Zobrazeno 1 - 10
of 154
pro vyhledávání: '"Anita Beelen"'
Autor:
Remko M van Eenennaam, Neele Rave, Willeke J Kruithof, Esther T Kruitwagen-van Reenen, Leonard H van den Berg, Johanna A Visser-Meily, Anita Beelen
Publikováno v:
PLoS ONE, Vol 18, Iss 9, p e0290508 (2023)
BackgroundGastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional support, however, people with amyotrophic lateral sclerosis and healthcare professionals perceive decision-making as complex.MethodTo explore their perspe
Externí odkaz:
https://doaj.org/article/0cdc2861370d4aa2bd6a920fc58dfe41
Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs
Autor:
Marion Sommers-Spijkerman, Neele Rave, Esther Kruitwagen-van Reenen, Johanna M. A. Visser-Meily, Melinda S. Kavanaugh, Anita Beelen
Publikováno v:
BMC Psychology, Vol 10, Iss 1, Pp 1-15 (2022)
Abstract Background Amyotrophic lateral sclerosis (ALS), progressive muscular atrophy (PMA) and primary lateral sclerosis (PLS), together referred to as ALS, are life-limiting diagnoses affecting not only patients but also the families surrounding th
Externí odkaz:
https://doaj.org/article/9d90cbddc07345cba530f6b22f300fd6
Autor:
Remko M. van Eenennaam, Willeke J. Kruithof, Michael A. van Es, Esther T. Kruitwagen-van Reenen, Henk-Jan Westeneng, Johanna M. A. Visser-Meily, Leonard H. van den Berg, Anita Beelen
Publikováno v:
BMC Neurology, Vol 20, Iss 1, Pp 1-11 (2020)
Abstract Background Personalized ENCALS survival prediction model reliably estimates the personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised on discussing personalized prognosis without causing anxiety and dest
Externí odkaz:
https://doaj.org/article/1b1bbf4f401640a3b5fe6ac91f67b75c
Autor:
Ruben P A van Eijk, Anita Beelen, Esther T Kruitwagen, Deirdre Murray, Ratko Radakovic, Esther Hobson, Liam Knox, Jochem Helleman, Tom Burke, Miguel Ángel Rubio Pérez, Evy Reviers, Angela Genge, Frederik J Steyn, Shyuan Ngo, John Eaglesham, Kit C B Roes, Leonard H van den Berg, Orla Hardiman, Christopher J McDermott
Publikováno v:
Journal of Medical Internet Research, Vol 23, Iss 9, p e28766 (2021)
Despite recent and potent technological advances, the real-world implementation of remote digital health technology in the care and monitoring of patients with motor neuron disease has not yet been realized. Digital health technology may increase the
Externí odkaz:
https://doaj.org/article/4eaeac49fb7e4270b5a96f17f524d2c2
Autor:
Jessica Warnink-Kavelaars, Anita Beelen, Sarah Dekker, Frans Nollet, Leonie A. Menke, Raoul H. H. Engelbert
Publikováno v:
BMC Pediatrics, Vol 19, Iss 1, Pp 1-10 (2019)
Abstract Background Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary
Externí odkaz:
https://doaj.org/article/4154c3683c0a47aba3beb26c62fbcca8
Autor:
Jessica de Wit, Sigrid C. J. M. Vervoort, Eefke van Eerden, Leonard H. van den Berg, Johanna M. A. Visser-Meily, Anita Beelen, Carin D. Schröder
Publikováno v:
BMC Psychology, Vol 7, Iss 1, Pp 1-13 (2019)
Abstract Background Partners are often the main caregivers in the care for patients with amyotrophic lateral sclerosis (ALS) and progressive muscular atrophy (PMA). Providing care during the progressive and fatal disease course of these patients is c
Externí odkaz:
https://doaj.org/article/f249707179054b04817a99caaf0b440e
Autor:
Maijke van Bloemendaal, Anita Beelen, Rob F.M. Kleissen, Alexander C. Geurts, Frans Nollet, Sicco A. Bus
Publikováno v:
Journal of Rehabilitation Medicine, Vol 51, Iss 6, Pp 456-463 (2019)
Objective: To determine the concurrent validity and reliability of a low-cost spatiotemporal gait analysis system for clinical use in rehabilitation medicine. Design: Cross-sectional study. Subjects: Thirty-three healthy adults. Methods: The spati
Externí odkaz:
https://doaj.org/article/795dbfdd4b7b4d9e8303f53e9893a663
Autor:
Jessica de Wit, Anita Beelen, Constance H. C. Drossaert, Ruud Kolijn, Leonard H. van den Berg, Johanna M. A. Visser-Meily, Carin D. Schröder
Publikováno v:
BMC Psychology, Vol 6, Iss 1, Pp 1-11 (2018)
Abstract Background Informal caregivers of patients with Amyotrophic Lateral Sclerosis (ALS) or Progressive Muscular Atrophy (PMA) face stressful demands due to severe impairments and prospect of early death of the patients they care for. Caregivers
Externí odkaz:
https://doaj.org/article/2dc0e4f31bd945d8ba9b0f5bd1b08967
Autor:
Remko M. van Eenennaam, Loulou S. Koppenol, Willeke J. Kruithof, Esther T. Kruitwagen-van Reenen, Sotice Pieters, Michael A. van Es, Leonard H. van den Berg, Johanna M. A. Visser-Meily, Anita Beelen
Publikováno v:
Brain Sciences, Vol 11, Iss 12, p 1597 (2021)
The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis (ALS) the opportunity to receive a personalized prognosis of survival at the time of diagnosis. We explored experiences of patients with ALS, caregivers, and phys
Externí odkaz:
https://doaj.org/article/5a9491b0333d498d83c907bf4f11acd9
Autor:
Éilís Conroy, Polly Kennedy, Mark Heverin, Iracema Leroi, Emily Mayberry, Anita Beelen, Theocharis Stavroulakis, Leonard H. van den Berg, Christopher J. McDermott, Orla Hardiman, Miriam Galvin
Publikováno v:
Brain Sciences, Vol 11, Iss 8, p 1094 (2021)
Amyotrophic lateral sclerosis (ALS)/motor neuron disease (MND) is a systemic and fatal neurodegenerative condition for which there is currently no cure. Informal caregivers play a vital role in supporting the person with ALS, and it is essential to s
Externí odkaz:
https://doaj.org/article/84e5e093b02e4239858f3f4e50d5c4c9