Thiels, Adam Strzelczyk
Publikováno v:
Neurological Research and Practice
Neurological Research and Practice, Vol 3, Iss 1, Pp 1-18 (2021)
Neurological Research and Practice, Vol 3, Iss 1, Pp 1-18 (2021)
Background Tuberous sclerosis complex (TSC) is a monogenetic, multisystemic disease characterised by the formation of benign tumours that can affect almost all organs, caused by pathogenic variations in TSC1 or TSC2. In this multicentre study from Ge
Autor:
Jan Hendrik Schäfer, Makoto Kiyose, Anna H. Noda, Adam Strzelczyk, Sebastian Bauer, Yunus Balcik, Raphael Reinecke, Kai Siebenbrodt, Felix Rosenow, Laurent M. Willems, Sina Leimeister, Johann Philipp Zöllner, Jeannie McCoy, Ricardo Kienitz
Publikováno v:
Epilepsy & Behavior
Introduction When the SARS-CoV-2 pandemic reached Europe in 2020, a German governmental order forced clinics to immediately suspend elective care, causing a problem for patients with chronic illnesses such as epilepsy. Here, we report the experience
Publikováno v:
Seizure. 67:38-39
Autor:
Adam Strzelczyk, Anke Hermsen, Gunther Carl, Susanne Knake, Anna H. Noda, Uwe Meier, Stephan Wiehler, Günther Endrass, Felix Rosenow, Jens Kaltofen, Ali Safavi, Katja Menzler, Dieter Dennig, Ralf Berkenfeld, Christian E. Elger
Publikováno v:
Seizure. 26:49-55
A B S T R A C T Purpose: This study used an electronic practice management software in daily routine to gather longterm disease and cost-of-illness (COI) data in patients with epilepsy in Germany. Methods: Data on socio-economic status, course of epi